Stress and Fibro?

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Jhemi
Regular Member


Date Joined Jul 2009
Total Posts : 223
   Posted 7/23/2009 10:40 PM (GMT -7)   
I've been thinking alot about how stress affects fibro.  It seems that when I over eat my pain gets much worse...if my constipation gets bad I'm in alot of pain.  If I dont sleep well I'm in alot of pain.
 
Could it be that our bodies are just overloaded with stress?  I've decided to work on getting rid of or getting a handle on whatever other diseases I have to relieve my body of stress. 
 
If I've slept well.  Gone to bed without eating and watched what I've eaten the day before, I can move about much better...am in a better frame of mind...and almost feel normal again.
 
Has anyone else noticed this?

Marlee2
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Date Joined Aug 2007
Total Posts : 6067
   Posted 7/24/2009 8:42 AM (GMT -7)   
Jhemi, stress plays a major role in the way I feel. All my problems began during one of the most stressful times of my life and my body reacts to stress whether I'm thinking about something stressful or not. My muscles tighten and my BP goes up, my body can't handle stress and with the large family I have there is always something going on that is stressful it seems. I have had anxiety problem most of my life which is inherited, there are many in my family with it. I can't stand having something hanging over my head that needs to be taken care of cause I can't relax til it is.
 
I keep each of my grandchildren for a few days in the summer time and this summer has not been good for me cause of digestive issues. I have two grandsons that live a couple hours away that have not had their turn, it was driving me crazy cause that is all I could think about was I didn't want to disappoint any of my grandchildren. I was going to keep them no matter how I felt but my son told me the other day to take care of myself and get better and do weekends with the boys when I feel better. I still feel some quilt but I do feel better about it that my son understands I'm not leaving his children out on purpose. We still have a lot of nice weather left and I will make sure they do have their time with us even if I don't make it before school starts. That was a big load off my mind. That might not bother some grandmothers but it does me.
 
So stress = pain with fibro.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
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Sherrine
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Date Joined Apr 2005
Total Posts : 17097
   Posted 7/24/2009 8:48 AM (GMT -7)   
Marlee is correct.  But, I try to eat right all of the time, since I'm diabetic, and I sure haven't felt "almost normal."  (Don't you dare, Marlee!)  But that's just me.  If it works for you, you should be doing that all of the time!  I know I would.
 
Sherrine 
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Bella Scarlett
Regular Member


Date Joined May 2009
Total Posts : 87
   Posted 7/24/2009 12:10 PM (GMT -7)   
Stress is THE trigger for fibro symptoms for me. If I control that, eat well, exercise and sleep well, I feel pretty well.
"...All shall be well, and all manner of things shall be well."
Julian of Norwich


boo32
Regular Member


Date Joined Jun 2009
Total Posts : 222
   Posted 7/24/2009 12:12 PM (GMT -7)   
hi,
I think this is exactly why the medical community is divided with thier attitude to fibro.
Stress is a major factor that influences fibro, but, if you look at the symtoms of most chronic conditions from irritable bowel to MS, stress will always be an influential factor.

Now, i do not want to start a war here, but i think this is where some people say fibro is curable. If i eat a strict (and i mean strict diet, nearly all fruit and veg only), get enough sleep, avoid all stress and exercise regularly then yes, my fibro relents for months on end.
I would have to live in a bubble, wrapped up in cotton wool to achieve that paradise.

Nobody can live a stress free life and abide by every rule continuosly, and i think that is what some doctors get all riled up about. They can't distinguish which came first, the pain or the stress, obviously if you are in pain, you are stressed....do you see where i'm going here.

What i would love to know is...Do people with fibro have an inability to process stress in the body which leads to the condition.

When all us fibro sufferers die(old and of natural causes of course) will they realise that we have malfunctioning adrenal glands that didn't produce enough cortisol to combat stress.

Will our livers and kidneys be different as we can't seem to process lots of different foods, drinks and medicines.

My mother always describes fibro(she has it to) as an allergic reaction to the 21st century, She has sufffered since the 70's and while fibro wasn't even around then this is what her doc said, i think he may have been on to something. My husband on the other hand says i'm an alien and allergic to the earths atmosphere...(he says the aliens from war of the worlds are my real family.....This is only to humour me, amd it does make me laugh.)

