Anyone here take Neurontin/Gabapentin?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 8/2/2009 7:46 PM (GMT -7)   
Hi everyone:) I need your experience with Neurontin/Gabapentin. I have Lyme Disease and was given this for the fibro-like pain we get with it. I am currently on a low dose pain medicine but the pain is getting much worse and I refuse to get on a stronger pain med.

Is this med good for muscle and joint pain?

Thanks to anyone that responds and I apologize if this topic has been covered recently.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Littleneck
Veteran Member


Date Joined Mar 2009
Total Posts : 599
   Posted 8/3/2009 12:45 AM (GMT -7)   
Hello,
I take 1200mg gabapentin each night before bed. I started taking it in February, and felt the positive effects after about a week. The initial "first wave" assault on the pain was like magic, 900mg for about two-three weeks. Sleeping ten-twelve hours a night was heaven. (I also took flexeril with it from the outset). Then the effect began to plateau, and we added one more pill (300mg) of gabapentin. It makes me have dry mouth, at night about an hour after I take it and in the morning for a couple of hours. It helps, in combination with the other stuff. I have fewer muscle spasms, and less frequent "down and can't get up" days.
 
I have two negatives. First, I have started to notice that I am getting nausea once or twice each day when it's time to eat. It has only begun recently. On Friday eating dinner with family I could hardly get anything down, except liquids and a bit of fruit, until later.  I mentioned this to my sister who has fibro and she said that is why she had to get off gabapentin, for Lyrica. (She has insurance.) Second, and a much smaller point, I have an acute sense of smell - even before the fibro, and the fibro only sharpened it - and the gelcap covers smell/taste kind of funky! I don't have health insurance so I can't afford Lyrica, which would be my next med to try if/when these meds plateau. I have a friend who takes 2400mg, but she has had fibro for over 15 years.

Post Edited (Littleneck) : 8/3/2009 1:59:48 AM (GMT-6)


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 8/3/2009 7:58 AM (GMT -7)   
Littleneck,

Thank you so much for responding:) I thought I would get a few more responces here....ack! I'm trying to decide whether to switch or not and this is such an important decision to make. I just truly need the pain to subside. If I wouldn't hurt 24/7, I would be much better off.

Anyway, thanks again for responding. Have a wonderful day today:)
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 8/3/2009 8:07 AM (GMT -7)   
Cajun, you will get more responses, I'm sure.  We are slow on the weekends in this forum.  I don't take these so I can't help you.  sorry!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 8/3/2009 12:15 PM (GMT -7)   
Hey Sherrine,

I thought more people took this medicine that had muscle/joint pain. I wonder why my doctor prescribed this to me if it is meant to help nerve pain? Weird:/

When I said that I thought more people would respond, I thought more people took this med.

I hope no one took me wrong:(
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 8/3/2009 12:46 PM (GMT -7)   
I know others take this.  A lot of people are on Lyrica these days.  But, I'll try to keep this at the top so you will get a few more responses.  I'm surprised that you haven't gotten more than you did!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 8/3/2009 6:46 PM (GMT -7)   
Thanks Sherrine.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Jesry
New Member


Date Joined Aug 2009
Total Posts : 17
   Posted 8/3/2009 7:53 PM (GMT -7)   
Yes, it was prescribed for me by a neurologist for an irritated right femoral nerve; pain from the groin area to my foot. The side effects after 3 weeks included dizziness, increasing depression, confusion, and nausea, and increasing pain in other joints. The problems ceased soon after discontinuing Gabbapentin. The original pain responded well to a series of well supervised physical therapy. The advantage of the physical therapy was helped in that the office was within a block from my apartment, no driving or busing.

The effectiveness of Gabbapentin was well supported by past studies, so the doctor said. And not all of us have such drug sensitivity.

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 8/3/2009 8:08 PM (GMT -7)   
I take this too.  I"m on 600mg at night.  Works better than any pain med.  For me anyway!  Good luck, give it a try!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in to be content.Phillipians4:11-13
35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 Co-Moderator for the Lupus and Fibromyalgia forums


