Meningeal Decompression releasing FM pain

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XML
New Member


Date Joined Dec 2008
Total Posts : 18
   Posted 8/10/2009 9:35 AM (GMT -6)   
This is my understanding of Meningeal Decompression.
The meninges is the 3 layer sack that surrounds and protects the spinal cord and brain. It contains the spinal cord fluid. This gets compressed through age, stress, injury, who knows etc. ALL the nerve roots travel through this sack, the compressed sack plays havoc on the nerve roots and depending on where the compression is determines where the body feels the pain.  through his experience with pain management and not a proponent of using drugs due to their own negative side effects set out to find what is the real cause of FM pain. Being a leader in the fields he works he tends to think outside the box. While he didn't discover this treatment he has advanced it.
The treatment fits in well with chiropractic as one is in effect adjusting the sack so it is no longer compressed. The treatment causes mild discomfort but just for a few minuets. There are 2 pressure points in the neck that contain large amount of nerves that go to the sack. These are pressed on and after the initial discomfort will cause a calming/relaxing effect on the whole sack. Then a chiropractic type adjustment is made that actually realigns this sack. It has to be done multiple times over a period of time for the decompression to take place. The very first adjustment will show a significant reduction of pain. This is a sign that the treatment will work. If there is no improvement then this treatment is not for you. It has, so far, proven to work on 80% of all FM cases. I'm sure will explain it in more detail and can advise as to where else this treatment is available

Post Edited By Moderator (Sherrine) : 8/10/2009 9:49:22 AM (GMT-6)


myjoy
Veteran Member


Date Joined Feb 2009
Total Posts : 686
   Posted 8/10/2009 11:35 AM (GMT -6)   
I've found that chiropractic makes my symptoms worse. I have stopped going.
DX fibromyalgia 2007, osteoarthritis, obsessive-compulsive disorder OCD, depression, anxiety, sleep apnea, hysterectomy.

fluoxetine (prozac), abilify, trazodone, lorazepam, prilosec, nabumetone, hydrocodone, c-pap machine.


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 14649
   Posted 8/10/2009 12:03 PM (GMT -6)   
I agree with you, myjoy.  I used to see a chiropractor...a very good one...and this is what happened to me.
 
I walked in to my chiropractor's office and almost couldn't walk out.  He adjusted me and left the room.  I was in horrible pain and almost couldn't get my slacks back on because I couldn't lift my legs!  I shuffled out and the pain felt like someone was driving a stake up throught my spinal column and I thought I was going to pass out.  It caused me to break out in a sweat.
 
When I got home, I laid down in bed with ice on my back.  It was right around Christmas and I tried opening cards to get my mind off the pain but the tears were streaming down my cheeks.  When I tried to get back out of bed to use the bathroom,  I couldn't!  The "electrical shocks" that ran up my spine wouldn't allow me to get in a sitting position.  I asked my husband to get me a pan...just in case I had to use it. 
 
I decided I had to give it one more try to sit up.  If I couldn't make it, I was going to have my husband call the emergency squad.  I made it...barely...and slept sitting up for 1 1/2 years until my back felt good enought to lie back down again.  Boy! did I learn a lesson.
 
I really question this procedure.  Many of us have arthritis in our spines, disc problems, etc.  Also, if it is this compression of the spine that is causing fibro, why do we have so many young people on the forum with fibro? 
 
Lastly, I Googled this and the only place you hear about this procedure is on this doctor's web site.  That puts a red flag up for me.
 
