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Littlesrebel
Regular Member


Date Joined Jul 2009
Total Posts : 163
   Posted 8/3/2009 9:24 PM (GMT -7)   
It took around 5 yrs for a diagnosis of FM and Myofacial pain syndrome. Going in and out of the ER rooms, Urgent Care rooms. Missing work from being bed ridden. Using a cane and wheelchair. Barely got on the right meds in May and now the rheumatogist wants all meds discontinued. I waited in the pharmacy for 2-3 hrs to get refills since May. The meds are working for me. The Dr. thinks I'm too young in my 20's to be on meds. She wants me to diet and excercise. That's the cure to FM. I set up to see a new rheumatologist. I think some Dr's. don't believe this illness exist and it is frustrating. shakehead Fm hit's anyone at any age. I have the book it does not discriminate by gender either. I noticed the new Dr's. out of med school know more about FM and believe it. I've see so many Dr.'s I don't want to go to the Dr.'s Finding parking, driving there, waiting for 2hrs to see the Dr., waiting 3hrs to get the prescription. I have to do this otherwise I can't walk, get out of bed, work or drive. What doesn't the rheumatogist get. Just discrimination.

Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 8/3/2009 9:40 PM (GMT -7)   
Strebel,
I've heard that there are some chronic pain programs that stipulate that anyone who joins must not be taking narcotics.  They think the narcotics may be making the pain worse by causing rebound pain and making it so the person cannot think clearly and is not himself or herself.   Sounds scary.  Although I rarely take narcotics, I have oxycodone if I have severe pain.  It is a relief to know I can take it I need to.  The program I am going to emphasizes self care like meditation, gentle movement, accupuncture and accupuncture with electrical stimulation, tens unit, massage, stress relief, biofeedback, etc.  They add to the help the meds give.  I also have fibro and myofascial pain and relaxation helps me a lot. 
 
I hope you find an answer.
Sue

Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 8/3/2009 11:33 PM (GMT -7)   
Maybe your doc will let you stay on the meds while you try diet and exercise. It's a lot easier to begin and continue an exercise program when your pain is reduced.

I would ask the doc to give you the specific diet and exercise program that you should follow day by day so that you can reduce your pain. Just saying diet and exercise means nothing. Changing my diet and exercising has helped me a lot, more than anything else. I believe diet and exercise are one of the tools that help us live better. Meds are another tool and they really help you use the other tools that can help.

Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 8/4/2009 12:52 AM (GMT -7)   
littlestrebel said...
It took around 5 yrs for a diagnosis of FM and Myofacial pain syndrome. Going in and out of the ER rooms, Urgent Care rooms. Missing work from being bed ridden. Using a cane and wheelchair. Barely got on the right meds in May and now the rheumatogist wants all meds discontinued. I waited in the pharmacy for 2-3 hrs to get refills since May. The meds are working for me. The Dr. thinks I'm too young in my 20's to be on meds. She wants me to diet and excercise. That's the cure to FM. I set up to see a new rheumatologist. I think some Dr's. don't believe this illness exist and it is frustrating. shakehead Fm hit's anyone at any age. I have the book it does not discriminate by gender either. I noticed the new Dr's. out of med school know more about FM and believe it. I've see so many Dr.'s I don't want to go to the Dr.'s Finding parking, driving there, waiting for 2hrs to see the Dr., waiting 3hrs to get the prescription. I have to do this otherwise I can't walk, get out of bed, work or drive. What doesn't the rheumatogist get. Just discrimination.
 
 
FROM HARA: My Rheumy I think has gotten rid of me to although I am only now taking the Gabapentin. I also told my Rheumy that I was absolutally not taking the Methocarbamol because it is very nasty tasting and she could take it. Her responds was "Try jelly and follow up with your GP."  Right now I'm trying Ginger Root because I'm just tired of having my inflamation in my joins and such. I'll let you know how things turn out.

Littlesrebel
Regular Member


Date Joined Jul 2009
Total Posts : 163
   Posted 8/4/2009 7:58 PM (GMT -7)   

They wanted me on the methocarbamol. I was on it for yrs and it stopped working.

Then I was put on Flerxil, and I have adapted. They wanted me off the Flexeril, b/c there may be a side effect of drowsiness. I have not had that problem.

I don't want to change meds. It takes long to adapt to the meds. The Dr.'s have been changing meds on me like every 2 months. I'm tired of it. confused

With no refills I have to wait at the pharmacy 2-3hrs at each time to get the refill. It's wasting my time and makes me frustrated. mad

The rhumatologist gave me the prescription. Then I called to change rhumatologist. I hope the next Dr. will be more helpful.


Fibromyalgia, Chronic Myofacial pain syndrome.


Littlesrebel
Regular Member


Date Joined Jul 2009
Total Posts : 163
   Posted 8/4/2009 8:01 PM (GMT -7)   

Thanks Hara for telling the Dr. off. If the Flexeril stops working then I would op to going back on methocabamol. It does taste bad, but it worked for yrs. Some rheumatogist just don't get it. I can't be taken off all med's cold turkey I'll end up in the ER as usual. mad


Fibromyalgia, Chronic Myofacial pain syndrome.


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 8/5/2009 2:32 AM (GMT -7)   
I have some Flexeril left I'm going to take that along with the Ginger Root and that way I can hopefully at some point get totally off the Flexeril.
 
HARA

whippet mom
New Member


Date Joined Aug 2009
Total Posts : 12
   Posted 8/5/2009 6:11 PM (GMT -7)   
From what I have observed - the jury is still out on wheather or not fibro actually exists per the medial community.  I have been to several conferences where some doctors believe and others do not.  Some believe that it is a just a constellation of syndromes and that "fibromyalgia" is just a junk box term .   Their biggest hangup is that there is no diagnostic test to say - yes you have fibro.  There is no lab value that can tell your diagnosis.  It is a clinical diagnosis - based on symptoms.  Although all of us here obviously believe that it is real - its about finding a doctor that is willing to work with you and that listens to you. .... and also that doctor has to have trust in you to make a god pair.  Sound easy to find eyes   yeah right.  Good luck - i hope that you are able to find someone that can help you.
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