Saw a doctor yesterday

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New Member

Date Joined Jul 2009
Total Posts : 13
   Posted 8/1/2009 10:17 AM (GMT -6)   
Well, I finally got to see a doctor yesterday and she said I don't have fibromyalgia, since I didn't meet all the "tender points" the way, I thought a lot of doctors are rejecting the whole "tender points" idea? She said I have "unspecified chronic pain" and I got a prescription for amitriptyline....supposed to help with pain and put me out at night. Thank God Wal-Mart has 30 day prescriptions for $4.

Looks like I'm gonna jump over to the chronic pain forum. Once again, thanks to everyone on the fibro forum for being helpful and kind to me!!
Peptic ulcer disease, Asperger's Syndrome, hypoglycemia, and possible fibromyalgia

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 8/1/2009 10:41 AM (GMT -6)   
Andrea, in the fibro 101 thread, first on first page, where it list the symptoms how many did you have??? I had fibro for a few years before I had a full blown flare that put all the pieces together for my doc. and he did the tender point test. I wouldn't dismiss the idea quite yet, especially since she can't give you a specific dx on where the pain is coming from.
luv and hugs
Forum Moderator Fibromyalgia
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Regular Member

Date Joined Mar 2009
Total Posts : 135
   Posted 8/1/2009 11:03 AM (GMT -6)   
And just a little fyi...Not all MD's graduate in the top 1/2 of their class... turn

Regular Member

Date Joined Jun 2009
Total Posts : 23
   Posted 8/1/2009 7:42 PM (GMT -6)   
I wasn't diagnosed for a long time because I don't have the classic tender points, either.  I went thru 5 different specialists and was about to go to Mayo Clinic for a DX . I finally saw a very smart, thorough and experienced rheumatologist who said he was 99% positive it was Fibro, and that you DO NOT have to have the typical tender points for a DX.  The good news is that you are starting amitriptyline, which DRAMATICALLY improved my fibro pain and fatigue. So, at least you are on the right track!
"Unspecified chronic pain" sounds like an insurance code and not a proper diagnosis.  Can you get a second opinion?
Jenny B

Age 36
DX w/ fibro June 2009
DDD & annular tear at L5/S1
endometriosis since age 18, have had 5 surgeries to date
Current meds:
OxyContin 30 mgs 3 X day
Dilautid 2 mgs 1-2 X day for breakthrough pain
Elavil 25 mgs
Zoloft 75 mgs
Lunesta 2 mgs
Klonopin .75 mgs
Protonix 40 mgs
Flexeril PRN
Phenergen PRN
I am living in the body of an 80 year old......

New Member

Date Joined Jul 2009
Total Posts : 13
   Posted 8/3/2009 4:55 PM (GMT -6)   
I may need insurance before I see about getting a second opinion. I think there are some health clinics closer to me than the one I just went to....which wasn't very good to me, cuz it took forever. by the end of that, I was mentally and physically exhausted.

Yeah, she said I don't have all the classic tender points, but that doesn't mean anything at all. It kinda sucked, cuz while she was examining me, like having me push up and down on her hands, I wasn't feeling much pain. Like I told her, it comes and goes and is migratory. I even typed out a whole sheet of info, including pre-existing conditions, and she still said it was "unspecified chronic pain". I also mentioned I have chronic headaches, and she asked me how often I had bad ones. I told her maybe once a month, if that. I had a bad one last night. It seems like all my symptoms flare up when I'm not seeing a doctor. Ugh....
Peptic ulcer disease, Asperger's Syndrome, hypoglycemia, and possible fibromyalgia

Veteran Member

Date Joined Apr 2008
Total Posts : 1522
   Posted 8/3/2009 8:28 PM (GMT -6)   
Of course it never hurts when you are at the docs, just like your car runs fine when the mechanic takes it for a spin, or the cable TV reception is perfect when the cable guy is here, then goes out the minute he leaves.

If you think you have fibro, stay here. You don't need an actual diagnosis to need help or offer advice. Many of the chronic pain people have injuries so their needs and problems may be different then yours. You can read both and see what fits best.

It really doesn't matter what they diagnose you with as long as they don't miss something important. The important thing is that you can get treatment for the symptoms that really bother you.

Regular Member

Date Joined Mar 2009
Total Posts : 235
   Posted 8/3/2009 9:12 PM (GMT -6)   
Thought you only needed 11 out of the 18 tender points to be diagnoised with fibro.

New Member

Date Joined Jul 2009
Total Posts : 13
   Posted 8/4/2009 5:17 PM (GMT -6)   
That's what I thought too, Stari. But from what I've read, there's a lot of docs out there dismissing the whole tender points concept. It sucks when you have a lot of other symptoms of fibro, but then the doc says you don't have any of the tender points.
Peptic ulcer disease, Asperger's Syndrome, hypoglycemia, and possible fibromyalgia

Regular Member

Date Joined Jun 2008
Total Posts : 289
   Posted 8/5/2009 7:51 PM (GMT -6)   
if i remember correctly yes.. you only need 11 out of 18 but i still see residents that think its all in my head, i was diangnosed with 16 out of 18

it took me forever to get diagnosed...i went to shrinks, neurologist, pain clinics for nerve blockers, orthopedic surgeons, more shrinks for depression, and had cat scans, mri's and tests before i was diagnosed...

when i finally got home from college and to my doctor and could hardly walk in to the office.. thats when i got to see the rhuemy who diagnosed me..

DO not give took me about 2 years to get diagnosed..
Diagnosed - fibromyalgia 2001
Meds amitryptilene 30mg/day
Lyrica 75mg/day

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