Vitamin D Deficiency

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Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 8/15/2009 10:50 AM (GMT -7)   
Since we have a lot of newbies, I'm posting this again.  I'm also putting this in the Fibro 101 thread.  I do think it is important.
 
I have mentioned this before but I think I'll bring this up again.  I was diagnosed with low vitamin D last year even though I was taking 1,000 IU a day.  My doctor upped my dose to 1,400 IU daily and I was still deficient.  Then he upped it to 2,300 IU a day and I STILL am deficient...I just found out today.  So now he wants me to take 3,500 IU a day.
 
Many with fibro and chronic fatigue are deficient in vitamin D.  Since I started taking the higher doses of D, my pain and fatigue seems to have decreased.  The jury is still out on whether or not this is just a good period for me with the fibro OR if it's from the added vitamin D.  I will know for sure in a few months when the rainy season hits here in Florida.  But, today it is a drizzly day and I don't have the extra pain I usually do!
 
Anyway, it might be good to ask  your doctors about having the blood test to check your vitamin D levels.  Vitamin D (make sure you use D3) is very inexpensive.  It would be wonderful if this could help many members on this forum so I wanted to share what was happening with me. 
 

Vitamin D & Muscle Pain:

Low vitamin D levels can cause muscle pain and weakness. Studies show that as many as 25% of people with fibromyalgia (FMS) and chronic fatigue syndrome (CFS or ME/CFS) have low vitamin D levels, and that supplementation may help lower pain levels in some cases. One study shows that vitamin D-deficient people need twice as much narcotic pain reliever as non-deficient people.

Your body needs vitamin D to help with calcium absorption and for bone growth and strength. Along with calcium, vitamin D protects you from osteoporosis.

Vitamin D Dosage:

Some FMS and ME/CFS experts recommend between 1,000 to 2,000 IU of vitamin D daily, which far exceeds the FDA's recommended daily allowance. In fact, the National Institutes of Health considers 2,000 IU the highest tolerable daily amount. However, recent discoveries about the importance of vitamin D for overall health are changing opinions about how much is enough. Make sure to talk to your doctor about how much vitamin D you should be taking. If you take a high dosage, your doctor may want to test your levels periodically.

Vitamin D in Your Diet:

Vitamin D is naturally available in eggs, Swiss cheese, and several fish, including salmon, mackerel, tuna and sardines. You also get it from sunshine. Food makers add it cereal and milk to help prevent rickets in children.

Side Effects of Vitamin D:

Too much vitamin D is potentially toxic. Side effects:

  • Nausea
  • Vomiting
  • Poor appetite
  • Constipation
  • Weakness
  • Weight loss

Your doctor can help guide your vitamin D regimen.

 
Sherrine 

Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 8/15/2009 11:25 AM (GMT -7)   

I didn't notice any differance when I took the Vitamin D that my Rheumy gave me.

I notice a little bit when I take iron like I suppose to.

HARA


puppylover
Veteran Member


Date Joined Feb 2009
Total Posts : 825
   Posted 8/15/2009 7:49 PM (GMT -7)   
Thanks Sherrine.  I am going to my doctor on Tuesday and I am going to ask for this test.
 
Puppylover
Fibromyalgia, arthritis in spine and hips, IBS, Raynaud's syndrome, hypertension
 
On the eighth day God created Golden Retrievers.


LisaPunk
New Member


Date Joined Jun 2009
Total Posts : 13
   Posted 8/17/2009 7:59 AM (GMT -7)   
i take 5000IU a day. i wonder if thats excessive.
last time i had bloodwork done i had basically no vit D in me. that was a while ago (a year??)
i take 3000IU in themorning and 2000IU in the evening.

LisaPunk
New Member


Date Joined Jun 2009
Total Posts : 13
   Posted 8/17/2009 7:59 AM (GMT -7)   
oh PS. i havent noticed any effect on pain or fatigue regardless of how much vit D i take

Binki
Regular Member


Date Joined Jan 2009
Total Posts : 386
   Posted 8/17/2009 8:31 AM (GMT -7)   
I get my vitamin D levels checked at least once every year. I am now on 5000iu of Vitamin D3 to keep me at a normal range for women in my age group. I think it has helped with my energy/pain level, but I still have many a diffucult day.

I get my vitamins on iherb.com.
Lori  
 
Fibromyalgia, Atypical Trigeminal Neuralgia, Gastritis
 
300mg Gabapentin, 50mg Pristiq, Vitamin D3, Vitamin E, Ultracet


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 8/17/2009 9:58 AM (GMT -7)   
I'm like Binki.  I have my levels checked twice a year.  This last time I finally made it in the low-normal range but he wants me to stay at 3,500 IU a day.  Remember, I live in Florida so I get lots of sun, too.  I was blown away when I found out I had a vitamin D deficiency with all the sun I get!
 
You can take too much, too, so be sure to have your doctor check the levels so you are keeping it in a good range.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 8/17/2009 3:06 PM (GMT -7)   

Sun is only suppose to help what Vitamin D you already have in your system, help go through your blood stream. Whan I frist started taking Vit-D the Rheumy gave me 50,000IU once a week for 4 weeks. Now I'm down to 800UI everyday. Just my two sense.

HARA


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 8/17/2009 3:39 PM (GMT -7)   
Hara, when the ultraviolet B rays hit your skin, a reaction takes place that allows your skin cells produce vitamin D from sun exposure.  If you use suntan lotion, you will not get enough sun to produce vitamin D.  They suggest that you spend 15 minutes in the sun with no suntan lotion.  I do that but still was deficient. 
 
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Post Edited (Sherrine) : 8/17/2009 4:44:20 PM (GMT-6)


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 8/17/2009 3:45 PM (GMT -7)   

I try and get out in the sun for about that same time.

HARA - My Vitamin D along with the pills helped alot.

 

 

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