fibromyinyourhead

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boo32
Regular Member


Date Joined Jun 2009
Total Posts : 222
   Posted 8/19/2009 4:00 PM (GMT -7)   
hi ladies and gents,
 
Once again i have been told my anxiety and depression are the root of all my problems.
Although i have yet to find evidence to suggest anxiety and depression can erode your spine. I was having counselling and she said it's just pent up anger from a violent childhood that has me the way i am.......
 
I just don't know where to turn, i'm trying so hard to help myself but when i go out and get some help it blows up in my face.
I know there are many professionals out there, but i seem to be only able to tap into the ones that don't believe in it.
 
After 2 years of trying to concieve, we've thrown our hat at that as well as i was put on hormone treatment without any monitoring and just ended up with ovarian cysts. Now, after consulting with a homeopath, (who says the cysts are my minds way of making sure i don't concieve) she says i',m in denial and it sounds like i don't even want children.
 
I'm so confused and dissillusioned, and questioning myself all the time, am i actually stuck in such a vicius circle of thoughts thst i am actually in fact making myself sick and i can't see it.
I feel like i'm losing touch with reality, maybe it's all in my head and i'm really nuts....i feel like i;m losing it....i'm whacked out on pain meds and trying to work as much as i can.
It just feels like a losing battle at the moment.
 
My fog is terrible and i have acid reflux back that had subsided for over 2 years.
 
Do i just forget about any help and curl up in a ball away from society, am i actually bringing this on myself.
 
Has anyone a stop button for this ride.....i've had enough and would like to get off now, seriously, meltdown is imminent.
thanks.
boo
BikeBoo, biking with my boo since 1999
Of all the things i've lost, i miss my mind the most! But it has its advantages!
Fibro, spinal arthritis and all that goes with it.
GAD


boo32
Regular Member


Date Joined Jun 2009
Total Posts : 222
   Posted 8/19/2009 4:11 PM (GMT -7)   
just in case anyone is thinking i'm suggesting fibro is in our heads i'm not.
I've had a bad day and will feel differently tommorow, just ranting, sorry.
BikeBoo, biking with my boo since 1999
Of all the things i've lost, i miss my mind the most! But it has its advantages!
Fibro, spinal arthritis and all that goes with it.
GAD


Irish Babe
Veteran Member


Date Joined May 2007
Total Posts : 1371
   Posted 8/19/2009 5:03 PM (GMT -7)   

Boo, I feel so badly that you are feeling so badly. I didn't think you meant 'it is all in your head'. Sometimes we just need ppl to realize what is really going on in our lives, our bodies, and they just seem to blow us off like they know it all - and they don't have a clue. Some drs are so good, and some drs, you just want to scream.

I will keep you in my prayers (if you don't mind). I am also sending you my best wishes for real answers and help from your drs.

God bless.  Alice.


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 8/19/2009 5:16 PM (GMT -7)   
Dear Bo32; Go ahead and rant. We all do. The "all in the head" theme keeps popping up, doesn't it? It can be so very frustrating Let me play "Devil's Advocate" for a minute. I believe most of us have lived through tremendous trauma, at one time or another in our lives. I know that babies that don't receive love and kind touch, often die. Failure to thrive. This has been documented in "war torn areas"' where orphanages for parent less children are placed, which are understaffed and all that is available is food and shelter. No love. They curl up in a fetal position and refuse food. We are not unlike these children. We have been through so much. The seat of all hormonal functioning is in the pituitary gland "in our heads". This gland regulates the functioning of all other hormonal systems. If we have spent out formative years in a fight/flight state, then yes, in some ways it's the over and under activity of certain hormones that causes us to experience stress and other related problems. Back to me, a depressed fibromite. I believe I have "learned helplessness". I feel as though nothing I can do will positively affect the outcome of my experience, so I do next to nothing. What's the point? The human growth hormone production is regulated by the Pituitary. HGH is essential to repair of injured tissue. If we have too little HGH, as I believe we do, then we don't heal properly. Injuries to our minds and bodies don't ever completely resolve themselves. Therefore, if you want to attribute the pain and fuzziness (fibro-fog) to faulty hormone production, resulting in an inability to heal, well, I guess one can attribute this disease to the site of hormone production, which happens to be "in our heads". But we don't heal, and we do experience pain from these old injuries compounding themselves, and we suffer both mentally and emotionally. How to break the cycle. Avoid stress. Get your environment to be as least stress provoking as possible. This is the path I am now attempting. I give up sometimes. there are so many things out of my control. So many pop up problems that weren't anticipated. So, although I know it isn't the best recourse, but sometimes I just go to bed and try to forget all about the world spinning around me, entirely out of my control. Simplified; some days are better than others, and we keep getting a shot at a better day.
Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 952
   Posted 8/19/2009 5:44 PM (GMT -7)   
I don't understand why they think so much of our pain is "in our heads". All my dr. does is push pills which I
finally got tired of and went herbal. On my last and only visit this year he wanted to put me on lyrica for the
fibro and wanted to test me for depression.  Honey, I'm not depressed, just in pain.  Done a lot better with
the herbal route.
 
