Savella users?

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crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 8/1/2009 12:05 PM (GMT -7)   
 
 Hi,
 
  My rheumy gave two introductry samples of savella (one month supply). The dosage
  starts out at 12.5 mgs. and goes up to 100 mgs. I am up to 100 mgs a day, no bad
  side effects.
 
  I was wondering, how long do you have to be on it before you get any pain relief ?
 
  Robin
 
 possible MCTD, Raynauds, Fibromyalgia, Osteoporosis, Degenerative
 Disc Disease, Osteoarthritis, High Blood Pressure, Migranes and
 Pseudothrombocytopenia, biopsy shows a Scleroderma variant
 MEDS: Methotrexate, Savella, Boniva,Lisinopril, Folic Acid, Flexeril, and
 Vitamin Supplements


merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 8/1/2009 1:38 PM (GMT -7)   
I just got rx'd this too. I think my doc said pain releif comes in the 3rd week. I could be wrong. She also said that there would be a week of nausea and to try to push through it it will go away.


i need to pick mine up at the pharmacy. The comapny has coupons for a free month starter pack.
Chronic Lyme Disease
Fibromyalgia
Chronic fatigue syndrome
Polycystic Ovarian Syndrome
Sleep Apnea
Hypothyroidism
Adrenal Fatigue
 


Jhemi
Regular Member


Date Joined Jul 2009
Total Posts : 223
   Posted 8/1/2009 4:07 PM (GMT -7)   
I never did get any relief from savella. Had to go off of it.

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 8/1/2009 5:43 PM (GMT -7)   
 
 merrygirl, I will be into my 3rd week taking Savella on Tuesday. So far no nausea.
 
 Hoping you don't have any bad side effects either, Just hope the pain relief kicks
 in soon.
 
  Jhemi, how long were you on Savella?
 
  Thanks,
           Robin
 
 possible MCTD, Raynauds, Fibromyalgia, Osteoporosis, Degenerative
 Disc Disease, Osteoarthritis, High Blood Pressure, Migranes and
 Pseudothrombocytopenia, biopsy shows a Scleroderma variant
 MEDS: Methotrexate, Savella, Boniva,Lisinopril, Folic Acid, Flexeril, and
 Vitamin Supplements


Jhemi
Regular Member


Date Joined Jul 2009
Total Posts : 223
   Posted 8/2/2009 7:37 AM (GMT -7)   
Crazykitty I was on it about 6 weeks. It made me more aggitated and had no affect on my symptoms. I had a bad problem with sleeping.

I'm back on Celexa and was just put on Neurontin. These seem to be helping me. At least Im sleeping again and it's a restful sleep and I'm certain the sleep is helping ;)

As for Savella...well meds are different for everyone. Just have to try it and see if it is right for you.

upbeat
Regular Member


Date Joined May 2009
Total Posts : 240
   Posted 8/2/2009 8:10 AM (GMT -7)   
I am on day five on Savella and I am not sure if the side effects I am having are from the savella or going off of Lexapro. I was only on 10mg of Lexapro, so my dr said to go to 5mg for one week and then start the Savella.

I am going to try to hang in there. I hope the pain relief kicks in for you this week crazykitty!

Has anyone else switched from an ssri to savella and had luck?
Fibro dx 2004, RLS, raynauds


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 8/2/2009 9:36 AM (GMT -7)   
Thanks for the replies. Hope everyone has a great pain free day!

Robin
 
 possible MCTD, Raynauds, Fibromyalgia, Osteoporosis, Degenerative
 Disc Disease, Osteoarthritis, High Blood Pressure, Migranes and
 Pseudothrombocytopenia, biopsy shows a Scleroderma variant
 MEDS: Methotrexate, Savella, Boniva,Lisinopril, Folic Acid, Flexeril, and
 Vitamin Supplements


lost in philly
Regular Member


Date Joined Jan 2009
Total Posts : 243
   Posted 8/3/2009 5:53 AM (GMT -7)   
Been on it for a few months and it doesnt affect my pain at all. Only makes me more awake during the day.
lost in philly

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Fibromyalgia, Endometriosis, Migraines, Asthma, Chronic Fatigue

Savella, Topamax, Morphine, Percocet, Wellbutrin, Abilify, Crestor, Resoril, Loestrin, Imitrex

B12, Magnesium, Melatonin, Omega3
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

"Knowing without doing is like plowing without sowing."


MrsCavbar
Regular Member


Date Joined Mar 2009
Total Posts : 285
   Posted 8/3/2009 12:16 PM (GMT -7)   
I was on Savella for about 2 wks, but then it nearly gave me a stroke so yeah.... the side effects get worse the longer I was on it, and it seemed to make my pain worse. But since we all react to meds differently, I wish you the best of luck and pray it doesn't make you as sick as it did me.

Savella.com has more info about what it is, what it does, and it's side effects.
Lola

Any idiot can face a crisis - it's day to day living that wears you out.
Anton Chekhov

My train of thought derailed long ago, now I take the bus, few more stops, but I eventually get there.
Lola

FM, costocontritis, wide spread arthritis, fibroid tumors, PTSD, 2 heart attacks at 22, PID


Buspar 10mg, Acetometaphen 500mg, Ibuprofen 800mg, B-complex,


GSDgirl
Veteran Member


Date Joined Mar 2010
Total Posts : 1286
   Posted 8/2/2010 10:15 AM (GMT -7)   
I never made it to the full dose, kept myself at half doses the second week.  I could not handle the side effects, dizziness and actually swaying like I was drunk.  I think after only 2 weeks I am going through withdrawl. 
 
I guess I can say that another med has bitten the dust.
Denise from Pittsburgh, Pa
 ***diagnosis: high blood pressure, gastritis, fibromyalgia, hepatitis (SVR/cleared),  disc problems in neck, depression, anxiety & stress, cervical headaches, porphyria-PCT, IBS
 ***meds: metroplol 25mg, zoloft 150mg, gabapentin 300mg 3x a day zocor , (soma, fioronal, tramadol, as needed).
 ***other supps: calcium, vit D 2,000-4,000 per, milk thistle, vit C &E, acidopholos (sp?),  
CO-Q 10,  flax or fish oil, ginsing, magnesium, B complex,
 

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 8/2/2010 10:28 AM (GMT -7)   
I don't know how this post appeared, I wrote it a year ago!

Yes, I've been on Savella for a year now, without any bad side effects. It
did take a couple of months to kick in though and I have found it to help some.

Still wondering how this post appeared????


Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 

GSDgirl
Veteran Member


Date Joined Mar 2010
Total Posts : 1286
   Posted 8/2/2010 12:05 PM (GMT -7)   
Robyn, I did a forum search on savella and thought that this was a recent topic, that is how it popped back up.  I am glad that savella is working for you without horrendous side effects
Denise from Pittsburgh, Pa
 ***diagnosis: high blood pressure, gastritis, fibromyalgia, hepatitis (SVR/cleared),  disc problems in neck, depression, anxiety & stress, cervical headaches, porphyria-PCT, IBS
 ***meds: metroplol 25mg, zoloft 150mg, gabapentin 300mg 3x a day zocor , (soma, fioronal, tramadol, as needed).
 ***other supps: calcium, vit D 2,000-4,000 per, milk thistle, vit C &E, acidopholos (sp?),  
CO-Q 10,  flax or fish oil, ginsing, magnesium, B complex,
 
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