Sooooo, obviously, i'm not saying fibro is in our heads....i hope thats not how it's coming across....but i can see how some doctors still percieve it to.

This is only my opinion, so please don't get offended. It's just sometimes i think if i lived up a mountain somewhere away from everybody and everything, i'd be much better....lonely, but not sick.
boo
BikeBoo, biking with my boo since 1999
Of all the things i've lost, i miss my mind the most! But it has its advantages!
Fibro, spinal arthritis and all that goes with it.
GAD


Jhemi
Regular Member


Date Joined Jul 2009
Total Posts : 223
   Posted 7/24/2009 2:03 PM (GMT -7)   
I agree Boo. By the way, I've only been pre diagnosed with fibro...but if I dont have it I sure have a great imitation of all of the symptoms.

Today I went to see my family doctor. He has sent me to a rheumatologist .. I thought for fibro but the rheumatologist does not take fibro patients. My family doctor said that it is not just for fibro that he wants him to see me so I have an appt.

Anyway today I asked my doctor why the rheumatologist does not see fibro patients anymore. He said it was so they could free up their time with the really sick patients like those with rheumatoid arthritis and lupus. He said the fibro patients dont hurt nearly as much as these others.

Im not sure exactly what answer I expected but that was not it. I told him that I DO hurt..and that sometimes...<most always>..I cant walk right or any at all because of the pain. I had forgotten to mention once again the brain fog and sleeplessness and also irritable bowel syndrome. His answer to this was more exercise which would reduce my stress and make me feel better. How about a sleeping pill doc? so I can get a good nights sleep and wake up more refreshed...then maybe I can do that exercise before my body gets so stressed out that I can no longer do that exercise that is so good for me!

SleepyBug
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Date Joined Nov 2008
Total Posts : 1097
   Posted 7/24/2009 3:38 PM (GMT -7)   
Boo,

You bring up an interesting point re: fibro and difficulty processing stress. Here's what I wonder about it-it is being said recently that fibro is a condition where the central nervous system has issues with sending out funky pain signals, which affects our muscles, etc, which causes what we all know as fibro. It is also known that the CNS is crucial in the stress response (I was curious about this, so I looked it up and found this article:

www.nativeremedies.com/articles/how-does-stress-affect-the-nervous-system.html

So if our CNS is already sending us funky signals and screwing up our pain receptors and causing us all of these issues, it would seem that matters would only get worse when stress comes into play because our CNS jumps into action when there is stress in our lives, and since our CNS don't work right anyway, when stress comes along it makes the fibro pain worse.

Hope that makes sense....
"The ideals which have lighted my way, and time after time have given me new courage to face life cheerfully, have been Kindness, Beauty, and Truth"~Albert Einstein


Marlee2
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Date Joined Aug 2007
Total Posts : 6067
   Posted 7/24/2009 3:47 PM (GMT -7)   
Oh Sherrine I'm trying so hard to leave it alone, I have been so nice to you for a long time. Evil is pulling hard, go to any institution and the residents will tell you they are normal  devil
 
The last time fibro seemed to take a leave from my body was 1 1/2 yrs ago when we went to NC to our oldest son's retirement. I had almost two weeks, I think it was, of heaven. Isn't it sad that we don't forget the few good times we get. I wasn't doing anything different that I know of except going south in Feb which made me happy. I so hope it leaves again when we go to Montana. Maybe getting away from the business and ringing phones, all the family problems and knowing our son and DIL are here taking care of the house and puppies takes such a load off it is lack of stress when we go on vacation. I am a little anxious about leaving the two puppies that I have not been away from yet, when we went to NC Brandy was still with us.
 
Jhemi, feel lucky your doc told you in advanced the attitude the rheumy has about fibro and cross him off your list of docs to go to. When I was looking for a new rheumy I talked to his nurse and found out his views on fibro before I ever asked my GP for a referal.
 
