My summer-time partial remission is OVER!

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KerriH
Regular Member


Date Joined Mar 2008
Total Posts : 316
   Posted 8/7/2009 5:56 PM (GMT -7)   
Last summer, I enjoyed a partial remission from Fibro for most of the warm months.  This summer, I have been enjoying that same gift since the end of June...only, it has come to an early end this year.
 
Today, I felt some flashes of pain, then on the way home it washed over me like a tidal wave.  Ouch!!!!!!  This flare has teethshocked
 
My wonderful husband took the kids and I out to eat, then played a couple of favorite songs on the radio on the way home and pushed me to sing along with him.  While it didn't take away the pain, it did help me smile. :) 
 
How are you all feeling today / tonight? 

Kerri

Fibromyalgia since 2007

"No pessimist ever discovered the secret of the stars or sailed an uncharted land, or opened a new doorway for the human spirit."
 
Helen Keller


DonniesGirl
Regular Member


Date Joined Mar 2009
Total Posts : 71
   Posted 8/7/2009 6:11 PM (GMT -7)   
Kerri,
I'm right there with you.  I felt wonderful all last summer.  This summer it's been a lot different.  I think it's because we haven't had many real "summery" days here.  It's sad that Fibro has the upper hand.  :(
Bless your husband for being so sweet.  I've got one of those too.  :)  Isn't it nice??  :)  Something to be thankful for!  :)
 
Luv,
DonniesGirl
Fibromyalgia, Chronic Fatigue, GERD, Irritable Bowel, Mitral Valve Prolapse, Depression
 
Rx:  Lyrica 100mg 2x, Prilosec OTC, Tramadol, Paxil
 
 
 
Even though the journey's long,
and I know the road is hard,
there's One who's gone before me,
He will help me carry on...


Jokat
Regular Member


Date Joined Feb 2008
Total Posts : 278
   Posted 8/8/2009 10:37 AM (GMT -7)   
Oh no!! So sorry to hear that Kerri!!
 
I hope that the flare is quick and you are able to get back to enjoying your weekend with your wonderful family.
We will be thinking about you!!
JoKat
 
Our attitude towards life determines life's attitude towards us. {Earl Nightingale} 
Fibro since 2005


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 8/8/2009 10:49 AM (GMT -7)   

Kerri, I hope this clears up soon.  Actually, summers are my worst time.  The heat and the summer storms play havoc with my muscles.  Like Danib, I like warm temperatures...not hot!

If you've had a lot of storms lately, that could very possibly be the problem.  When the storms stop, you might feel much, much better.  I hope so!

Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 8/8/2009 11:48 AM (GMT -7)   
I feel better in the summer too.  The winters here in central NY are brutal and I am not looking forward to the skin on  my legs feeling like they are shrinking up around my bones when they hit the cold air.  I don't have that in the summer and sure wish I knew why they did that.
 
I'm good in about 72 degrees.  Guess I'll have to move to Hawaai!
 
Huggies
Donna
fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


yo-yo
Regular Member


Date Joined Aug 2009
Total Posts : 159
   Posted 8/8/2009 1:18 PM (GMT -7)   
Kerri
I feel WAY better in the summertime too. Except the last few days when I've had a wowser of a flare! 
I'm new on the forum--This is my first time posting but I've been lurking for a couple of years now.  I just want to get back to 80 degrees again here in SW Washington. Its turned cooler and my body does not like under 70 degrees.  Last week, when we had a heat wave here, I was in my element!  I was outside , in the shade,  with my book until it got past 95 and I was loving every minute of it.

KerriH
Regular Member


Date Joined Mar 2008
Total Posts : 316
   Posted 8/8/2009 1:48 PM (GMT -7)   
Thanks, everyone, I appreciate the responses. I do believe it's due to all the rainfall we are having this summer.

Yo-Yo, glad to hear you posted after lurking for so long! How wonderful for you that you felt so good in the warm weather.

Does anyone else have a lot of pain in their arms? I find it such an odd place for the intense pain to settle, but both arms (in their entirety) hurt sooooo much during a flare. The rest of me hurts too, but the arms are the worst.

I'm going to stop typing, as I've had to correct so many typos it's crazy. Take care....

Kerri

Fibromyalgia since 2007

"No pessimist ever discovered the secret of the stars or sailed an uncharted land, or opened a new doorway for the human spirit."
 
