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New Member

Date Joined Jul 2009
Total Posts : 2
   Posted 7/28/2009 12:12 AM (GMT -6)   
Hi everyone!
I am brand new here tonight; I just found this site in a Google search looking for information and HELP with my Fibro. I've spent much of the evening crying and being really depressed because my PCP flat out refused to give me anything for pain. Her nurse called and told me the doctor was refusing because "Fibromyalgia does not respond to painkillers" - even though she's given me Norco for it before!!! She said for me to just wait for my pain clinic appointment she referred me to - September 3rd, the soonest they could get me in! And doctors aren't supposed to let their patients suffer? I really feel she either thinks I have "imaginitis" or I'm wanting the drugs for the "high" - but take away the pain and I'll gladly give up the pain meds!!!
A little about me: I've had migraine headaches all my life, literally. In 2004 I was diagnosed with Trigeminal Neuralgia and ended up having a glycerol injection to deaden the trigeminal nerve; thankfully it was successful and hasn't given me any issues since. I have had other neuralgias and limb and extremity pain and numbness, mainly on the right side, and almost all starting in my head and neck and radiating down into my fingers, even some of my toes on my right foot are numb and have been for some time; I wonder if I'll ever get feeling back in them?
about a year or so after the TN injection, I began having similar problems but on the other side of my face/head, which is very uncommon, along with the other neuralgias and I began to suspect Fibromyalgia but no one would listen to me! Finally, in January 2008, I went to my PCP and told him I was tired of being bounced back and forth from my neurologist to my neurosurgeon, being poked, prodded and tested, and after all I'd read and researched, I really felt I could have Fibromyalgia. He said it was highly possible and referred me to a rheumatologist who confirmed that I did indeed have Fibro.
Treatment started; I had been put on Lyrica by the neuros but I had terrible side effects with no benefit no that was out. Initially it was just Darvocet and Flexeril; that rheumatologist in Illinois and the first one I had here in Texas didn't believe in narcotics for treating Fibro and it first, just those two drugs worked fine; once in Texas, I was even downgraded to Ultracet. That didn't last long and soon the Darvocet wasn't enough anymore either but there was nothing more that doctor would do. I did find a rheumatologist who would prescribe Vicodin or Norco but she has been out of her office most of the summer so I went back to my PCP here. She gave me Norco at first, then gave me another Rx with a refill but since that ran its course she refuses to help me anymore at all. Nice, huh?
So now I'm sitting in limbo, trying to figure out what the heck to do? To add to the frustration, I am just south of Houston, near some of the world's best medical doctors and facilities and can't seem to find the right one or combination to help me! I know everyone's Fibro is different but I am running out of options and long ago ran out of money! I need to keep my job but it's harder and harder to make it through a long day, especially today when I had no medication. I'm just sick and tired of being sick and tired. If anyone has any helpful tips to offer, especially anyone in my area with any recommendations for doctors or treatment facilities, please let me know, post it in a follow up, I appreciate anything anyone has to offer that could help!
I'm 36, I've been married almost 14 years, I have two boys, 13 and nearly 11, I have two girl dogs, 9 and almost 4. I work part time at a bank and the days seem to get harder and harder, even the ones I don't work; it seems when I have a good day I end up paying for it the next day or soon after. Lately the pain just isn't being controlled and I'm really discouraged. I'd never do anything to harm myself, my boys mean too much to me to ever do that, but I'm at the end of my rope!
From what I've read here so far, I'm glad I found this site; I don't feel like I have an imaginary illness anymore, so thank you all.
I added a subject line for you so you will get more responses.