Boo, fibro has been around for a long time under other names which I can't remember at the moment, I'm operating today with one brain cell. tongue
 
I hope we are all around when they do get to the bottom of this, it will be interesting.
 
luv and hugs
Marlee
 
 
 
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
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Jeannie143
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Date Joined Apr 2004
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   Posted 7/24/2009 4:01 PM (GMT -7)   
One of the universal factors of fibro is the fact (causative agent unknown) that we are all deficient in serotonin. Whether our "stress" or pain or some viral agent or whatever (!) causes it, we don't have enough of the one brain chemical that we need to regulate our pain response, mood swings, sleep patterns, appetite and several other things that serotonin does. This is why the anti-depressants that help us hang on to our serotonin are so useful. I'm not sure whether my prozac protects me from stressing out or if maybe it gives me more serotonin to handle the stress. Whatever it does, I'm far more productive on prozac than I am without it.

The history of fibro goes back to the 18th century when physicians called it 'articulating rheumatism'. Poor women couldn't afford doctors and just plodded on, dealing with the pain with home remedies, alcohol and patent medicine. Wealthy women took to their beds and eventually thru the lack of exercise became invalids. I'm glad I have this disorder at a time that it's at least recognized (if not understood) and that we have elevators and vacuum cleaners, washing machines and cars. I'm not sure how long I would have lasted in the 'good ole' days' !
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


boo32
Regular Member


Date Joined Jun 2009
Total Posts : 222
   Posted 7/24/2009 4:43 PM (GMT -7)   
hi,
I was wanting to broach the above subject beofre but didn't know how to put it across without sounding offensive. It is this very reason that it took me so long to accept my dx.

Jhemi.. My rheumy last saw me 5 years ago and does not want to see me again unless i have an active rhuematoid factor or swollen joints. There is nothing he can do for osteo arthritis.
I looked more into the hormone aspect of thingd and it was only when i accepted my anxiety and depression that i allowed myself to accept fm. I wouldn't go so far as to say fibro is deprssion/anxiety manifesting physically, but it would seem that way.

Jeannie, chronic fatigue syndrome, ME, nuerasthenia and others i'm sure are the older names for fibro, i think it's a condition that is unique to the individual and thier envioronment. I'm in Ireland, and unfortunately, it takes about 2 years or more for advances/attitudes in the us to reach us and some of our doctors. The serotonin imbalance is another reason doctors fob us off.
But what i can't understand is, why they still won't accept it even with that....you can't fake low serotonin levels. If prozac is an SSRI(serotonin substance re-uptake inhibitor) then it should work.

My infertility issues were being totally ignored untill i changed doctors and never mentioned the fibro. I'm 32, trying to concieve 2 years and don't have time to be fobbed off.

It seems to me my whole endocrine system is malfunctioning. I produce too much cholesterol(can be stress related), not enough serotonin(can be stress related) and not enough progesterone to get pregnant( can be stress related), so no wonder i'm stressed.......

Is fibro just a big viciuos circle then? Not that i want to stress anyone out :-)))))
BikeBoo, biking with my boo since 1999
Of all the things i've lost, i miss my mind the most! But it has its advantages!
Fibro, spinal arthritis and all that goes with it.
GAD


