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Bella Scarlett
Regular Member


Date Joined May 2009
Total Posts : 87
   Posted 7/25/2009 5:50 PM (GMT -7)   
... but not from fibro. I have been bitten by a deer tick twice in the last month, last time on Wednesday evening. I am so frightened that I may get Lyme. I've been doing a lot of reading on the 'net and am very disheartened; people are suffering so much with all these diseases. Fibro and lyme seem to overlap quite a bit. One doc believes that fibro starts out as lyme, misdiagnosed. Interesting.

Anyway, after the first bite, I did one day of doxy, as prescribed. After this one, I did two days. Some sites say four weeks, but my stomach could never take that. The chances are transmission are slim, as the tick was not engorged and probably not on very long, but still ...

I walk my dog in the back field and she is in and out of brush. She sleeps with me, so it is likely it came from her. I guess I better make some changes fast.

Wish me well, please!
"...All shall be well, and all manner of things shall be well."
Julian of Norwich


boo32
Regular Member


Date Joined Jun 2009
Total Posts : 222
   Posted 7/26/2009 3:10 AM (GMT -7)   
hi,
I hope you feel better soon, can you walk the dog anywhere else. I find it interesting that fibro may have been undiagnosed lyme diesese. My mother brought it up with me recently as she thinks i should have been tested for it. I was dx with fibro without any teat for lyme or lupus. I just tell myself i'd be much worse if i had these things as i'm able to work and seem to be in a better health postion than some of you guys.
Is lyme only from a certain type of tick or all ticks?
boo
BikeBoo, biking with my boo since 1999
Of all the things i've lost, i miss my mind the most! But it has its advantages!
Fibro, spinal arthritis and all that goes with it.
GAD


Bella Scarlett
Regular Member


Date Joined May 2009
Total Posts : 87
   Posted 7/26/2009 4:32 AM (GMT -7)   
Lyme is only spread through the bite of a deer or black legged tick. They are so small, like the end of a #2 pencil - the sharp lead point end! We live in a very tick-infected area - PA. There are many cases of lyme. I've tried to be careful, but didn't want to completely alter my life for this thing. I've had two lyme tests: one negative, one positive. But the tests are notoriously unreliable with an accuracy rate of 50%. I had to ask for the test, doc never mentioned it.
"...All shall be well, and all manner of things shall be well."
Julian of Norwich


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 7/26/2009 8:42 AM (GMT -7)   
Bella, have you gone over to our Lyme forum?  You can learn a lot.  From what I understand, you need to have your blood work sent to Igenex in Palo Alto, California.  It is the most accurate lab...geared to Lyme, I think.  Also, there are special doctors called Lyme Literate doctors, or LLMD for short.  The Lyme forum could tell you more about these doctors. 
 
Being checked out would put your mind at ease.  You are probably correct that you haven't contracted Lyme but I know if I was bitten by a deer tick I'd want to get checked out.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Bella Scarlett
Regular Member


Date Joined May 2009
Total Posts : 87
   Posted 7/26/2009 9:48 AM (GMT -7)   
Sherrine,

I have been doing lots of research and yes, I'm now aware of Igenex. I found a LLDM about an hour's drive from me, called them on Friday to see what they do for new bites. They are the ones who recommended a two day dose of doxy, which I immediately did. I asked how they treat lyme, but was told, "I can't tell you." I asked whether that meant she didn't know if just couldn't tell me and that was it, she just could not tell. Interesting. Anyway, I think there may be a wait after taking the abx before getting a test. Also, I have to find out who to get blood work sent to Igenex. My doc will probably balk at the suggestion.
"...All shall be well, and all manner of things shall be well."
Julian of Norwich


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 7/26/2009 10:18 AM (GMT -7)   
It sounds like you are doing everything right.  I have my dog on Sentinel and Frontline to help prevent ticks.  Also, I don't walk in the woods with her.  I think you need to find a better route to walk your dog because this route is "Lyme waiting to happen".  You really don't want that illness!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Agmaar
Regular Member


Date Joined Jan 2009
Total Posts : 376
   Posted 7/26/2009 10:56 AM (GMT -7)   
Hi Bella -
 
Yeah .... Sherrine is right.  You really don't want Lyme.  Here are some guidelines from ILADS:
 
 
Here's some stuff for new bites:
 

"21. Prompt use of antibiotics

Although no well designed studies have been carried out, the

available data support the prompt use of antibiotics to prevent

chronic Lyme disease. Antibiotic therapy may need to be initiated

upon suspicion of the diagnosis, even without definitive

proof. Neither the optimal antibiotic dose nor the duration of

therapy has been standardized, but limited data suggest a benefit

from increased dosages and longer treatment, comparable to

the data on tuberculosis and leprosy which are caused by similarly

slow-growing pathogens [25].

22. Choosing an antibiotic

In acute Lyme disease, the choice of antibiotics should be tailored

to the individual and take into account the severity of the

disease as well as the patient’s age, ability to tolerate side effects,

clinical features, allergy profile, comorbidities, prior exposure,

epidemiologic setting and cost.

 

Therapy usually starts with oral antibiotics, and some experts

recommend high dosages. The choice of antibiotic therapy is

guided by weighing the greater activity of intravenous antibiotics

in the central nervous system against the lower cost and easy

administration of oral antibiotics for B. burgdorferi.

23. Oral antibiotic options

For many Lyme disease patients, there is no clear advantage of

parenteral therapy. Along with cost considerations and pressure

to treat patients with Lyme disease with the least intervention,

there is growing interest in the use of oral therapy.

First-line drug therapies for Lyme disease may include (in

alphabetical order): oral amoxicillin, azithromycin [39–41],

cefuroxime [42], clarithromycin [43], doxycycline and tetracycline.

These antibiotics have similar favorable results in comparative

trials of early Lyme disease. In one study, azithromycin

performed slightly less well when compared to amoxicillin

and doxycycline. However, the efficacy of azithromycin was

underestimated because the antibiotic was only given for

10 days"

 

I've edited out some stuff on late stage disease. 

There is growing concern about other vectors for transmitting lyme, and at least two major and similar diseases from the Lone Star tick and a Masteri version that was first found in MO. 

Other antibiotics may be substituted for Doxy.  DON'T neglect treatment cause you can't tolerate Doxy.

Be proactive with this.  If there's one thing I'd stress, it's "don't take a wait and see" approach.  Late stage disseminated disease is just miserable to deal with. 

Lyme is a spirochete and goes deep tissue.  Since it can affect multiple body systems. it's not surprising it can look like Fibro or Chronic Fatigue.  Just my opinion - some cases of Fibro may be undiagnosed Lyme, but Fibro exists and is a distinct condition.  With enough research, maybe we'll be able to understand all the interactions of multiple body systems that produce Fibro.

 

 


Rich
 
Lyme, anxitey, depression, chronic C. Pnuemoniae
 
"... expect the unexpected ..."  (O. Wilde)
 
"I am an old man and have known a great many troubles, but most of them never happened." (Mark Twain)
 
 

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