Grrrrr...whimper

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Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 7/29/2009 9:06 AM (GMT -7)   
Its driving me BONKERS I tell you...BONKERS! I'm clenching my jaw which is going to hurt my head as it did yesterday. I hurt sitting down. I hurt laying down. I hurt doing nothing. My brain feels all foggy and tired. I can't STAND it. Every second of every day I literally hurt. The Lyrica does its thing but it doesn't make it all vanish. It sort of creates a fog and I can still feel past it and what I feel is the same old year of pain only mildly muted. I'm so stressed and angry at drs and the stupid no reason pain.

I'm not really venting...just wondering if this is how ya'll feel all the time? How do you get rid of the pain?
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Crohns Dx'd: February 2008.
Pentasa
Fibromyalgia Dx'd: July 21, 2009
Lyrica
Hydrocodone
Prenatal Vitamin
Allergy meds


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 7/29/2009 9:18 AM (GMT -7)   
The only time I have been pain-free in 22 years was when I was in the hospital on a morphine pump.  You need to accept the fact that you will have pain.  If you try to be pain-free you will most likely be zonked out on a list of meds as long as your arm.
 
The stress  you are having is making things worse, too.  Your muscles are tightening even more and making you hurt more.  Gentle stretching exercises and light exercise like walking or swimming help.  Moist heat helps.  You might want to give malic acid/magnesium a try.  It has helped me.  Have your vitamin D levels checked.  If you are deficient in D, you will have more pain and fatigue. 
 
Instead of dwelling on how you are feeling, start planning what you are going to accomplish for the day.  Start making some fun plans with friends and don't let fibromyalgia control your life.  Work on a hobby that you enjoy or learn something new.  These things take your mind off your body and that really does help a lot. 
 
Look at all the positive things in your life and all around you.  It's there if you look for it.  Too many times we get so caught up in the negative that we miss all the goodness all around us.  Recognizing these things has a calming effect on  you.  A positive attitude and a good sense of humor go a very long way with fibro.  You can have a good and enjoyable life with fibromyalgia.  Just start living again.  You might be surprised how the pain will fade some in the background.  Hope you feel better soon.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 7/29/2009 9:59 AM (GMT -7)   
I've been doing distraction work for a year now. Seriously...read a book...zone into a tv show I KNOW I normally wouldn't watch. I know the stress is worsening it since I can't focus on anything. What's worse about it all is it set my Crohns into motion the past week. Lyrica's supposed to cause constipation...not make things move twice as quickly LOL. I'm trying to be pretty cheerful and whathaveyou. I'm trying to focus on a book which is my usual pastime. I can't focus 'cause of the intensity I suppose is the word I'm looking for. I can't sleep either (my standard fall back method for when I can't blank it out or think past it). Even sitting in this chair or going out to my "special" chair to smoke isn't helping. I'm so tired. I gave blood last week and I'm waiting to find out what's up with that. Had my B levels checked in January. 'Cause with the Crohns and the loss of ileum that's a major cause of fatigue for that.

I just get days where I can't stand being inside my own body. Like today. Plus, I worked last night...4 hours sure...but apparently that is helping to make things worse today. LOL, even the pressure of the keyboard keys is kinda painful. Ah well. Thanks for the advise though.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Crohns Dx'd: February 2008.
Pentasa
Fibromyalgia Dx'd: July 21, 2009
Lyrica
Hydrocodone
Prenatal Vitamin
Allergy meds


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 7/29/2009 10:18 AM (GMT -7)   
I have Crohn's too and that isn't a lot of fun....especially when things are really going through you.  I ended up losing my entire colon because of Crohn's and also had the fistulas, etc.  Really keep an eye on what you are eating.  I'm sure you are, and drink lots of fluids.  All of this can make your fatigue soooo much worse!  Watch your electrolytes, too!  I hope you start to feel better.
 
Sherrine 
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 7/29/2009 10:18 AM (GMT -7)   
Wow, you live with Chron's and fibro,how miserable. However, you sound like a fighter. Sometimes we have to get the pain off of our chests and vent.

I hope something eases up for you today. I am not a doctor but the malic acid/magnesium mix could help move things along a bit.

You take it easy today. I do not work outside of the home because of the fibromyalgia. You are a trouper for continuing to do so.

Take care,

Donnaeil

Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 7/29/2009 10:26 AM (GMT -7)   
~snort chuckle~ I work eight to 12 hours a week right now...s'not like I'm actually doing much.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Crohns Dx'd: February 2008.
Pentasa
Fibromyalgia Dx'd: July 21, 2009
Lyrica
Hydrocodone
Prenatal Vitamin
Allergy meds


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 7/29/2009 5:05 PM (GMT -7)   
Hey, but 8-12 hours a week can still be a lot! You should give yourself props for that! :-)

I know just what you mean, though, about living with the pain. Not a day goes by for me when I do not have pain in my body somewhere and since I don't take any meds, I don't get any relief, even if it's just a foggy headed pain reliever kind of relief. I rely a lot on books and t.v. and the internet, but sometimes that stuff gets old and you just want to be able to go out and DO SOMETHING! But unfortunately life is what it is now with fibro and I can't just go out and do anything anytime I want to anymore. On days like that I want to crawl out of my skin and just not feel it anymore..those are the days when I will go in the bathroom and cry a little, take a hot bath, put on some comfy clothes, wrap myself in moist heat, make some tea, and watch something really funny. Sometimes it's all you can do, you know?

Anyway...I know JUST how you feel and I am sending you some good thoughts and prayers and I hope you get a little relief somewhere. Please be gentle with yourself and know that you can always come here and vent to us or send an email to me or another member if you need to. We're here and we care! :-)

{{{{gentle hugs}}}}
~Danielle
"The ideals which have lighted my way, and time after time have given me new courage to face life cheerfully, have been Kindness, Beauty, and Truth"~Albert Einstein


Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 952
   Posted 7/29/2009 7:09 PM (GMT -7)   
I love the nights when you take 600+ of darvacet, about 200 flexoril and it doesn't touch the pain. I sat on the couch curled up in a ball as the spasms hit....groaning.........nnnnnn..nnnnnn...waiting for the drool to start coming out of my mouth.......finally passing out from exaustion at 2 in the morn and the da- -   alarm going off at 3:30 to get up for work.
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