RoseCrone
Regular Member


Date Joined Aug 2008
Total Posts : 71
   Posted 7/24/2009 9:44 PM (GMT -7)   
This is a topic that has been on my mind lately...the link between stress, depression and fibro.  I think for most it is hard to say which came first, like the chicken or the egg question.  For me though, I used to handle stress very well.  I made it through a lot of stressful stuff  (job, teenager, alcoholic husband, losing my mom, caring for my grandmother, deaing with a severely mentally ill younger brother who held himself hostage, and other stuff) without having any distinquishable fibro or depression issues.  In 2002 TMJ hit me suddenly and hard.  It was during a stressful business trip.  All down hill from there.  I think I reached a burn out point.  I was in the fight or flight mode for way too long and my cortisol levels were going crazy.  I was not diagnosed with fibro until two and a half years ago, but that was after struggling with pelvic pain that took two years to pin down (endometriosis and eventually a hysterectomy and ovaries removed).  I think that really kicked in the fibro.  All sorts of hormone changes now mixed in to the picture.   I did not stop having pelvic pain for two years after the surgery and then was diagnosed with fibro.  Who knows when the depression really started.  Chronic pain of any kind leads to that, and so does the frustration of trying to get a diagnosis for pain.  Specialist after specialist.  It actually took three different OBGYNs  before I convinced one to actually do a laparoscopy and look inside and lo and behold I had endometriosis.   And it turned out later, adenomyosis.
Now I am at a point of major depression.  Stress at work (and going through divorce).  Chronic pain. They are all related, for me anyway.  The comment about seratonin I find very interesting.  I cannot take any of the 3 classes of anti-depressants.  Even buspar (anti-anxiety med) started to send me into early seratonin syndrome (too much seratonin).  They make me absolutely crazy-I can't think straight, sleep, I get jittery, tremors,  anxious, etc.  Yet docs want to treat fibro with ADs, now I understand why.  Maybe I don't have fibro, or I am an odd-ball where low seratonin levels are not evident in my version of it.   Or maybe the fact that I am on tramadol (max dose of 400mg/day) is already providing a seratonin boost (the jury is still out on that one).  But long before I started tramadol I could not take ADs, so I am not sure if the tramadol is playing a role now or not.
I have tried a new doc, a rhuemy, and even after telling him I cannot take ADs he gave me a very low dose of Elavil to take only at bedtime.  "So the muscles will relax and hurt less".  What I was really hoping for was stronger pain meds.  I just started klonopin for the stress and the first week was great...almost felt like my old self except for pain, but then the crying started again.  Well, big mistake with the Elavil, I woke up not knowing who I was, wondered where my brain had gone, was walking into walls, etc.  I should know better by now and just refuse ADs.  Still have a follow up with him to see if he has any other bright ideas.
 
Sorry, got to rambling, but for me, stress makes both my depression and fibro worse.  Depression makes my stress and fibro worse.  And when my fibro is worse, so is my stress and depression.  That is not too say any of it is "in my head" - I very much believe it is related to body chemicals including hormones and neurotransmitters.  What happens in my head affects my body and vice versa.  It's really a complicated situation and I hoped breaking the cycle of one element would help but not yet.
 
I would love to see a breakthrough with this illness, but  sad to say there are so many illnesses that just don't get money for research and this is one of them.  Especially since it is not terminal and it gets thrown in the "too hard pile"  Too many unknowns, too many varitaions, etc.  
Rose  
 
RoseCrone
__________________________
Fibromyalgia, TMJ dysfunction, Myofascial Pain Dysfunction, Chronic Fatigue Syndrome, hypothyroid, bruxism, endometriosis, medically induced menopause (everything removed!), major depression, going through a divorce to top it off!
__________________________
Ultram, Soma, Ativan, Lyrica (on and off), Armour Thyroid, Famvir, can't tolerate SSRIs or NSRIs.


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 7/24/2009 10:33 PM (GMT -7)   
I wish I could sleep.... cry My GP won't do anything for me and now I'm loosing my balance off and on. I don't know what else to do ?
 
HARA

Jhemi
Regular Member


Date Joined Jul 2009
Total Posts : 223
   Posted 7/24/2009 11:20 PM (GMT -7)   
Sleep...don't we all need that to maintain a sane life? That's a major culprit for all of us? Who here can say that they have gotten a good nights sleep for even 3 days in a row? If you can say this I envy you. I myself am up and down all night. I've never been a heavy sleeper but since this has started it's even worse. If someone opens a door I hear it. Just now a dog across the street decided I'm sure that it was about time I woke my behind up! He barked incessantly until I got out of bed and walked onto the front porch...its been quiet ever since. 1.5 hours sleep and now I'm up until my body says lie down...not necessarily that I need to sleep...just that I cant sit or stand anymore.

Without sleep there is no lack of stress.

My big plan is to (sorry all you dog lovers) take a board and hit that dog over the head until he barks no more. :D

He does it EVERY night until I wake up and then he can sleep. Seems he can't sleep as long as I'm comfortable...

I told my doc please give me something for the pain...if not for the pain then something to help me sleep then maybe I can break this furocious cycle. He looks at me like "oh you poor child don't you know you're just kidding yourself" and gives me muscle relaxers that do absolutely nothing. He also took me off of anti depressant that at least helped keep me calmer and put me on Savella which makes me agitated to the point of wanting to clobber some poor dog until it quiets forever...

