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wish2fish
New Member


Date Joined Aug 2009
Total Posts : 3
   Posted 8/5/2009 6:13 PM (GMT -7)   
OK I am new on this forum. I have not had an official diagnosis yet yet but my symptoms are mainly muscle pain and tendon pain. I am at time experiencing twitching. I mean the whole body will twitch. Is this something frequent with fibro? I talked to my doctor about this and he said that it is generally not a symtom of fibro. Sometime I also feel like I have a cell phone buzzing down my legs.
 
Thanks

crazyoldcatlady
Regular Member


Date Joined May 2009
Total Posts : 194
   Posted 8/5/2009 7:47 PM (GMT -7)   
I twitch a lot, especially when I am stressed. One night during an especially stressful time I tried to count the seconds between the randomly jumping muscles throughout my body - never got past 5 seconds. Muscle relaxants help some.
 
Oh, and I forgot to mention...
 
Welcome to the forum!!  turn
Donna


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 8/5/2009 9:52 PM (GMT -7)   
I have some twitching also at times especially when I'm in alot of pain. My dr. thinks it's in my head. The twitching thing I mean.
 
HARA

Jhemi
Regular Member


Date Joined Jul 2009
Total Posts : 223
   Posted 8/6/2009 1:31 AM (GMT -7)   
It isnt in your head Hara. I never did it before but now at times when I try to sleep my body spasms. Nothing I can do about it...it just happens.

Jesry
New Member


Date Joined Aug 2009
Total Posts : 17
   Posted 8/6/2009 2:03 AM (GMT -7)   
Have two friends who had this full body side effect from the medication Effexor. Not a fun drug to stop, the addiction can be awful.

This is not to suggest that twitching is not a fibro related thing. I have episodes of twitching that last several days every month or so, but on a much, much smaller scale.

However, it's so not fun to be out and about and suddenly you just know that the muscles under your left eye, for example, are twitching for minutes at a time.

Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 8/6/2009 12:44 PM (GMT -7)   
Jersy you poor thing. It must be embarrassing when your eyes twitches like that in public.
My twitching usually happens when I'm just laying down for the night. One of my legs will jerk and scar the crap out of my cat. He has to get up and check it out everytime. Then he comes and checks my face out. Then he either lays back down or leaves. Picky cat...LOL
 
HARA tongue

wish2fish
New Member


Date Joined Aug 2009
Total Posts : 3
   Posted 8/6/2009 6:14 PM (GMT -7)   
this twitching business is not fun. Sometimes it is like pop corn with muscle twitching all over and sometime it is just one muscle like my arm or shoulder my butt cheek even will twitch at time. Not fun.

Thanks you guys for the support.

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 8/6/2009 7:37 PM (GMT -7)   
My twitching has evolved into full blown lurching.  My head will jerk out to one side, or one arm, a leg, the entire left or right side jumps like I've been zapped with a taser (I have no idea what that experience would actually be like, but I'm guessing).  I usually get this when I'm at the computer or watching t.v. and definitely when I'm trying to fall asleep.  It's severe! 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in to be content.Phillipians4:11-13
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crazyoldcatlady
Regular Member


Date Joined May 2009
Total Posts : 194
   Posted 8/6/2009 7:56 PM (GMT -7)   
I had the 'lurching' thing several years ago when I was taking a low dose of Paxil as a prophylactic for migraine. THe muscles in my lower back would spasm and my whole upper body would jerk forward. It was horrible. Fortunately it went away when I quit the Paxil and this spasm/twitching thing I have developed with the fibro is not QUITE that bad.
Donna


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 8/6/2009 9:40 PM (GMT -7)   
Some medications will make you twitch, lurch and do non-funny things.
 
HARA

Mo Stewart
New Member


Date Joined Aug 2009
Total Posts : 9
   Posted 8/6/2009 11:24 PM (GMT -7)   
I twitched a lot, especially when i took tramadol. I dont know if it is common but i twitched often

amandabeezy
New Member


Date Joined Aug 2009
Total Posts : 7
   Posted 8/7/2009 3:55 PM (GMT -7)   
Hey there,
I twitch allll the time. Sometimes so much that it feels like someone is shaking me. Especially at night when I lay down my body will twitch so much that I think theres an earthquake or something! Its not fun, but it happens to a lot of us.

