hurting so bad

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jliven01
New Member


Date Joined Jan 2009
Total Posts : 14
   Posted 8/1/2009 8:56 PM (GMT -7)   
I have been hurting so bad lately and i don' t know what else to do. Some days it is worse than it was before I started meds. I don't go back to the doc until september and my bad days are more than my good ones lately. mad    I can hardly be mom to my three year old and he doesn't understand. My hubby is good about it, but gets tired of doing all the housework.
 
thanks for listening, i am hoping just getting it out will help!!

 Fibro, depression, sleep apnea, high cholesterol (all diagnosed since Sept. 2008)
 
Will I ever be normal again???


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 8/1/2009 9:34 PM (GMT -7)   
I am so sorry you are having a hard time. I am hurting badly now too. The meds don't always help as much as we would like. Try ice, heat, gentle stretching, and massage and movement. Hope you feel better. Relaxation helps, too. We tense up in pain then the pain gets worse. I like whats it called? you know, when you imagine peaceful stuff and try to relax.
dang fog!
Sue

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 8/1/2009 11:29 PM (GMT -7)   
Hi jliven!

I too am sorry you are so miserable. Like Sue and you for some reason I am also having a very painful time right now. And the meds don't seem to be doing what I want but I know it's not them...it's me. I agree that when we get tensed up and worried that the pain increases dramatically and I think that's what's going on with me too...and maybe you?

Things like changes in weather, major and minor changes in your life/routine, sick children, extra responsibilities and even those guilty feelings that hubby has to help more than you'd like can all make your pain level go wild. And to tell you...just relax...would be an insult. It just isn't that easy. But we can try one tiny bit at a time. I've been working on simplifying life. Get down to a more minimal lifestyle and it's much easier to keep up the house. Get the kids/hubby/even the dog involved in tidying up. A 3 year old is capable of using a baby wipe to clean off the kitchen table, dust the end table or wipe off the TV. They are mighty good if given the chance.

Will your life ever be 'normal' again? That's a loaded question!! The first question I have is "what's normal?" lol... You will learn to live with fibro, just like any major change in your life. You will find a combination of medications or other treatments that work best for you to help control pain and it will become more routine than it seems right now. It's like when I first had to start taking insulin. I thought the nightmare would never end. But after several years of doing it taking insulin is just something I do. I don't have to like it, I just do it. So my answer would be YES, life will be normal again but you will have a 'New' Normal. Our own normal changes constantly but most often so slowly that we don't notice the changes, but when some life changing disorder knocks us down the change hits us in the face like a brick.

One comment on doctor appointments. When a doctor gives you medications, especially if they are new like a pain med, they don't know how much will be exactly right for you and the way your body works. The only way they find out is if we report back to them with results...and fairly soon. You said your appointment isn't until September but that doesn't mean you can't go back sooner and/or call and report how your medications are doing. You can call and leave a message telling the dose you are taking and how it is or is not affecting your pain...plus the level of pain you are experiencing. Ask if the doctor would like to see you before the next scheduled appointment. It throws it into his lap. If you wait until Sept. he will likely think your meds are fine, otherwise you would have at least called. See where I'm going with this? Don't be shy. It's your body and your life and it's the doctor's responsibility to do the job you hired him for.

I do hope you can get some relaxing time in and maybe get the pain level down. Please take care and stay in touch...
Chutzie
Co-Moderator Fibromyalgia & Chronic Pain Forums ~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis, collapsed disk, and a few other side dishes.

(\__/)
(='.'=)
(")_(")

"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 8/2/2009 6:00 AM (GMT -7)   
Hi jliven, I'm sorry your hurting so bad and hope it lets up soon with the meds and all our home remedies. Like Chutzie said you might need an increase in dose.
 
One thing about most of us fibromites we are a sensitive bunch and I have a lot of guilt too right now and it doesn't help us at all. I have been apologizing to my DH the past few weeks cause of all my problems and the burden I have put on him but you know if it was turned around I would be the one taking care of him and I'm sure you would do the same. We sure didn't ask for any of this.
 
Hope you get better soon.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 8/2/2009 8:51 AM (GMT -7)   
Summer is my worst time of year for fibromyalgia.  The heat and rains do me in.  I don't live up north so I don't have to deal with the extreme cold weather.  But, we are hearing many people having a rough summer. 
 
But, hang in there.  You will feel better when this lets up, I think.  I have found that fibro waxes and wanes.  I can be totally miserable and then wake up one day and feel so much better!  I'm never without pain but as long as I have some control over it, I can do fine with fibro.  You will learn how to do this.  Just listen to your body.
 
I'm sure you will be discussing things with  your doctor next month.  Make a list now, when question arise in your mind.  You'll never remember them when it comes time for your appointment.  Perhaps the meds you are on aren't the right ones for you.  So many of our medications have bad side affect.  That's one of the reasons I don't take them.  I've learned how to control the pain through over-the-counter pain meds, supplements and nutrients, exercise, and rest. 
 
I do hope you are feeling much better soon.  I know I'd be lost if I didn't know how to use the computer!  It would be a very lonely life.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


amurf124
New Member


Date Joined Jul 2009
Total Posts : 1
   Posted 8/2/2009 3:19 PM (GMT -7)   

Hi everbody,

I'm new to the forum, and glad to find people with similiar conditions. It's so lonely out there alone when it seems like you are the only one who hurts. Sometimes the pain is so bad that all I can think of is two words "I ache" that permeates everything I try to do.