We should all have a sit in on our hospitals and just sit there saying absolutely nothing ... when they ask us what is wrong with us tell them I refuse to leave or speak to you until I am sure you are listening. How long you think we'll be there???

Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 7/24/2009 11:41 PM (GMT -7)   
My doc doesn't believe I'm in pain and refuses to do anything more for me, so I guess I am on my own now.
 
I left a message and told the nurse that I was having balancing problems. She told me to write them down and when and what I might be eating and what kind of weather is outside at the time. ..... YEAH RIGHT LIKE i'M GOING TO REMEMBER ALL THAT!
 
 
HARA

boo32
Regular Member


Date Joined Jun 2009
Total Posts : 222
   Posted 7/25/2009 1:50 AM (GMT -7)   
oh guys,
this is so hard isn't it. Rose, you hit the point i was trying to make (the fog got me). about not in our heads...but in our brain chemicals....so technically in our heads.

I can't take anti depressants, ironically, they make me more unstable and even suicidal.

I would love to be able to break the cycle, at the moment i am badly flared up and can attribute some of it to actually being on this site. For the first time ever i'm spemding time on the computer. I'm getting severe repetitive atrain syndrome just typing this much.

As for sleep, i can't get enough, if i slept for a week, and i could, i'd still be tired. Sleep hasn't much value for me. I get those''bursts of awake like brain activity'' anything up to 8-10 times a night when i'm bad.

Any pain meds that are supposed to sedate you make me yhper and i won;t sleep for nights.

As long as we have each other here it's a help and support to me.

HARA.. i'm sorry your doctor is so unhelpful, can you change docs.

JHEMI..can you speak to the owner of the dog as i'm sure there are others in the area that would agree with you. Or would that be a bad idea.

boo
BikeBoo, biking with my boo since 1999
Of all the things i've lost, i miss my mind the most! But it has its advantages!
Fibro, spinal arthritis and all that goes with it.
GAD


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 7/25/2009 2:33 AM (GMT -7)   
Thank you Boo for your kind words. I'm still waiting on the insurance company and my dr to make sure I can use my C-pap machine. Then hopefully I can find a new doc. to take me on with all my illnesses. I also read somewhere that Major depressive disorder is a disability. I have other issues as well. I will have had my Diabetes for 2 years come this September and my Fibromyalgia a year at the end of this year.
 
HARA-Fibro, Diabetes, Asthma, Sleep Apnea, tention headaches, carpal tunnel syndrome, GERD, Major Depressive disorder, Anxiety/Panic disorder and PTSD

tyno3
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Date Joined May 2008
Total Posts : 1081
   Posted 7/25/2009 3:52 AM (GMT -7)   
Wow! What a lot of thinking going on in this post. I have been absent for awhile, because, I have felt better and actually started having a semblance of "a life". Like "Normals". Then we started our 3 weeks of rain, plus as we near months end, my meds are starting to run out, can't see the doctor till end of July, and whammo, no sleep for three nights, can't think, hurt all over.
I think there is a problem with healing. about a month ago, I landed in emergency, nausea, diarrhea, aches all over and toppling (like Hara) describes. Unbalanced. I blamed it on the erythromycin I was starting for a chest infection I have been battling, like forever. So, after about three hours, they gave me a shot in the butt, something to help w. nausea. Anyway. I still hurt, a full month later, from the injection site! I used to give blood and never remember it as hurting after the initial pinch. I had many shots over the years, and don't remember pain lingering beyond a few hours. Just my thoughts, we don't heal, from psychological or physical wounds. This relates to HGH deficiency. It seems to be all hormonal and neurotransmitter related. Can't they find a test to measure what is "normal" and then make up for the deficiencies? Apparently, the so called "normal levels" are set artificially low. I am convinced if my TSH levels were decreased, ie If I were given the adequate dose of synthetic hormone for thyroid, I would feel worlds better. Less lethargic and achy all over. Pardon my whineiness, I am kinda disappointed, back to feeling lousy after a few weeks of feeling OK. I know I have to quit playing victim and get out and do something about all of this. Good to hear ya'll again, anyway.