Post Edited By Moderator (Sherrine) : 7/28/2009 10:10:27 AM (GMT-6)

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 7/28/2009 8:33 AM (GMT -6)   
Hi Pink and welcome. I'm glad you found us too. I'm not on narcotics so I don't have to deal with doctors over that issue. I do have vicodin in the cabinet if I ever get so bad I think I need it, kinda like my security blanky. The fatigue is worse for me than the pain most days. I take 4000 mg of tylenol a day and use heat or lidoderm patches for pain that is close to the surface. I can't imagine working when your in pain, I know many on here do it.
When I was looking for a new rheumy I called several in the area and asked to speak to their nurses to find out what the doc's take was on fibro, did they believe it was a real disorder or think it was all in our heads and what methods of treatment they used. I also have myofascial pain syndrome and wanted to know if they treated that too. If the nurse was kinda wishy- washy about the whole thing I moved on. I have to drive 45 minutes to anything and I wasn't going to waste my precious energy or money to find out a doc doesn't believe in fibro or doesn't treat it. I lucked out and the one I picked is great with such a great bedside manner. I think having docs we can believe in and know they are there for us takes a big burden off our shoulders. I would be scared if I didn't have my GP which I have gone to for many, many years and know he is just a phone call away.
Read the fibro 101 thread, first on the first page, it contains lots of great info. Read back threads and ask questions and we will be here for you.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
Co Q 10, Super B Complex, Extra B12, Multi vitamin

Forum Moderator

Date Joined Apr 2005
Total Posts : 17056
   Posted 7/28/2009 11:08 AM (GMT -6)   
Hi, Pink, and welcome!  I use a board certified Internist as my doctor.  This way I don't have to run to several doctors.  He can take care of my needs....so far.  They have extra training from young adults to seniors.  But, whatever type doctor you choose, make sure they treat fibromyalgia patients. 
I use malic acid/magnesium supplements to help with pain and fatigue.  They don't help everyone but many have had good results with its.  Many with fibro are deficient in these nutrients.  There is a link all about these on the Fibro 101 thread that Marlee directed you to. 
Also, many fibromites have a vitamin D deficiency.  I live in Florida and am in the sun a lot but I still have a deficiency.  I am presently taking 3,500 IU of D3 a day.  A simple blood test will tell if this is a problem.  Vitamin D deficiencies can cause pain and fatigue, too.  Perhaps if these few things would help you, you would be far more comfortable and not need as many medications.
I'm so glad you found us and joined in.  We have a great group of members here that love to help one another.  Don't hesitate to ask questions because we are here to help you.  I glad you are here and I hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 7/29/2009 12:28 AM (GMT -6)   
Hi Pink and welcome!!

I'm so sorry that the pain is unrelenting and so is your doctor. I am living proof that pain medication DOES work for fibromyalgia. The line your doc gave you is a familiar one. You will even find it in print around the internet....but you will also find the opposite. When doctors are afraid to prescribe or their insurance companies are giving them a bad time then that's the line you will often hear...among others.

If it were me, knowing what I know now, I would begin to find a new medical team. Start with a doctor who will work WITH you, not against you. It's hard to remember and/or realize that YOU are hiring the doctor and not the other way around. So many of them make you feel as if you are lucky to be in their presence, when in fact they are lucky we come to them or they would have a hard time paying off all of their student loans..lol Then I would do the same with pain management specialists. Did your doctor who gave you the referral offer you any choices? This one might be a buddy of hers and no consideration was given to that fact that you can not get in for many weeks...in the mean time you are in agony. You might want to consider getting an appointment with your doctor for a consultation and lay it on the line...talk to her and ask her why she is making the decisions she is and that you can not tolerate the pain any longer. You have no life in this situation.

Any time you get a new doctor by referral or get a new primary....always interview THEM. If you were to remodel your house you would get at least 3 bids or you just may get a rotten deal. Why don't we do this with the people who literally have our lives in their hands?

Another thing that will help you get your point across is a pain journal. You basically keep a record of your pain level, activities, medications you take, etc. Below is a link to free journal pages you can copy. Fill these out daily and each time you see any doctor take them along and ask the doc to read them.

I do hope you have some luck in getting control of your pain and very soon!


Co-Moderator Fibromyalgia & Chronic Pain Forums ~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis, collapsed disk, and a few other side dishes.


"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."

Regular Member

Date Joined Feb 2008
Total Posts : 278
   Posted 7/29/2009 8:03 AM (GMT -6)   
Pink welcome to the forum.
Hang in there and continue to work. I am actually worse on the days that I do not work. Keeping your mind and body lightly active has helped me tremendously.
Look into the Malic / Magnesium supplement. It is an inexpensive way to help with the pain management.
Our attitude towards life determines life's attitude towards us. {Earl Nightingale} 
Fibro since 2005

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