Sherrine
 
 
 



Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Post Edited (Sherrine) : 8/10/2009 3:13:18 PM (GMT-6)


XML
New Member


Date Joined Dec 2008
Total Posts : 18
   Posted 8/10/2009 3:31 PM (GMT -6)   
Well I obviously didn't do a good job in my overview. It's a pity. It makes me think some people want to stay with and hold onto their condition. Perhaps it does something for them that I don't understand. Conventional treatments leaves a lot to be desired = life-long suffering. Who wants that? Why people want to pooh pooh new things out of hand brings a tear to my eye. But everyone is entitled to their opinion. Perhaps they feel they have been betrayed in the past and help is not possible. Who knows? I still take my hat off to those who go out and try to help others despite all.

solar powered
Veteran Member


Date Joined Nov 2007
Total Posts : 532
   Posted 8/10/2009 4:01 PM (GMT -6)   
I am not endorsing this because I don't know anything about meningeal decompression technique but the premise for doing it may not be so far-fetched. I was reading an article in July 2009 issue of Fibromyalgia Network magazine about FM and a condition called intermittent positional cervical cord compression or PC3 which would be along the same lines as meningeal compression. Basically it says that when your spinal cord doesn't have enough room that it gets squished which leads to sleep disruption and FM type symptoms such as pain, headaches, dizziness, etc. They treat it with meds, PT, postural awareness, etc. Kind of interesting. Also I want to say to all of you out there that have had a bad chiropractic experience I am sorry for that experience. I've had one of those myself but I now go to a chiro that is specially trained in physical rehab and orthopedic chiropractic among other things. He is the only one that has been able to help me out of all the other therapists I've seen. I so wish I could clone him and give you each a copy. Lisa
Life is the ultimate contact sport. Train accordingly and play hard.


XML
New Member


Date Joined Dec 2008
Total Posts : 18
   Posted 8/10/2009 4:09 PM (GMT -6)   
Thanks Lisa. If you could clone him send me the first copy.

I've searching and calling around and finally found the website to get more details about
Meningeal Decompression.

Here it is:

http://www.stopfibro.net/

It seems this is a lot more well known than I thought.

myjoy
Veteran Member


Date Joined Feb 2009
Total Posts : 686
   Posted 8/10/2009 4:23 PM (GMT -6)   
XML said...
It's a pity. It makes me think some people want to stay with and hold onto their condition. Perhaps it does something for them that I don't understand.

What an incredibly rude and insensitive statement. Two people said they have more pain with chiropractic - and this is your conclusion? Those of us with fibro are realists - we don't just get talked into every new treatment that comes along on one fellow's say-so.
DX fibromyalgia 2007, osteoarthritis, obsessive-compulsive disorder OCD, depression, anxiety, sleep apnea, hysterectomy.

fluoxetine (prozac), abilify, trazodone, lorazepam, prilosec, nabumetone, hydrocodone, c-pap machine.


XML
New Member


Date Joined Dec 2008
Total Posts : 18
   Posted 8/10/2009 4:38 PM (GMT -6)   
I was referring to trying out new things. Don't get so uptight. Life life for the joy it can bring. We are all in it together... right I feel your pain, that's why I have made it my life's work to find real helpful solutions to life, not just for myself but others too.

AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1561
   Posted 8/10/2009 6:05 PM (GMT -6)   
The statements that people here choose  to "hold on to their condition" and "perhaps it does something for them" because they don't wish to try chiropractic care is enormously insensitive and insulting.  Please don't judge other members' choices and insult them on this board.
"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
Fibromyalgia, 2 back surgeries, Meniere's Disease, 30+ kidney stones, GERD, IBS, Asthma, Allergies, Endometriosis, Heart Arrythmia, Myofascial Pain, TMJ.
 
 
 
 
 
 


XML
New Member


Date Joined Dec 2008
Total Posts : 18
   Posted 8/10/2009 7:13 PM (GMT -6)   
Okay... well I'm very sorry. I didn't mean to upset anyone. Truly I didn't. Please accept my apologies. Can we start over?

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 14649
   Posted 8/10/2009 7:35 PM (GMT -6)   
If people are interested in finding out more about this, they can Google it.  The doctor you are mentioning seems to be the only one doing this procedure.  That, to me, sends up flags.  Trust me.  We have seen things like this come on the forum fairly regularly.  Everyone has the "answer" for fibromyalgia...everyone but the medical community that has been dedicating their lives to finding what is causing this problem.  I stand by science and scientific proof any day. 
 