Helen Keller


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 8/8/2009 3:58 PM (GMT -7)   
Kerri you have such a sweet husband. At least he put a smile on your face. My son sometimes tries to do that with me eventhough he has Asperger's Symdrome (high functioning Autism).
 
HARA

KerriH
Regular Member


Date Joined Mar 2008
Total Posts : 316
   Posted 8/8/2009 4:34 PM (GMT -7)   
Hara,

Thanks. Yes, my husband was very sweet.

Our 2 year old was diagnosed w/ PDD-NOS a couple of months ago. I think it's wonderful that your son tries to put a smile on your face like that!! How old is he?

Kerri

Fibromyalgia since 2007

"No pessimist ever discovered the secret of the stars or sailed an uncharted land, or opened a new doorway for the human spirit."
 
Helen Keller


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 8/8/2009 4:43 PM (GMT -7)   
My son is 17 right now and will be turning 18 in December. We go to Seattle in September to get him dx with his Asperger's Syndrome that he has big time now that he's in high school. He will be a Junior this coming school year. He's pretty smart to at the academics only. he's got a 4.0gpa  He really sucks at social things and getting along with his peers but that is to be expected with Asperger's.
 
HARA
 
 

libertykitty
Regular Member


Date Joined Oct 2008
Total Posts : 111
   Posted 8/9/2009 1:37 AM (GMT -7)   
Last summer was great for me too! I went to Spain on an archaeological field school and I felt fine the entire month I was there, when everyone around me was passing out with heatstroke. I did get the boys to do the heavy lifting for me, though. I went back this June, though, and made the mistake of trying to be strong and do the hard stuff myself. I messed up my left shoulder pretty badly and was stuck on the couch in Spain for two weeks. It's still bothering me now that I'm home despite visits to the chiropractor, and so is pretty much everything else. All the rain we've been having on the Jersey shore hasn't helped, I'm sure. And now I'm looking to go to graduate school in Minnesota. I can't even handle winters in Maryland, where I go to college now. I wish the weather would clear up so I could get a few easy weeks in before school starts.

And on the subject of heat draining energy, I find that to be true of humidity rather than heat. It's been so high lately that I feel like I can't breathe. This also happens to me whenever I take a hot shower - I need a nap afterward!

-Sandi
Diagnosed with fibromyalgia February 2008, dysthymia January 2009.
Vitamin D supplements, and Provigil and Temazepam when I need them.
So far Cymbalta and Wellbutrin make me sick and Lexapro does nothing.


Jokat
Regular Member


Date Joined Feb 2008
Total Posts : 278
   Posted 8/17/2009 5:31 AM (GMT -7)   
Kerri, How has your flare been lately? Are you feeling any better?
JoKat
 
Our attitude towards life determines life's attitude towards us. {Earl Nightingale} 
Fibro since 2005


KerriH
Regular Member


Date Joined Mar 2008
Total Posts : 316
   Posted 8/17/2009 8:00 AM (GMT -7)   

I appreciate you checking up on me, Jokat!  :-)

It's sort of back and forth. I'm taking it minute by minute, as it fluctuates quite a bit throughout each day. It's not the worst flare I've ever been through, but my remission is definitely over.

How are you feeling? I know you have been going through your own flare. Must be even more difficult, with packing to move and all.



Jokat
Regular Member


Date Joined Feb 2008
Total Posts : 278
   Posted 8/17/2009 8:23 AM (GMT -7)   
So sorry that your remission is officially over!! cry
 
I am praying for you that the pain is merciful and the fog is thin.
 
Some days are worse than others....as always the days off of work seem the worse because it is harder to ignore and keep my mind busy on the weekends......
Being a man I just try my best to ignore it and go on with my day......
 
 
JoKat
 
Our attitude towards life determines life's attitude towards us. {Earl Nightingale} 
Fibro since 2005


KerriH
Regular Member


Date Joined Mar 2008
Total Posts : 316
   Posted 8/17/2009 10:37 AM (GMT -7)   
Thank you for the sympathy. :(

I am sorry to hear that you are having your own troubles too. I'm sure it's hard to try to remain strong at all times. You have the right prescription, though - distraction! It's the best treatment I've found too.

I hope you feel better soon, Jokat. I will pray that next weekend goes smoothly for you and that the pain is at least tolerable.

Kerri

Fibromyalgia since 2007

"No pessimist ever discovered the secret of the stars or sailed an uncharted land, or opened a new doorway for the human spirit."
 
