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Littlesrebel
Regular Member


Date Joined Jul 2009
Total Posts : 163
   Posted 8/9/2009 4:48 PM (GMT -7)   
My primary Dr. thinks I may have something worse than FM.  I have to go get more tests done. Pain management for med's, neurology for MRI. This Friday I got the 2 new diagnosis' malaise and fatigue. I'm afraid b/c my symtoms are getting worse. I go to the urgent care, or ER weekly.
 
My primary Dr. suggested that depression is what I have, not FM. I have had depression for many many yrs, but it never manifested like this torture pain in my body. I don't believe Depression can do that. I'm not fabricating this. I'm not making it up in my mind that I have the following. sad


Fibromyalgia, Chronic Myofacial pain syndrome, Malaise, Fatigue.
 
 
 

Post Edited (littlestrebel) : 8/20/2009 3:29:14 PM (GMT-6)


SassyMyKitty
Veteran Member


Date Joined Apr 2009
Total Posts : 673
   Posted 8/9/2009 4:58 PM (GMT -7)   
The thing that annoys me about some doctors is that they will blame almost everything on depression. I have been suffering with MDD for many years now. But, that doesn't mean that that is all of my problems. What some doctors don't seem to want to admit is that fibro and depression go hand in hand a lot of the time. I'm in pain from my fibro, which makes my depression worse, which makes my pain worse...it's a vicious cycle. I am sorry to hear that you are having a rough time. I wish you all the luck in the world. Take care of yourself, and remember that you need to stand up for youself when it comes to doctors. No one knows your body like you do.
'Cause when push comes to shove
you taste what you're made of.
You might bend til you break
'cause it's all you can take.
On your knees you look up
decide you've had enough.
You get mad.
You get strong.
Wipe your hands
shake it off.
Then you stand.
 
-"Stand" by Rascal Flatts
 
 


American Woman
Regular Member


Date Joined Jul 2009
Total Posts : 96
   Posted 8/9/2009 7:39 PM (GMT -7)   
I also get fired up when dr. blame everything on depression or anxiety.  Quite a few years ago I was having bad heart palpitations and almost blacking out and when I went to the ER the dr there said I was having anxiety attacks and to also stop all caffeine and I would be fine.  I wasn't fine.  I found a good dr who ran all the right tests and found that I have paroxismal atrial tachycardia(real fast heartbeat) put me on some meds and actually seemed to care.  Sadly he is now retired, but my other dr is ok.
I also believe we have to get the dr to really listen to us and if that means we don't always agree with what they are saying oh well. 
I'll keep you in my prayers and I hope everything goes well for you. 
 

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 8/9/2009 11:00 PM (GMT -7)   
Hi Rebel!

Like referred to above...you will have to stand up for yourself on this one. Do not take your doctor dismissing everything as depression. I hated to admit it but I've had depression/PTSD since my son passed away. I have a wonderful doc who knows the difference between depression and pain. Like DUH! Depression does not cause wide spread body pain, fibro fog, etc.

It's time to put this doc to the wall on this. Ask him point blank...does he even believe in Fibro? If he says 'No' or beats around the bush then shake his hand and say "Been nice knowing you. Good Bye!"

Before you go you do need to be prepared. Read up on good literature on the internet. Find university, hospital and National Institute of Health sited what thoroughly describe fibro. Copy them off and take them along for your doc to educate himself. And the final kicker is to keep a pain journal. Below is a link to a journal page you can print off for free. One page for each day. It will record your pain levels throughout the day, what you tried to help it feel better, did it work, where exactly is the pain.. Tons of things and it's more than worth the small amount of time it will take you and the pages pile up quickly to make a nice journal of your daily life.Then each time you go to any doctor take along your journal and ask them to read the most recent pages. They will be able to SEE what you go through, not just half way listen.

I do hope this helps...
Chutz

http://www.painfoundation.org/Publications/TargetDailyLog.pdf
Play fair. Don't hit people. Say you're sorry when you hurt somebody.
~Robert Fulghum

(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums
(/|\)


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 8/10/2009 6:00 AM (GMT -7)   
Sorry you are going through so much.

Remember you are your own best advocate. You know your body better than anyone
else. I have told my doctors that on more than one occasion. When I tell them that they
know I mean business and take me seriously.

I have a lot of medical issues going on, so I keep everything organized in a huge binder.
Ask for copies of all test results. Do your own research and ask plenty of questions.
Go to the doctor with a list of questions and symptons. Don't let him rush you.

I got to the point where I was angry every time I left a doctor's office because I felt I
was being ignored. That is when I decided I was going to be pro active in my treatment.

I had an appointment this past week with my PCP and she spent a whole hour with me.
She is going to take a more active role working with my rheumy to treat me.

I wish I was more proactive in the beginning. It would of spared me lots of anger.

Good luck to you :)
Robin
 
 possible MCTD, Raynauds, Fibromyalgia, Osteoporosis, Degenerative
 Disc Disease, Osteoarthritis, High Blood Pressure, Migranes and
 Pseudothrombocytopenia, biopsy shows a Scleroderma variant
 MEDS: Methotrexate, Savella, Boniva,Lisinopril, Folic Acid, Flexeril, and
 Vitamin Supplements


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 8/10/2009 9:30 AM (GMT -7)   
I wonder if your doctor would tell you this if you were a man????  Women get a bad rap this way, in my humble opinon.  That's why we have to keep informed and let our doctors know we are on top of this illness, too.  This way, they will be more careful what they say.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 8/10/2009 10:08 PM (GMT -7)   
That is so true Sherrine. Freud and his colleague thought women had hysteria: the uterus moving around in the body longing for a baby. I wonder if this was actually fibromyalgia. Of course Freud also thought women wore necklaces and scarves because they wanted something to dangle because they wanted a man's anatomy.
Sue

Littlesrebel
Regular Member


Date Joined Jul 2009
Total Posts : 163
   Posted 8/20/2009 2:18 PM (GMT -7)   
I switched to this she Doc. that told me it's "the depression." That one was a female. The one I had before was a male who blamed my condition on "PMS_female hormone problems." I was really offended by both of them. Now I switched to another one I have yet to meet. I told off the last Doc and claimed that if she discriminate's against me I will call my attorney plus Civil Rights. Tired of the run around. mad
Fibromyalgia, Chronic Myofacial pain syndrome, Malaise, Fatigue.
 
 
 


Littlesrebel
Regular Member


Date Joined Jul 2009
Total Posts : 163
   Posted 8/20/2009 2:25 PM (GMT -7)   

Fighting for my rights as an FM patient. yeah

Now I have a new Rheumatologist, Neurologist, Pain Dr, Physical therapist, Psych. I'll keep the Pain Dr. , Psych, and Neurologist. I have to scope out the rest of them still. Not going to stop the search until I get the best of the best Dr's out there.


Fibromyalgia, Chronic Myofacial pain syndrome, Malaise, Fatigue.
 
 
 


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 8/20/2009 2:34 PM (GMT -7)   
You go girl !!!!!!!

Now that is what you call a proactive approach. Remember you are your own best
advocate.


Good Luck

Robin
 
 possible MCTD, Raynauds, Fibromyalgia, Osteoporosis, Degenerative
 Disc Disease, Osteoarthritis, High Blood Pressure, Migranes and
 Pseudothrombocytopenia, biopsy shows a Scleroderma variant
 MEDS: Methotrexate, Savella, Boniva,Lisinopril, Folic Acid, Flexeril, and
 Vitamin Supplements

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