I checked out the National Institute of Health and the Mayo Clinic and there is no mention of this technique. 
 
I spend many hours a day trying to help people so I guess you could say this is part of my life's work too.  I keep an open mind and I check things out before I make statements.  I did check this out and posted my opinion.  If I ever I see that the medical community is heralding this procedure, I will be the first to let the members know.  Besides, it will be all over the news.
 
Please do not post the doctor's name on this forum.  I will continue to delete it.  I am very uncomfortable having doctors' names posted because it could cause problems for HealingWell.
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Post Edited (Sherrine) : 8/11/2009 10:57:20 AM (GMT-6)


XML
New Member


Date Joined Dec 2008
Total Posts : 18
   Posted 8/10/2009 9:07 PM (GMT -6)   
Sherrine,
I'm right there with you. If I come across any more news I'll post it up. Sure thing on no Drs names.
Thanks for the work you do

FibroBear
New Member


Date Joined Sep 2011
Total Posts : 1
   Posted 9/18/2011 10:47 PM (GMT -6)   
@XML... I'm sure from the previous replies, you can guess what I'm upset about and I thank Sherrine for her tactful and diplomatic response.

I appreciate that you apologized, but I'm not sure if you actually appreciate how assumptions and stereotypes affect people who have likely fought for years to convince others that they are, indeed, truly ill and in pain. Your post reminded me of the countless times I've had to re-educate the professionals who I choose to include on my team. I've heard all kinds of "cures" including, if you'd just be more active, perhaps if you exercised more, have you tried (insert any product or therapy that comes to mind).

If you really would like to better understand what people with fibro live with, pls take a moment to read the "Letter to Normals" http://fmscommunity.org/lettertonormals.html or just Google letter to normals.

Toomuchtotake
New Member


Date Joined May 2011
Total Posts : 8
   Posted 9/19/2011 1:34 AM (GMT -6)   
I'm right there with Sherrine on this one.  I hobbled in to the office, hoping for relief after fighting with back problems for a year and they had to wheel me out.  Apparently, the adjustments ruptured the already herniated disc.  I could not walk to the specialists office the following day.  I was in the hospital for 2 weeks for surgery on the L4-L5 disc.  
 
I am all for looking and trying different things to help myself, but to imply that I WANT to stay this way, and NOT try anything new, is wrong.  nono   Everyone is different.  Everyone responds to different treatments and some of us know what we can and can't do to help ourselves.  I would be very apprehensive to go back to a chiropractor, if in fact they would even TOUCH my back after all the problems I have had and now have.
Asthma, COPD, GERD, RA, Fibromyalgia, Spinal stenosis, Psoriasis, Mitral valve prolapse, Degenerative disc disease, chronic gastritis, sleep apnea, Diabetes. Cushings? Being tested now.

Post Edited (Toomuchtotake) : 9/19/2011 1:43:03 AM (GMT-6)


puppylover
Veteran Member


Date Joined Feb 2009
Total Posts : 665
   Posted 9/19/2011 9:43 AM (GMT -6)   
Thanks Sherrine!

I went to a chiro who could fix me for 32 treatments at $200.00 each. It was some kind of decompression therapy. Maybe it could have helped me but my insurance wouldn't pay and we definitely do not have that kind of money.

My question is, "How did he know it was going to take exactly 32 treatments?" This was without any xrays and a 5 minute examination.
Puppylover
And on the eighth day God created Golden Retrievers.

applevenus
Veteran Member


Date Joined Aug 2011
Total Posts : 934
   Posted 7/5/2012 9:31 PM (GMT -6)   
I'm researching (as always) and came across "meningeal decompression." And as always, HealingWell is a great source of information and reason.
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