I'm on 2300 of Neurontin and the doc just added 20 mg of Cymbalta to try. It worked for 2 days before the pain came back. It seems like whatever they give you works initially, and then you become accostomed to it and the pain returns. I also use Tramadol (Ultracet) for the pain which helps me get through. Has anyone had success (long lasting) with these meds?

And what about exercising? I would love to return to exercising, but don't know how when I am in pain??

Thanks for listening.


FMsaddenedspirit
Regular Member


Date Joined Jul 2009
Total Posts : 236
   Posted 8/3/2009 1:26 PM (GMT -7)   
Hey all.

I just wanted to say I'm sorry that so many of use are having such a bad time of it.. I'll be glad when summer ends here. the heat just does not play nice with me anymore. seems I have been in a flare all Summer. and no letting up... I just want to cry most days. and do .. normally about 12 am or 1 am.. I wake in soo much pain.. I have to take a pain pill and a Soma. and wait till they work to try and get a litle more sleep before work. crying for a good while. .. but hubby does not see this . I hide it as best I can during the day . why . ? hu,. good question... I feel so weak anymore. and I used to think of myself as a stong women. and had a high tollorance to pain . now. well. you know I'm sure. Guilt and sadness for the life I will never have again. Guilt for not being abel to do the things i could just not to long ago. I aks each day .. how am I to do this. ? I feel so tired all the time. work about kills me. yet I keep on . and will keep fighting ...I go into my Doc with a list anymore of things I want to make sure we rulled out and Poss other things going on. just feels like it has to more than Fibro . ya know.
maybe its CFS that triggered the Fibro.. ? they think the CFS came after.. .well well Figure it out one day i guess.. But Dangit this is hard .
Ok so I guess I'm done with my vent .. sorry to intrud .
Take care all.. Prayers for good days. for us all. ( sorry for the spelling and miss typing )

SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 8/3/2009 4:04 PM (GMT -7)   
Hi Jliven,

My brain is pretty fried right now and I'm having a hard time coming up with something really helpful to add to the great advice you've already been given, but I did want to let you know that I am so sorry you're having a hard time right now and I do hope things start to get better soon.

Also, welcome to the forum!!

~Danielle
"The ideals which have lighted my way, and time after time have given me new courage to face life cheerfully, have been Kindness, Beauty, and Truth"~Albert Einstein


Zijaman
New Member


Date Joined Aug 2009
Total Posts : 3
   Posted 8/7/2009 11:36 AM (GMT -7)   

Hello Everyone,

I am working with my first client who has Fibromyalgia and I will keep your posted on the results.  I am also going to be working with a friend who has chronic back pain who is in his 70's.  I have a few doctors tracking my results as well.

Gary

 


Jokat
Regular Member


Date Joined Feb 2008
Total Posts : 278
   Posted 8/7/2009 11:42 AM (GMT -7)   
Jliven,

Sorry that you are having a tough time right now. It does get better and it does sometimes get worse. I tolerate the pain and push on with my life. My depression is at it's worse when I am not doing anything. I also make sure I take a hot shower first thing in the morning. It soometimes help me loosen up the muscles and joints to get me going through my day.
You can NEVER give in and let FM control you. Take control of it and accept that you two are paired for life. You can still have a great life despite the pain, fatigue, and fog.

I got off of the meds because they were contributing to the fog and not diminishing the pain.
JoKat
 
Our attitude towards life determines life's attitude towards us. {Earl Nightingale} 
Fibro since 2005


KerriH
Regular Member


Date Joined Mar 2008
Total Posts : 316
   Posted 8/7/2009 6:23 PM (GMT -7)   
I am so sorry to hear that you are hurting so badly.  :( 
 
I, too, went off meds.  They didn't help my pain very much and I seemed to be highly sensitive to the troubling side effects (as many of us are on here).
 
I know several people on here have found luck with a magnesium / malic acid combo. There are several posts on it; Sherrine being the resident expert.  Not sure if you've tried it, but it has helped many on here.  I will be trying it soon as well.
 


Jhemi
Regular Member


Date Joined Jul 2009
Total Posts : 223
   Posted 8/7/2009 11:10 PM (GMT -7)   
I know with me..because I have Cirhossis of the Liver and Diabetes, there are certain things I eat that start a huge flare up. Sugar is one of them. I'm trying to eat less and less often to see if it gets better. I know I DO sleep better and feel better in the mornings if I dont eat anything after 6pm.

For me, because of the diabetes and Cirhossis, these two together put stress on my body. Before I had fibro I'd just shut down and sleep when I over ate, now I can't sleep and just feel pain. Stress seems to be a very big part of fibro. If I can manage my stress I feel better.

jliven01
New Member


Date Joined Jan 2009
Total Posts : 14
   Posted 8/9/2009 9:23 PM (GMT -7)   
Thank you all so much for the replys and the words of encouragement. I hope to be past this flare soon. I just keep pushing on yeah
 Fibro, depression, sleep apnea, high cholesterol (all diagnosed since Sept. 2008)
 
Will I ever be normal again???

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