new to fibromyalgia and its crazy symptoms

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amandabeezy
New Member


Date Joined Aug 2009
Total Posts : 7
   Posted 8/1/2009 4:51 PM (GMT -7)   
Hey there everyone,
My name is Amanda and I am 19 years old and new to fibromyalgia. I have known about it for quite some time as my mom has had it for ten plus years, but I never though it would happen to me, I'm sure we all thought that. On top of having fibro I also have arthritis and degenerative disk disease. I have new weird symptoms all the time and have no one to talk to about all of it. Being diagnosed with this has completely put my life on hold, until about a year ago I had a completely normal life and was getting ready to start life on my own. I now am in so much pain and have so much fatigue that I am pretty much confined to my house and the computer. I guess I am on here for new friends and for people that can relate to all the things I have and am experiencing. If anyone would like to talk I would greatly appreciate it!

Thanks for listening,
Amanda

WakeForestJunior
New Member


Date Joined Jul 2009
Total Posts : 3
   Posted 8/1/2009 5:18 PM (GMT -7)   
Hey Amanda,

Thanks for your reply on my thread, I figured I'd respond here instead. I really appreciate your advice. It's comforting to have someone on here around my age, its so hard to be at what is supposed to be the fun active years of your life but weighted down by all these symptoms. Last week I went to NYC with my grandmother, my mom, and my aunt, all over 50, and yet I was the one laying around the hotel room exhausted while they went out at night. Like I said, I haven't been DX'd yet, but I definitely understand a lot of what you're going through and I hope things work out for you so that you can get your life back!
~WFJ~

"Sometimes you're behind, sometimes you're ahead. The race is long, and in the end, it's only with yourself".

"Courage does not always roar. Sometimes it is the quiet voice at the end of the day saying 'I will try again tomorrow'".


crazyoldcatlady
Regular Member


Date Joined May 2009
Total Posts : 194
   Posted 8/1/2009 7:51 PM (GMT -7)   
Amanda and WFJ, I'm glad you both found this site - and each other! You can learn a lot here, and you'll get a lot of great support and make wonderful friends. If you haven't already, be sure to check out the Fibro 101 thread; there's a lot of valuable info there. I'm sorry you have so much to deal with at such a young age. I had mild symptoms at your age but wasn't diagnosed until I was in my early 40's. Until then I thought I was following in my mother's rheumatoid arthritis footsteps. I didn't know anything about fibro until I was diagnosed. It was somewhat of a relief to understand why it takes me four days to recover from vacuuming the livingroom, and to know I did not have a degenerative disease like RA. I'm sure you can have the life you want once you learn to pace yourself and find treatments that work for you. Good luck to you both!
Donna


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 8/2/2009 7:46 AM (GMT -7)   
Hi Amanda and welcome to the family. I'm so glad you found this forum, you will have plenty of people to talk to about fibro. My heart goes out to all of you young people that suffer from this. I feel blessed that I didn't get it til around 50. But on the bright side they are coming out with more meds for fibro and I do believe progress is being made on it.
 
Read and ask questions and we will be here for you.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


American Woman
Regular Member


Date Joined Jul 2009
Total Posts : 96
   Posted 8/2/2009 7:57 AM (GMT -7)   
Hi Amanda and Welcome
I too am new to fibro and to this forum. I was diagnosed in March of this year and being on the forum has helped alot. I'm sorry that you had to get this at such a young age. If you talk to the people here it really helps because they know what we are all going through. I read on here alot and usually find answers and suggestions to the same things that are happening to me.
Hang in there and don't be afraid to ask anyone on here for help.
American Woman

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 8/2/2009 8:38 AM (GMT -7)   
Hi, Amanda, and welcome!  I'm so sorry to see so many younger people coming on the forum.  I came down with fibro a couple of weeks before my 40th birthday and that was soon enough!  But, I think we can help you have a full and enjoyable life with fibro.  I know I have!
 
