Confused and Scared

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MichelleDT
New Member


Date Joined Aug 2009
Total Posts : 1
   Posted 8/17/2009 9:58 AM (GMT -7)   
Hello everyone,
 
My name is Michelle I am new here. I was just diagnosised last month in July. Saying Im scared is a bit of an understatement ~ more like terrified! These continuous changes, ups and downs are really difficult to deal with. I have read many different forums, just trying to get an idea of what others are experiencing. Sometime I feel like I have lost total control over my body, it just does what it wants. When I don't think Im stressing, I really am. I try not to, some feel that it just cause Fibro symptoms to worsten?!
 
Does anyone know of how long flare-ups usually last? Has anyone had any fertility issues and vaginal spotting as a symptom? Of course, I've gone to the Dr. and she tells me its nothing. I just thought I'd get other opinions.
 
Thanks everyone! :-)

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 8/17/2009 10:15 AM (GMT -7)   

Hi, Michelle, and welcome!  Flares can last a few days to many months!  I've had some last as long as six months but, when I have a flare, I try not to dwell on it too much.  I know it will get better eventually and I hope it will be the next day.  That's how I keep going.  Thinking about the pain and worrying about it will only make the pain worse.

Fertility issues don't seem to be a problem.  Many on here have children and I have three, myself.  I have never had spotting due to fibro, either.  You said you went to your doctor.  I think I'd find another doctor.  It isn't normal to be spotting, in my humble opinion.  I'm not a doctor but I know I'd see a gynocologist just to be sure.

Be sure to check out the Fibro 101 thread...the first thread on the forum.  There are links to good info about fibromyalgia, including a list of symptoms, and I think  you will learn a lot.  The more you learn about this illness, the better you will be able to control it and have a full and enjoyable life with fibro. 

I'm so glad that you found us and joined in!  I hope to hear more from you soon.

Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


crazyoldcatlady
Regular Member


Date Joined May 2009
Total Posts : 194
   Posted 8/17/2009 10:19 AM (GMT -7)   
Hi Michelle -

I don't really have any answers for you but I just wanted to welcome you to the group, and let you know that we do understand your concerns and care about you! Fibro is a difficult diagnosis to get your head around at first. I'm sorry you are having such a difficult time. Yes stress can make fibro symptoms worse, and fibro symptoms can make stress worse! We all just have to learn to pace ourselves and find tme to relax, and do our best to get plenty of rest.

I take 100 mg imipramine 2 hours before bed to help me relax and sleep better. A muscle relaxant like Flexeril can help with some of the pain and other crazy muscular symptoms like twitching and cramping. I used it for quite a while but now I've been told to stop because of a stomach problem. I've never tried any of the "fibro" medicines like Lyrica or heavy-duty pain meds, but I know a lot of fibromites use them. I try to avoid pain meds and use gentle massage and warm baths; it helps ease the pain as well as relax me.

I do have fertility issues with endometriosis. I have no proof of course that it is related to the fibro in any way.

Anyway I'm glad you found this place. The folks here are wonderful and you can really learn a lot. The more you know the less scary it can be.

Blessings to you...
Donna
 
I would be unstoppable...
                           if I could just get started.


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 8/17/2009 11:00 AM (GMT -7)   
Hi Michelle, Sorry to hear you have fibromyalgia

Welcome to our " fibromite family", This is a great place to vent or ask questions.

Yeah, the flares can be beasts. Flares vary in length and severity. It is really important
that you monitor your energy level and try not to overdue. Don't be afraid to ask others
for help. This crazy disorder will prove to you what a strong woman you are. Listen to your
body, if you need rest, REST. Be good to yourself. Take long hot baths. Relax.

I am 57, so I am beyond the fertility issues. I don't know if medication messes up
menstrual cycles or not. Are you on any medication ?

Keep us posted

Robin
 
 possible MCTD, Raynauds, Fibromyalgia, Osteoporosis, Degenerative
 Disc Disease, Osteoarthritis, High Blood Pressure, Migranes and
 Pseudothrombocytopenia, biopsy shows a Scleroderma variant
 MEDS: Methotrexate, Savella, Boniva,Lisinopril, Folic Acid, Flexeril, and
 Vitamin Supplements


Jokat
Regular Member


Date Joined Feb 2008
Total Posts : 278
   Posted 8/17/2009 12:41 PM (GMT -7)   
Hi Michelle,
 
First let me tell you to SETTLE DOWN!! Worrying and stressing are only going to aggravate your flare....
 
The vaginal spotting is probably a response to your stress.....Just a guess though....
 
 
JoKat
 
Our attitude towards life determines life's attitude towards us. {Earl Nightingale} 
Fibro since 2005


Irish Babe
Veteran Member


Date Joined May 2007
Total Posts : 1371
   Posted 8/17/2009 2:01 PM (GMT -7)   
Hi, Michelle, and welcome to the family. It can be confusing when you don't know what it is or when you get the dx and feel like you don't know what to expect. My first suggestion to you would be read as much as you can, from books and the internet. A good place to start is the 'Fibro 101' at the top of the first page. There are several topics there you should find helpful and informative. Ask whatever questions you can think of and someone should have some ideas and suggestions that may help.
 
If you aren't getting the help you need from your dr, it might be time to look for a new dr. I have had FMS since childhood, I had a horrible time w/ my cycle, too heavy for too long, several times a month, and of course, spotting. My own personal 'Hat Trick'. I was on med for that before I even know what 'it' really was. I had a miscarriage w/ my first pregnancy, and spotting thru both of my later pregnancies. I hemorrhaged all those yrs until I finally had an hysterectomy 6 yrs ago. I was anemic till then. I looked for answers for decades, 3 1/2 yrs ago I was finally dx w/ FMS. The list of symptoms that I 'had' were everything that a woman could have. Yet, no dr could connect the dots to come up w/ FMS. I did!!
 
This is not an illness for wimps, we have to be strong to make sure we get the help we need. One of the things I LOVE about this site is we look out for each other. We hold each other dear, we support each other. Sometimes, you just need to know someone else 'knows' what you mean.
 
There are days that will get you down, but like has been said, stress only makes things worse. Make some plans ahead of time to help you deal with stressful times. Make a cup of tea, do some gentle stretches, take a walk for 20 min, something you like and hopefully it will help lower your stress level.
 
A flare can last for a couple of hrs to months, not pleasant, but not uncommon. Treat yourself kindly, pace yourself, ask for help. We are so used to doing everything, we need to adjust our thinking. Sometimes this is the hardest thing to 'learn', but so necessary for our lives.
 
God bless.  Alice.
 

Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 8/17/2009 4:02 PM (GMT -7)   
I'm sorry you are in so much pain and that you are scared. After a few months you will be a veteran at this. I'm still learning also, but right now my lower back, hips, butox, and there's pain that goes from my pelvis up and around right where my upper leg bends. Now that hurts worse than the Fibro at the moment.
 
HARA
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