Post Edited (IHurt2) : 9/1/2009 7:08:49 AM (GMT-6)
I am brand new here, within the last hour as I just stumbled upon this site in a Google search! I agree, I'm not glad to have found so many in the same boat as me but I am grateful to have found others to relate to.
I have been searching for help the past couple days because of a major flare-up and NO painkillers - period. I have been taking some of my husband's Darvocet but it takes 3 of the maximum strength just to barely take the edge off and at that rate my liver will be dead very soon, something I am quite attached to! My primary care doctor referred me to a pain clinic but the one she referred me to can't get me in until September 3rd, which is a lifetime away when you're in constant pain, as ya'll know. My breakdown today came when the same primary care doctor that referred me to a pain clinic would not prescribe ANYTHING - NOTHING - NADA - ZIP - ZERO for pain to get me through til Sept 3rd. According to her nurse, she said I just have to wait til my appointment at the pain clinic and she would not prescribe anything for pain because "Fibromyalgia does not respond to painkillers at all." (This is coming from the same doctor who had previously given me Norco for said Fibromyalgia that now apparently is all in my head - I guess I must just want a "fix"). Actually, I just want a life without pain but it's apparently not in the cards for me. It's been my personal experience that when I get a grip on one thing, another pops up in its place - I swear, sometimes I honestly and truly feel like I am God's guinea pig, He's put me here to test just how much a person can take before they snap. Sorry, I'm having a bit of a pity party tonight and I am unusually depressed.
I'm sorry if my next question belongs in a different forum or thread (and please, please let me know if it does and accept my apology and ignorance as I am new to all this!) but I have heard mixed things on pain clinics so I'm looking for any insight on it all. All I want is to have no more pain and if that is by narcotics, I'd like a doctor who understands that and will help me with them and monitor me closely to be sure I am not abusing them; if it is by other means, so be it but I also don't want to be a human guinea pig or a pincushion until the answer is uncovered. I am just sick and tired of being sick and tired...
I think I need roxicet as a back up, so I don't have to go to the ER every month. I keep getting flare ups monthly. Many times the Dr. should have kept me overnight b/s the tordidal shot only works for awhile then it’s back to the pain.
Daily I'm fatigued and have pain. That's normal. When it get's, so bad I want to be put to sleep. No one in my life understands how painful it gets. My husband just tells me to shut up and go to sleep. Then he comes in to check on me and puts the blankets on me every so many hrs since I kick them off, b/c restless leg syndrome.
I just go home and go to sleep mostly to ignore the pain. Trazadone helps me sleep. 2 benadryls help me cool down sometimes when I'm wigging out. I barely got on flerxeril 2 months ago with no refills as usual, but have to take it 3x's a day or I can't walk or get out of bed. I have to refill every 10 days.
I have some vicodin, but it doesn't work for me. It does nothing. Two does nothing. Plus can't take it during work.
The fluoxetine is at 40mg. I think I might have to go to 60mg that's my usual. Been feeling too depressed. Discrimination at work, b/c of my Cain and taking sick days. I had to report that. I cried for days b/c of it. It made my stress go up. I still feel the repercussions of it. It made me realize I have an illness I can’t get rid of. I want God to take it away for all of us. I can’t even get a handicapped sign. I petitioned twice to the Dr. Maybe they think I can crawl instead. How can I get the handicapped sign.
My friend that's on Medi-Cal for migraines gets vicodin, percocet, baclofin, valium, and ativan. It's not fair. I work for my insurance and people on medi-cal get better treatment. I had to wait 3hrs for my vicodin to be cleared by a Dr. or go to Urgent Care again. I waited the 3hrs instead. That was ridiculous.
The greatest ticker is that it took the an ER Dr. to figure out I have both FM and myofacial pain syndrome that’s what caused the depression and anxiety. I’ve had this for yrs. It’s hard to deal with right now. I’m crying.
I felt so alone today. I waited all day just to get on the forum to vent and cry.
Where is the spell check on this?