You do need to keep moving.  Sitting and laying too much will make you stiff as a board and make your pain worse.  Try the gentle exercises in the Fibro 101 thread.  They really do help.  Find a light exercise that you can do.  I like to walk and swim.  Both of these are good for fibro.  Walking costs you nothing.  When I started, I could only walk a short distance but now I can walk for quite some time.  You just need to build up slowly to it so it doesn't aggravate your muscles.
 
Moist heat will help, too.  Hot baths and showers feel wonderful.  Also, many here use Bed Buddies.  You can get them at Walgreen's and other places or you can make your own.  Take a tube sock, fill it 2/3's full of long grain rice, and tie a knot at the end.  Pop it in the microwave and it will give off moist heat due to the moisture in the rice.
 
A positive attitude and a good sense of humor go a long way with helping fibromyalgia.  Be sure to look around at all of your blessings and all the things you CAN do.  That puts things in better perspective.
 
I see that Donna directed you to the Fibro 101 thread...the first thread on the forum.  You will learn a lot from that thread and, as they say, knowledge is power!  Also, read back posts and don't hesitate to ask questions.  We are here to help you.
 
I'm so glad you found us and joined in!  I'll be looking to hear more from you soon.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 8/2/2009 12:26 PM (GMT -7)   
Hey Amanda.

I'm new to this myself too. But I can relate to the starting your own life only to have to put it on hold. I was doing that when I got sick for the longest time...and ended up spending the summer of 2003 in two hospitals. Then...I get out, get a tongue ring, get married...move to another state to go to college. Then...finish college, move BACK...ready to start using my degree. End up in hospital before we move...pancreatitis...then move...two days back...and end up in ER, then emergency surgery the next day and a diagnosis for what is wrong with me: Crohns. Follow that with the never actually get better. Suddenly the pain's different and elsewhere and hurting all the blasted time. Then our fun new second diagnosis: Fibromyalgia. It SUCKS.

These diseases come on...when we're young and trying to make our way only to get slammed down with illness and/or bills which can exasperate the illness. Honestly...I think I'm just back in my "hospital mode" myself. Where I snort and laugh and smile and joke so I'm not thinking of what is happening to my body. Sometimes "smile through it" becomes true. And I'll hope that one for you.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Crohns Dx'd: February 2008.
Pentasa
Fibromyalgia Dx'd: July 21, 2009
Lyrica
Hydrocodone
Prenatal Vitamin
Allergy meds


amandabeezy
New Member


Date Joined Aug 2009
Total Posts : 7
   Posted 8/6/2009 5:11 PM (GMT -7)   
Hey there everyone,

Thanks for responding, I am sorry it took me so long to respond. Sometimes I forget to check these things! I'm sure you all know how that goes....To wakeforrestjunior. I am glad you understand what I am saying to you, dealing with these things can be hard! And I know exactly how you feel about going somewhere and you are the one laying down or in pain. It does not seem fair does it?! Anyways I hope that I can talk to all of you in the future and get and give advice! Thanks again-Amanda

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 8/6/2009 9:55 PM (GMT -7)   
Hello Amanda and welcome!

As you have already seen the folks here are so kind and wonderful. I believe part of the reason is that we all truly understand what you feel each day. We have quite a few members around your age, I"m sad to say and then all the way up past retirement age. But in this family and with this disorder age is pointless. Pain is pain and the miseries fibro brings hits us all pretty much the same.

But the good news is you CAN learn to live a wonderful life and the people here are living proof of it. Talk to others, read all you can of the good literature out there, and when you need a friend we are always here. It's what has kept me sane and kept me on a more even keel.

I am so sorry this hit you at such a young age but I believe you will learn to work through it and not let is kick you down. Sure, some days are just miserable but for the most part we just keep living with some modifications.

Come join us on Thursday nights in the Chronic Pain chat room. We have a great time talking about everything from health issues to beach parties and we alwasy get around to talking about food! (for me read: chocolate)

Also join our daily Koffee Klatches. It's a small time each day when we think about something other than our pain...we don't even allow that "P" word in the conversation! ..lol So join hands with your new family (extending hand) and we'll travel this road together.

Hugs,
Chutzie
Co-Moderator Fibromyalgia & Chronic Pain Forums ~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis, collapsed disk, and a few other side dishes.

