I don't get it!

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Regular Member

Date Joined Aug 2007
Total Posts : 171
   Posted 7/30/2009 8:21 AM (GMT -6)   
Hey all. I post here sporadically, sorry I'm not around more often. Just for reference, I was officially dx'd in November after 4 years of looking for answers. I am 24. My rheumy called my fibro a "mild case", but I have not been convinced that what I'm suffering is actually fibro. I don't have a lot of the tender points (rheumy said that doesn't matter) and I don't seem to suffer as badly as what I hear most people w/ fibro talk about.

BUT on the days when I am at my worst, it is soooooooooooo frustrating. My problem is (and I know a lot of you are going to say this isn't a problem and I'm actually lucky) I am a runner. I ran competitively in HS and college, and still do road racing for fun. Some days I can still get out and run 5 or 6 miles. But then other days, like today, I could barely drag myself out of bed. My forearms and lower legs, wrists, and feet hurt, and my hands tingle like they have just been asleep and are waking up. Constantly. I'm exhausted even though I got 8.5 hours of sleep and had 2 cups of coffee.

Here is what I don't get - WHY am I perfectly fine one day, and feel like death the next? Is that just part of fibro? When do I stop searching for something else that may be wrong with me, something curable, and just accept this diagnosis?

Veteran Member

Date Joined Nov 2008
Total Posts : 2854
   Posted 7/30/2009 8:42 AM (GMT -6)   

That's what fibro is all about!  I did absolutely nothing to feel like I do today...like I was dragged down a gravel road by a rope on the back of a Jeep.  Three weeks ago I climbed a mountain with my family and didn't feel this bad.  I can walk into a store feeling completely fine and within ten minutes have to sit down somewhere.  I don't get it either.  If you have had all the usual tests ruling out everything else then acceptance is the only answer.  I know it's frustrating and so many of us have had to give up our passions.  I applaud you for still continuing to run despite the pain.  It is so easy to just sit in a chair and give in to it.



fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium

Regular Member

Date Joined Jun 2009
Total Posts : 222
   Posted 7/30/2009 10:06 AM (GMT -6)   
I absolutely agree with you, for a long time i didn't accept fibro as an answer as i also was so very active. I swam for college and still do, i cycle cross country and even completed a fun race some weeks back. Today, i can barely lift a finger and barely got through work.
My physio says he thinks fibromites muscles don;t repair as well after exercise as others do, it would make sense. I get DOMS to the point of not being able to stand sometomes if i overdo it.
If everything else has been ruled out then i'm afraid acceptence is the next step.
As much massage as you can afford, plenty of hydration and i founf magnesium and co enzyme q10 good for when i'm in training for a trip away on the bike.
I also take pain meds before i exercise.
I hope that helps, boo
BikeBoo, biking with my boo since 1999
Of all the things i've lost, i miss my mind the most! But it has its advantages!
Fibro, spinal arthritis and all that goes with it.

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 7/30/2009 10:55 AM (GMT -6)   
That's fibro, some days you feel like your on top of the world and some days you feel like you are under it. For me those days of being on top is few and far between so enjoy them when you can.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
Co Q 10, Super B Complex, Extra B12, Multi vitamin

Regular Member

Date Joined Aug 2007
Total Posts : 171
   Posted 7/30/2009 11:07 AM (GMT -6)   
Thanks for the replies. Boo, just curious, what are DOMS?

Regular Member

Date Joined Jul 2009
Total Posts : 223
   Posted 7/30/2009 4:28 PM (GMT -6)   
If I sleep really well the night before I can do more the next day. But if my sleep pattern is broken up I'm useless.
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