Littleneck
Veteran Member


Date Joined Mar 2009
Total Posts : 599
   Posted 8/7/2009 11:36 PM (GMT -7)   
I'm a twitcher. BIG twitches as I'm falling asleep, including "restless arm" syndrome. Random assorted muscular twitches, especially in my arms and calves.

merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 8/8/2009 6:42 AM (GMT -7)   
I have twitching.
 
I just found out that
I have severe magnesium deficiency which will cause twitching. I got an IV of magnesium and No more twitching for now. MKagnesium is a natural muscle relaxant and my pain is better! IF you cant get IV try to take oral supplements. I was taking 500mg, although I dont t hink t hat is enough for me.
 
you should get your levels tested. HAve you also considered Lyme disease as a diagnosis, I would visit that forum and maybe get tested.
 
melissa
Chronic Lyme Disease
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confused Okie
Regular Member


Date Joined Apr 2009
Total Posts : 164
   Posted 8/8/2009 5:10 PM (GMT -7)   
I have the twitching too, it stopped for a while and recently started again. I also have the phantom cell phone vibrating.
If you think you can, you can. If you think you can't, you won't.
I may not do things like other people, but I get things done in my own way, in my own time.


vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 8/8/2009 6:07 PM (GMT -7)   

Oh yeah...my muscles twitch and I have the buzzing thingi n my feet all the time.  There was a time when I would actually visibly 'vibrate'...so badly if I was laying on the couch, the vase on the table, clear across the room would shake.  Knock on wood, that hasn't happened in a while.  It felt like I was sitting on the spin cycle of a washing machine.  Don't to this day know if it was a fibro-thing...never heard of anyone with fibro describe that weird symptom.

Donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


phxskye
New Member


Date Joined Aug 2009
Total Posts : 2
   Posted 8/9/2009 1:33 AM (GMT -7)   
Hi Wish2Fish,

Yes, twitching does go along with Fibro. I had the skin crawling feeling in the legs when I was first dxd. The main muscle twitches/spasms/jumps come at night when in bed for me. They are bad enough that I will awaken at times. My doctor prescribed the script, Gabapentin. No more problem! Fibro seems to have a neural component to it, therefore twitches, etc.

Chat with your doctor and share some of the 'solutions that other fibro-mites have found' with your doctor. Time to get him out of the 'it's all in your head' mentality!!

Skye

phxskye
New Member


Date Joined Aug 2009
Total Posts : 2
   Posted 8/9/2009 1:35 AM (GMT -7)   
Hi Wish2Fish,

Yes, twitching does go along with Fibro. I had the skin crawling feeling in the legs when I was first dxd. The main muscle twitches/spasms/jumps come at night when in bed for me. They are bad enough that I will awaken at times. My doctor prescribed the script, Gabapentin. No more problem! Fibro seems to have a neural component to it, therefore twitches, etc.

Chat with your doctor and share some of the 'solutions that other fibro-mites have found' with your doctor. Time to get him out of the 'it's all in your head' mentality!!

Skye

wish2fish
New Member


Date Joined Aug 2009
Total Posts : 3
   Posted 8/26/2009 12:40 PM (GMT -7)   
thank you everyone.
 
My twitches are more like pop corn here and there under the skin at time. Someone mentioned the phantom cell phone syndrome thing. That was my 1st symptom. It was so annoying. I kept reaching in my pocket thinking my phone was buzzing. It was me that was buzzing.

WhiteChocChip
Regular Member


Date Joined Jun 2009
Total Posts : 439
   Posted 8/26/2009 6:11 PM (GMT -7)   
I never had any twitching before I got fibro ... now the muscles in my hips will spasm. It's completely random as far as I can tell. I am always trying to answer a non-existant cell phone i think is in my pocket :D

DreamspinnerCheryl
Regular Member


Date Joined Aug 2009
Total Posts : 59
   Posted 8/26/2009 8:40 PM (GMT -7)   
For years, I've had the "cell phone" thing in my hands and especially my feet. (I'd have described it as feeling like a cat's purr-wonder if that's because I have seven cats?) The sensation is most noticeable when I've just gone to bed. I also have the "skin crawling"-feels almost like goosebumps rising, over random patches of my legs.

If this is fibro, it's one totally weird disorder.
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