Helen Keller


Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 952
   Posted 8/17/2009 4:05 PM (GMT -7)   
Hi Kerri,
    Like Vestabula, I'm a central New Yorker. Today is 95 and in the dishroom I think it was about 110. I function
fine in this weather until a couple of days ago when I had to take major drugs. 2 flexoril, 2 darvacets, 4 super cissus
and 5 hot showers.....nothing touched it. I find I'm very susceptable to weather fronts. During hurricane season the pain
gets real bad. I usually have to go to drs and get a depo shot which lasts for about 3 weeks.
     I'm o.k. during the winters as I get up at 3:30 to shovel out to get to work by 5:30. The plows don't like to get
out that early.
   If the pain gets real bad for you check into the depo shot. It's some kind of high end painkiller that stays in
your system for weeks.
                                         Nana Monster

KerriH
Regular Member


Date Joined Mar 2008
Total Posts : 316
   Posted 8/18/2009 5:08 PM (GMT -7)   
Nana Monster, I'm sorry you are not feeling well. :( I'm glad you found the depo shot - thanks for letting me know about it.

Cool name, by the way! :)

Kerri

Fibromyalgia since 2007

"No pessimist ever discovered the secret of the stars or sailed an uncharted land, or opened a new doorway for the human spirit."
 
Helen Keller


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 8/18/2009 5:21 PM (GMT -7)   

What kind of DEPO SHOT are you talking about?

 

HARA


Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 952
   Posted 8/18/2009 5:35 PM (GMT -7)   
Kerri,
    I hope you're feeling better too. What does your "flare" feel like? The worst thing I get is when it feels like someone
wads your body up in a ball then throws you on the floor. After a few minutes it passes, then rolls you right up again.
I've sat on the couch and waited for the drool to come. So far, so good. Once in a while it feels like someone is trying
to rip my arms out of their sockets while my head is being pulled off.
     You're right, if you can distract the mind it can help to stave it off. At work I find a lot of relief in laughter. It puts
the mind on things other than the pain.  With the herbs I've been a lot better with very few flares.
     My 4 year old grandaughter came up with the name.
 
Hara,
    It's a depo-blah-blah shot. I can't remember the technical name. Not to be confused with the depro birth
control shot.  I get real bad during hurricane season and usually have to get 2 to make it through the season.
I can get ahold of my dr and find out the name for you. So far this year I've only been there one time.
 

Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 8/18/2009 5:40 PM (GMT -7)   

You mean a Depo Medrol shot? Those are for allergies.

I know Depo Prevera is for birth control.

 

HARA


Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 952
   Posted 8/19/2009 8:58 AM (GMT -7)   
I just stopped at the drs. It is the depo medrol shot. It's a cortisone shot which for me works with the inflamation
in my joints. She said they've been giving lot of them for poison ivy.  I guess it all depends on what is wrong with you
how it works.  I know I average 2 every fall for the severe flare-ups.

KerriH
Regular Member


Date Joined Mar 2008
Total Posts : 316
   Posted 8/19/2009 9:36 AM (GMT -7)   
Nana Monster, you certainly paint a clear picture of what your flares feel like!!

To this day, I cannot describe what my flares feel like. It's almost as if a billion parasites are invading my body and eating away at my bones and muscles, yet it doesn't feel like "eating". It is so hard to explain.

Sometimes, it feels like someone is stringing metal wire through the tips of my fingers, up both arms, and through my body.

Kerri

Fibromyalgia since 2007

"No pessimist ever discovered the secret of the stars or sailed an uncharted land, or opened a new doorway for the human spirit."
 
Helen Keller


Jokat
Regular Member


Date Joined Feb 2008
Total Posts : 278
   Posted 8/19/2009 1:58 PM (GMT -7)   
Yeah, it is definately hard to explain to the Fibroless.
 
Heck, it is hard to explain to those who are in the know.
 
I sure wish that they would invent that machine that allows one person to feel what another is currently feeling. The pain, the emotion, etc...
JoKat
 
Our attitude towards life determines life's attitude towards us. {Earl Nightingale} 
Fibro since 2005


KerriH
Regular Member


Date Joined Mar 2008
Total Posts : 316
   Posted 8/19/2009 4:00 PM (GMT -7)   

Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 952
   Posted 8/19/2009 5:33 PM (GMT -7)   
Some of the symptons are fun. One of my favorites is the steamroller over the ankles. The hot baseball bat slugging
your body comes in a close second.  Of course, for those more into pain, the drawing and quartering is a good game.
If we can't laugh at it, it sure does make it a bit more bareable.
 
                        Nana Monster
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