Post Edited (Stacey253) : 8/7/2009 3:10:55 AM (GMT-6)
Hi Stacey and welcome. My pain is worse at night. The minute I lay down the hip/leg/thigh pain really kicks in as well as "The Skin Burning". I spend most of the night wandering around from place to place trying to get comfortable. Because I am allergic to narcotics, I have to rely on Advil/Tylenol for a pain. I also take 5mgs of valium for Restless Leg but I still feel the pain through the temporary haze.
I am a writer and have four books in print(satirical humor) and understand the frustration that The Fog brings with this disease. My fibro has worsened over the past three years and I have not been able to complete a manuscript because of the typing mistakes and loss of words that are perfectly coherent in my head but look like jibberish on the screen. I am also on Lexapro (2 yrs) that I agreed to take after four members of my immediate family died within a short period of time. I am hoping some of my cognitive problems are from this drug, as it dulls the emotions, makes my eyes blurry and stifles my ambition. I am trying to wean off this drug but the withdrawals are nasty...Not to say that it is not a life saver for some people but I want off!
You are A LOT younger than I am and would hate to see this disease rob you of your passion. I have had fibro for longer than you have been alive and somehow managed to pace myself and get the job done. I have put my writing on the back burner for too long and I hope I can get back to it again and not let it's mighty wrath kill my spirit. My husband is a college professor and encourages all of his students to make him aware of any 'disabilities' they may have and he makes adjustments for them. Some have test anxiety...many are in the military and have all kinds of stressful issues. I might suggest you talk to your professors about your Fibro. If they are worth their weight in tenure they should accomodate you and give you some slack.
I wish I could offer more help but all I can do is totally relate to what you are going through. Fibromites are tough and strong.
How many typing mistakes have I made in this response??? about 16, and those are the ones I caught!
Hang in there....follow your dream and kick fibro in the butt!