(\__/)
(='.'=)
(")_(")

"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."


Mo Stewart
New Member


Date Joined Aug 2009
Total Posts : 9
   Posted 8/6/2009 11:35 PM (GMT -7)   
Hey Amanda....I js signed up today because I too needed someone like me who understands to talk to. I am sorry you are going through so much. I won't say it gets better but it does get easier to deal with, My first year I was confined to thehouse too and i had a 2yr old son. My mother and sister had to come over to feed him because I could not even get out of bed! You have a joined a family now and together, we will see you through the next phases of dealing with Fibromyalgia!

amandabeezy
New Member


Date Joined Aug 2009
Total Posts : 7
   Posted 8/7/2009 3:46 PM (GMT -7)   
Hey Mo Stewart,
Thanks for understanding, unfortunately I know that it doesn't get better but I am hoping that it gets easier. My pain seems to get worse every month, and symptoms get worse and weirder....But I am glad that you also joined, I have joined quite a few forums before and no one ever replied. The day I joined here I got 7! It seems like I may have found the right place. Anyways..I hope I can chat with you in the future and hope that everything is working out for you.

Amanda

katwoman1
New Member


Date Joined Aug 2009
Total Posts : 1
   Posted 8/11/2009 9:45 AM (GMT -7)   
Dear Amanda
I also am recently diagnosed (but Doc still thinking MS). It is so hard to even start the day with the stiffness and head aches but I refuse to stay in bed although I am tempted. Took me 3 Neurologists to find one that wld LISTEN to me without acting like I was nuts. I due have an abnormal MRI - 2 lesions - so MS still not out of the question. I tale klonopin for tremors, trazodone at bedtime, Midrin for headaches but that doesn't wrk anymore and Savella. Each day is another battle as my body decides which side to affect for that day. I get exhausted so easily and the heat kills me. I haven't been able to work since May and my disability denies my claim as there is no firm diagnosis. So I have to move and packing is torture. And although my family and friends are supportive, they really do not understand not to mention my 8 grandbabies that are so used to staying with me often. I get so anxious and depressed then have myself a pity party. It wld help to have someone that truly understands. I wish you the best of luck in your journey. Thanks mfor listening. Kat

SassyMyKitty
Veteran Member


Date Joined Apr 2009
Total Posts : 673
   Posted 8/11/2009 7:33 PM (GMT -7)   

Amanda,
I am sorry to hear that you are having such a rough time. We all understand what you are going through. I was diagnosed over a year ago. I am only 21 years old, so I am pretty young, just like you are. You are more than welcome here, and I think you will find everyone here to be absolutely amazing. Everyone here is just so caring and helpful. There is a weekly chat every Thursday night in the Chronic Pain chat room. It's a nice night to chat live with all the wonderful people here. There are many crazy and debilitating and annoying symptoms that go with fibro, but know that you are not alone. If you ever need someone to vent to, this is a good place. Also, my e-mail addy should be listed under my profile. I always like recieving e-mails. You are more than welcome to contact me that way if you would like. I know this is hard for you, especially since you are so young and you have so much life ahead of you.
I have a son who is almost two, and it is so hard on me because I just want to be a good parent. I just want to spend a lot of time playing with my son and being silly with him. But I can't do all that much with him. And I know that as he gets older, he is going to want to play a lot more with Mommy, and I am going to have to say something like, "Mommy can't do that right now because she doesn't feel good." My son is going to have to end up making compromizes on what he plays with me based on how I feel. That is a really hard thing for me. So, I really understand what you are going through. Your mom would be another excellent person to talk to about how you are feeling since she also has this condition. My grandma is a great source of comfort to me because she understands how I feel, and she is more than happy most of the time to just let me complain to her if I need to. Hang in there hon. Welcome to the fibro family.


'Cause when push comes to shove
you taste what you're made of.
You might bend til you break
'cause it's all you can take.
On your knees you look up
decide you've had enough.
You get mad.
You get strong.
Wipe your hands
shake it off.
Then you stand.
 
-"Stand" by Rascal Flatts
 
 

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