boo32
Regular Member


Date Joined Jun 2009
Total Posts : 222
   Posted 7/25/2009 8:58 AM (GMT -7)   
hi tyno,
I think you're so right about the tsh, it takes several tests to comfirm in one person what is normal. I think you need to be hospitalised and assessed over several days to really get to the bottom of it.
I hear you about falling off the wagon and getting sick again.
I was 1.5stones lighter and so fit last year it was unbelieveable, but i couldn't maintain it and fell back into a viciuos circle again. Now i know i just can't get that level for a while again.
My physical therapist thinks fibro sufferers don't repair muscle near as quick as others and this could be a factor.
Anyways, i hope we can all feel better and be well.
Also, tyno, i have found that when i'm really bad and telling myself to suck it up it can make it worse for a while. Sometimes we need to learn the difference between sucking it up and giving ourselves a break.
boo
BikeBoo, biking with my boo since 1999
Of all the things i've lost, i miss my mind the most! But it has its advantages!
Fibro, spinal arthritis and all that goes with it.
GAD


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 7/27/2009 3:33 AM (GMT -7)   
I think I need lessons on "giving myself a break", I am so driven. Today, I am a walking mass of pain. I lugged stuff to the flea market yesterday, and back, tubs of books and such. Today i wake in agony and have to find a doc. Later.

boo32
Regular Member


Date Joined Jun 2009
Total Posts : 222
   Posted 7/27/2009 5:19 AM (GMT -7)   

hi tyno,

i had a few beers last night and i'm paying dearly today. Pains in my wrists and shoulder. It was a great night tho, so i'm going to give myself a break and allow myself to relax. Not beat myself up for having them and straying off my diet.

tongue
BikeBoo, biking with my boo since 1999
Of all the things i've lost, i miss my mind the most! But it has its advantages!
Fibro, spinal arthritis and all that goes with it.
GAD


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 7/27/2009 6:05 AM (GMT -7)   
Tyno, I had that conversation with my doc about what may be normal for others may not be normal for me when it comes to thyroid so he did up mine to humor me and it didn't make me feel any better. There are dangers in having it too high too so I went back down to what he thought I needed to be on.
 
Sorry your feeling bad again but missed you while you were feeling better.
 
luv and hugs
Marlee
 
 
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Jhemi
Regular Member


Date Joined Jul 2009
Total Posts : 223
   Posted 7/27/2009 8:10 AM (GMT -7)   
I was just re-reading RoseCrone's post here about how her stress elevated to a breaking point. My Fibro all started in 2007. In 2006 my husband and I moved to a new home...we took on a mortgage for 30 years at the ripe ages of 57 and 59...dumb I know but we figured this is our last home. Then he lost his job right shortly after we moved here. By October of 2007 my brother and sister in law had to move in for a short time..or I thought it was a short time but then my brother blew his knee out and they are still with us here. By the end of the year I had to go back into truck driving with my husband to meet the expenses we had here. By that time I was starting to feel the first affects of Fibro.

Mine started with a rash first then itching. I thought I had picked up some bug. Went to the doctor and I swear if I had told that doctor I had scarlet fever at that time she would have treated me for it without checking a thing. She gave me cream for scabies. It wasnt scabies.

I washed everything in my house...I bathed at least twice a day...my skin felt like it was on fire. Then my whole body started to ache. I must have bought every cream and soap and lotion to fight bugs I could find on the internet. When my body started to ache I thought in my grandiose mind that I must have been having an allergic reaction to whatever bug I had picked up. No one else in the home was itching though so these 'bugs' must have loved me alone.

Went through three doctor's before I found the one I'm with now. He didnt even address my symptoms though but did find a bunch of other things that were wrong with me...gall stones...cerhossis of the liver...then I pinned him down recently and told him how I had not only gone to see him the first time because of the pain in my body but had seen two other doctors for the same reason and none of them addressed the problems.

He thinks it's fibro now and I see a Rheumatologist in August.

Funny thing though RoseCrone...you mentioned Cortisol. Before all of this happened I had been in perfect health. I even had my diabetes under control to the point where I no longer needed meds to contain it. Part of my regimen at that time was supplements. I was taking L-glutamin, Chromium Picolate, and Omega three's to bring my cortisol levels down and lose weight and it was working. But with all that was going on in my life...with the move and all I stopped taking them. Now I'm wondering IS there a connection?

hmmmmm..