SadSickTired
Regular Member


Date Joined May 2009
Total Posts : 99
   Posted 8/4/2009 12:55 AM (GMT -7)   
Sorry it took me so long to respond- I actually did stuff this weekend!!!  I have been on Neurontin for about a month now.  Let me start by saying that any time I start any kind of new medicine I can just about guarantee several side effects: nausea, fatigue, and dizziness.  And this was no exception.  The first week was bad, but it got progressively better.  I am on 600mg (300mg twice a day) and expect that I will probably increase as needed.  But my doc told me that she believed spreading it out made it more effective and less likely to produce lasting side effects.  It helped me pretty much right away.  It got the pain down to a manageable place (and I have a script for Vicodin that I was using 1,000mg every 6 hours- now I am down to 500mg every 10 hours on my days off from work and 500 mg every six hours on my days on.  I am a manager in a warehouse so my hours and responsibilities are a strain!)  Either way its cut my use in more than half.   I don't know if this is because I don't have as much pain or what but I am starting to have more energy (or maybe just more motivation who knows)
  But there are some not so pleasant things as well.  For starters, when I eat certain foods I get sick (all my faves- pizza, cheeseburgers, fries, ice cream and soda).  Sick enough that I just don't risk the unpleasantness.  Which is a good/bad thing as I have gained about 70 lbs on various medications and inability to exercise like I used to.  This has KILLED my cravings for carbs and increased my cravings for fruits and raw foods.  So not so bad.  I also have kind of bad heartburn sometimes (usually when I eat foods that are too heavy).  I am always thirsty.  So I kind of feel like I am on a diet pill that also eases my pain.  Definitely find a go to food to eat right before you take it because that helps the nausea.
    Who knows if these side effects will go away the longer I am on it, since it has only been a month but overall I am pretty happy about it.  This week I am also trading in my Zoloft for Cymbalta because it has a good reputation with fibro help too.  
     I hope that I helped!  Good luck whatever you decide! 
        
Thanks!
Trish
 
 


Littleneck
Veteran Member


Date Joined Mar 2009
Total Posts : 599
   Posted 8/4/2009 1:36 AM (GMT -7)   
Forgot to mentions that I too am a lot more thirsty than I used to be. I am drinking a little more water, and usually have something with me all the time. I get heartburn once in awhile, and eat some Tums.

bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 8/4/2009 3:34 AM (GMT -7)   
I've been taking 300 mg 2Xday for about 6 months. I used to have very swollen and sore muscle spasms on both sides of the neck, base of skull and across both shoulders. The gabapentin has helped 100% with these problems. The only side effect I've noticed from it is my thought processes aren't quite right. I can see an item in my head but can't for the life of me get the name of it to come out of my mouth. But I will let people think I'm an airhead for the pain relief. I've had neck and lower back fusion and the gabapentin did nothing for my chronic lower back pain. Obviously the neck pain was from nerves and the lower back is mechanical in nature. I am now on 600 mg 2Xday after having shingles a month ago and haven't noticed any great difference. The nice thing about it is that it is very inexpensive to purchase.
---Jag---
 
DDD, osteoarthritis, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus left knee 2000 & 2002, buldging disc C-2/3


Jhemi
Regular Member


Date Joined Jul 2009
Total Posts : 223
   Posted 8/4/2009 12:17 PM (GMT -7)   
I am taking it also. Just started about 2 weeks ago. I am sleeping better now. Not quite sure if it helps with the pain but for some reason I was pain free a few days ago for two days. What a relief it was to finally lie down and feel myself actually relax again.

I cant see any difference in my mood or behavior which I was leary of. I'm always leary of taking a new med though. It seems to be helping somewhat at least.

Littleneck
Veteran Member


Date Joined Mar 2009
Total Posts : 599
   Posted 8/4/2009 12:23 PM (GMT -7)   
I haven't noticed any difference in my mood. Maybe a little better because it helps me sleep! Also, I am pretty 'foggy' lately but am not sure I can attribute that to the gabapentin or just myself!

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 8/4/2009 3:42 PM (GMT -7)   
Thank you everyone for responding! I appreciate you all taking time out to do that.

I still don't know what I'm going to do yet. I'm so scared to switch and it not work. The pain has been so unbearable lately. I am seeing a new LLMD soon so I guess I will wait to see what he thinks. I do know that I don't want to continue on pain meds. I'm hoping I can find something that at least helps me get around again.

Thanks again everyone for replying:)
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 05, 2016 11:43 AM (GMT -7)
There are a total of 2,733,056 posts in 301,078 threads.
View Active Threads


Who's Online
This forum has 151231 registered members. Please welcome our newest member, safikul.
328 Guest(s), 9 Registered Member(s) are currently online.  Details
iho, pmm73, NewDay, JackH, pitmom, hatter15, julymorning, Sissy63, Graytech


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer