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SadSickTired
Regular Member


Date Joined May 2009
Total Posts : 99
   Posted 7/24/2009 7:20 PM (GMT -7)   
Hello everyone!  Usually I hang out in the Lupus forum, but pending a dx on that (you know how long a dx can take!).  Last week I was formally dx'd with Fibro and Raynaud's and to be honest it kind of knocked me off balance.  I have read the Fibro 101 and many resources, but I am hoping that you could help me out with somethings that maybe some of you have had some experience with?
 
1) I have started scripts for Neurontin and Mobic (300mg and 7.5mg respectively).  How long before I start seeing some relief?
 
2)  I have a script from my GP (aka "Dr. Great Guy" in the Lupus forum) for Vicodin (just for the two months it took me to get a rheumy appt), and I asked my rhuemy if that was ok to take.  She said it wouldn't be a problem and to ask my GP for refills to take until the maintenance meds begin to work.  Is that weird that she didn't just give me a script herself, because now I feel weird calling my other doc since I am under treatment with the rheumy?
 
3)  How do I set limits at work (I am a Manager at a big box warehouse, where we are considered "working managers" in that we are expected to unload trailers if need be and that kills me and can set me back) and make the higher ups realize that I am not being a slacker or trying to get out of anything.  That I am just trying to take care of myself?  I took this week off of work because the side effects were pretty fierce the first few days (they always are when I start a new med) and I called and asked for FMLA Leave of Absense paperwork to be mailed to my house after calling the HR Manager and explaining that I had a dx and what it was- hedidn't even ask me any questions or even how I was feeling.
 
If you can help me with this I would REALLY appreciate it.
Thanks!
Trish
 
 


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 7/24/2009 8:40 PM (GMT -7)   
Hi Trish,
 
It took my a couple of weeks to feel the improvement with the Neurontin.  I started out at 300 but it wasn't enough.  600 is my dose and it works really well for me.  I hope it does for you too. Just be prepared to feel really drowsy about 3 hours after you take it.  I take it in the evening and I sleep like a baby.
 
Don't feel weird about using your GP for refills.  That's what he's there for. He should be your primary doctor for medication refills. 
 
Setting limits at work.  Very important.  Set them early and don't let anyone take advantage of you!  Be firm in making it known what you can and can not do.  Don't be wishy washy with the tasks that you can't do.  It will likely come across as looking like, "Gee, she said she can't do that but she's doing it anyway. Guess her pain and problems aren't that bad...."  Make your task list black and white.  No gray!  Then no one will question you.  That has worked for me!
 
Good luck Trish!  I hope it all goes really well for you and you can get your pain relieved and your diagnosis made,
 
Ginny
 
 
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in to be content.Phillipians4:11-13
35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 Co-Moderator for the Lupus and Fibromyalgia forums


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 7/24/2009 9:40 PM (GMT -7)   
Hi, Trish, and welcome!  I can't help you with question #1 because I use ibuprofen with food, extra strength Tylenol, malic acid/magnesium, and vitamin D3 for my pain and fatigue.  But, for your second question....Vicodin is a narcotic and drug stores are very careful about that.  If you have a prescription with one doctor and show up with a prescription from another doctor, it would look like you were doctor shopping.  So I bet that's why your rheumy told you to get it from the original doctor.
 
As far as  your job goes, you might want to sit down with  your boss and see if you can do more office work in lieu of unloading trucks.  I realize that is part of your job but you said it was part "if need be" and since that is too difficult for you perhaps you can pick up the slack in another area.  This way, the other managers won't think you are trying to get out of work.  Maybe you can do things to help them out so you don't have to be unloading trucks.  I'm just guessing at this but that's what I would do. 
 
I'm so glad that you popped over her and joined in.  Don't hesitate to ask questions.  We are here to help you.  Hope to hear more from you soon.
 
Sherrine 
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


SadSickTired
Regular Member


Date Joined May 2009
Total Posts : 99
   Posted 7/24/2009 11:40 PM (GMT -7)   
You guys are so great. You all gave me a lot of great advice and some really solid points of view. I never thought about the doctor shopping thing! And the thoughts on having my GP maintain all of my meds is another one! Thank you so much! And Ginny- it was especially nice to hear from you- a friendly "face"! I'm sure that I will be back as I ALWAYS have a lot of questions and concerns! Thanks again- as always- I welcome all points of view!
Thanks!
Trish
 
 


erwin
New Member


Date Joined Sep 2009
Total Posts : 2
   Posted 9/15/2009 5:27 PM (GMT -7)   
HI  their I have fibro to dx in 1995.  I have taken neurotin and mobic takes 3 to 4 weeks for full effects from meds to work.  and about the pain meds. Most doctors only want one of your physicians to control pain meds. so you don't get the wrong ones. You see your family physicians more often so thats the one that usually takes care of pain meds. I hope this helps you.I am going to a painmanagement clinic now and he has taken the job of pain control. Its wonderful he has really helped so far and I've only seen him 3 times. hope you have a good day.
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