American Woman
Regular Member


Date Joined Jul 2009
Total Posts : 96
   Posted 7/27/2009 8:30 AM (GMT -7)   

Hi everyone:

Ive been reading alot on this forum and I can't believe how everything I'm reading is hitting so close to home.  I know  stress is my key factor in how I feel everyday.  I tell myself, why do you let things get to you, but talking to myself doesn't seem to make matters any better.  I wish I could sleep also because when I happen to get some sleep I really do feel better but those times are so limited that I try to cram doing lots of things in that one day, then I suffer for it the next day.  I try to keep a positive attitude though sometimes its not so easy. 

Being on this forum has helped me so much just to get these things off my chest and try not to put to much on my family.  I appreciate that everyone here knows what I'm feeling and can understand when I say I just can't do that today.  My family is very understanding, It's the guilt I have that I'm not able to do things I have done so easily not that long ago.

thanks for letting me ramble.

Have a great day and if not a great day today then maybe tomorrow!

American WomN


RoseCrone
Regular Member


Date Joined Aug 2008
Total Posts : 71
   Posted 7/29/2009 10:12 PM (GMT -7)   
I try to do the same...tell myself not to let things bother me...and it's just not always possible.  ADs help prevent that tape from running over and over.  Some other meds do too.   But I would like to learn how to shut that tape off with my own intellignce!
 
On the cortisol thing...just thought I would mention that one doc told me if I did not slow down I was going to wake up one day with "adrenal exhaustion".  And not be able to even move.   (Heck I can hardly move every morning so this is "normal" for me).  This was about a year ago.  It was explained to me that when the body makes cortisol at  high levels over extended periods it sort of burns out the adrenal glands.  I am not sure this is true...I need to get off line and go to bed or I'd google it to see what I could find...but I think, in my case at least (if it is true), this has contributed to my fibro.  That is, contributed to the chemical imbalances. 
Even with chronic pain I somehow still burn the candle at both ends and I pay for it.  But I don't know how to slow down, until I literally get to the exhaustion point and have no choice but to rest.  I am currently on a 2 week short term disability "rest" from work - as my doc put it my "chronic pain has exacerbated my major depression".  He did not add that my work stress also does!   (Sorry if I said this above...just ignore me if I did  :-) ).   I have to somehow figure out by Aug 10th how to cope with the pain and depression so I can function at work.  I can't imagine how I will do that even with physical therapy, psycotherapy, and as of yesterday (finally) a stronger pain med!    I was so glad today my doc confirmed what I am thinking...that it isn't reasonable to think I can figure out how to cope in a 2 week time period...and I should take more time.  He already said he would be willing to write the letter to my employer if I needed more time.  I really don't want to go back and continue crying at work because of either physical pain or emotional pain.  Or just plain old stress.
We'll see.  Thanks for listening.   Isn't fibro fog one of the best excuses there is for rambling? tongue
It's already Thursday here so I better get to bed!  Need that beauty rest!
Rose
RoseCrone
__________________________
Fibromyalgia, TMJ dysfunction, Myofascial Pain Dysfunction, Chronic Fatigue Syndrome, hypothyroid, bruxism, endometriosis, medically induced menopause (everything removed!), major depression, going through a divorce to top it off!
__________________________
Ultram, Soma, Ativan, Lyrica (on and off), Armour Thyroid, Famvir, can't tolerate SSRIs or NSRIs.


akjak
New Member


Date Joined Jul 2009
Total Posts : 10
   Posted 7/30/2009 12:01 PM (GMT -7)   
Reading through this thread, two things spring to mind:

Those of you with unsympathetic doctors/rhumys: Please, please try to find another doctor. There's no point in spending your time and money with a doctor who doesn't even believe you're in pain.

Second: One of the things I'm learning in managing my stress is to stop feeling guilty for being tired and in pain. My mantra for now is "It's not my fault." When I'm able to let go of worrying what others think of me (boss, partner, friends..) I usually gain some peace.

Once I get the hang of that, I'll move on to "I will feel better"
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