when mobility fails

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Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 7/23/2009 4:32 PM (GMT -7)   
I looked at the library for the book When Mobility Fails.  Instead I found When Walking Fails: Mobility Problems of Adults with Chronic Conditions.  Is this the book? 
 
Sorry, cannot remember who recommended it, even though I was just looking at your post!!  confused
 
I know I have trouble with mobility sometimes.  Sometimes I have to park in the disabled parking.  I rarely use the stairs, although I used to climb stairs on purpose for the extra exercise.  But when I read stuff on fibro, I rarely find anything about mobility problems.  When I search for "walking" I find suggestions like: go for walks every day, park as far away as possible, use the stairs, etc.  I do that when I can, but this dd is so unpredictable, I do not know if I park far away if I will feel awful and have a hard time getting back to my car.    I understand the need to exercise and keep moving.  People here mention trouble getting around.  Why don't fibro sites and books seem to address this problem?  Am I looking in the wrong place?   or am I "imagining" this mobility trouble. . .
 
I think it is difficult enough with the ups and downs of fibro to know what to expect from day to day.  Sometimes when I feel better I tend to wonder if I over reacted the day before when I felt worse.  I think, Oh, I can do this or that, etc. . .
 
I am rambling and having a hard articulating what I am trying to say. . .
 
Sue

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/23/2009 7:21 PM (GMT -7)   
I had a senior doctor (not a rheumatologist though) have a go at me for using a walking stick a couple of days ago. Apparently I "shouldn't need it". Hmmm.

I wish she could explain why I struggle to walk at all 50% of the time, then...

It's incredible how our illness gets "defined" and some symptoms are unrecognised.
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donnaeil
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Date Joined Jun 2006
Total Posts : 1156
   Posted 7/23/2009 8:32 PM (GMT -7)   
I mentioned the book. I always get that darn title wrong. I hope you like it. The woman who wrote it uses a scooter.

Yes, that is the book that I mentioned. I swim because I cannot walk that well anymore. I took two major falls and had to have surgery on both knees due to balance problems, These occurred before my diagnosis. I just thought I was clumsy.

Donnaeil

Post Edited (donnaeil) : 7/23/2009 9:35:42 PM (GMT-6)


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 7/27/2009 2:38 PM (GMT -7)   
Thanks, Donna.  I requested the book from the library.  Did I say that already?
 
I was wondering about mobility because like you and others said, it is not mentioned much.  So I googled fibromyalgia and mobility and found some interesting websites.  There appears to be good support for people in the UK.  I also found a blog or something by someone that I thought was helpful - or at least affirming. 
 
 
These are about help for people in the UK
 
 
It is nice to see that mobility issues are addressed.
Sue

donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 7/27/2009 3:29 PM (GMT -7)   
Thanks for these sites. maybe others will begin to recognize that they can receive help and a fuller life by using mobility aids.

Donnaeil
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