This is so wierd

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ladybug44r
Veteran Member


Date Joined Jul 2006
Total Posts : 831
   Posted 8/4/2009 7:30 PM (GMT -7)   
my oldest Daughter went to see her son's mental dr. (Brain fog tonight and can't remember how to spell.)
 
My 2 of my grandsons from her have some type of Autism, the Dr saw that she had the Micheal Jackson Diease on her arm and then asked her if I had Lupus since what she has is a AutoImmune Disease.
 
Should I go back and start the testing again? I do have the mask either when I go out side or due to Mitch using the florestant lights through out the house.
 
Veronica
DX Fibro 12/31/07   Guess I can put the rest dx
PSTD  Bi Polar 2/04  Depression most of my life  IBS
RX Amitriptylin 25mg
 
God gives doesn't give us more than we can handle. So this too shall pass.


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 8/5/2009 8:10 AM (GMT -7)   
Hey Veronica,
 
Having a sensitivity to fluorescent lights is classic Lupus.  I don't know of any Lupus patient that isn't sensitive to those poisonous lights.  Change those fluorescents back to the old incandescents.  They're really bad for us... One hour under fluorescent lighting is equal to spending 15 minutes in direct sunlight.  Terrible!!!!
 
Definitely bring this up with your rheumy and push for a repeat of Lupus panel tests.  Make your rheumy very aware that you are serious about finding what's wrong.  Make them listen!
 
Good luck, keep us posted,
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in to be content.Phillipians4:11-13
35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 Co-Moderator for the Lupus and Fibromyalgia forums


ladybug44r
Veteran Member


Date Joined Jul 2006
Total Posts : 831
   Posted 8/6/2009 12:55 PM (GMT -7)   
I also just found out my mom has RA which I did not know. She also has the bone disease where she has to take a pill once a month. Sally Fields has it.
Her sister also has RA

Veronica
DX Fibro 12/31/07   Guess I can put the rest dx
PSTD  Bi Polar 2/04  Depression most of my life  IBS
RX Amitriptylin 25mg
 
God gives doesn't give us more than we can handle. So this too shall pass.


Carnissa
Regular Member


Date Joined Jun 2008
Total Posts : 289
   Posted 8/6/2009 6:13 PM (GMT -7)   
My dad has vitiligo which is what michael jackson has... its is very common in people with thyroid problems he was told..

his hands are almost all white and its going up his arms

if you look it up online it will give you some more info
Diagnosed - fibromyalgia 2001
Meds amitryptilene 30mg/day
Lyrica 75mg/day


ladybug44r
Veteran Member


Date Joined Jul 2006
Total Posts : 831
   Posted 8/7/2009 9:26 PM (GMT -7)   
I talked to my daughter about thyroid problems but she has had this since she was little and doesn't have that problem.

Veronica
DX Fibro 12/31/07   Guess I can put the rest dx
PSTD  Bi Polar 2/04  Depression most of my life  IBS
RX Amitriptylin 25mg
 
God gives doesn't give us more than we can handle. So this too shall pass.

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