If what Tyno says is right, I may not be having the "fog" as I take HGH. It's a hemopathic with HGH and protease.
 

Jhemi
Regular Member


Date Joined Jul 2009
Total Posts : 223
   Posted 8/19/2009 6:18 PM (GMT -7)   
I agree with Tyno..I too try to make my day as stress free as possible. My doctor has me on Neurontin now and it's allowing me to sleep again.

American Woman
Regular Member


Date Joined Jul 2009
Total Posts : 96
   Posted 8/20/2009 7:02 AM (GMT -7)   
Hi Boo
I'm sorry you are feeling so bad. I hope somewhere out there is a dr. for you who will understand your pain and all else that goes with fibro. I too was told I was probably having major anxiety attacks or panic attacks, but it was said in a way that didn't make me feel like I was just making up the pain and how I was feeling. I really talked to my dr. and together we made the decision to see some specialists (endocrinologist and rheumotologist.)
I hope you can get your dr. to understand what you are feeling (pain, fatigue, etc.) and that he will do what is right for you
I have found that talking to everyone on this forum has helped me more than anything else.
They seem to know exactly what I'm talking about when I'm confused about how things are progressing or what exactly panic and anxiety is all about. I hope you can get your dr. to understand what is going on with you.
Hope you are feeling better soon.
American Woman

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 8/20/2009 8:05 AM (GMT -7)   
We all know that having a chronic illness really challenges our coping skills. It is so
easy to become angry, and upset when we go to doctors that don't understand the pain.

I have finally found a couple of good doctors who really listen. Keep looking Boo,
there are some out there.

In the meantime working daily to reduce your stress level will help with the pain.
For me accepting the fact that my--illneses were not just going to disapear and I would
have to learn to live with them has helped. Coping is such a big part of it.

I pray that you find a good doctor. Be kind to yourself.

Robin
 
 possible MCTD, Raynauds, Fibromyalgia, Osteoporosis, Degenerative
 Disc Disease, Osteoarthritis, High Blood Pressure, Migranes and
 Pseudothrombocytopenia, biopsy shows a Scleroderma variant
 MEDS: Methotrexate, Savella, Boniva,Lisinopril, Folic Acid, Flexeril, and
 Vitamin Supplements


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 8/20/2009 10:52 AM (GMT -7)   
Well, here is my humble opinion.  You are seeing a bunch of whackos!  I can't believe that homeopath thinks that your mind is causing the cysts!  ~I'm hearing the theme to the Twilight Zone playing right about now~
 
Please, please find a good doctor.  Here is a site that just might help you. 
 
 
This isn't all in  your head.  You know, I had a cyst when I was pregnant that was ten inches in diameter and weighed four pounds and I needed surgery to remove it, along with my fallopian tube and ovary, when I was five months pregnant.  With the thinking your doctor goes by, I guess I really didn't want that child and my mind was trying to kill it.  That's completely nuts! 
 
Don't put up with that nonsense.  You are throwing your money away going to people like this.  You are their boss!  If you owned a company and had lousy workers, you would get rid of them and get new workers.  If they didn't work out, you'd fire them, too.  Your health if far more important than a job so get rid of these people.  You are not a mental case.  You are a person with an extremely painful illnesses and you need help so you can function and live your life to the fullest.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


boo32
Regular Member


Date Joined Jun 2009
Total Posts : 222
   Posted 8/20/2009 11:10 AM (GMT -7)   
hi guys,
thanks so much for listening and giving such good advice. I'm working on the stress and am seeing a new doctor regarding my concieveing attempts, a female doc who i hope will have a broader view of things.
Tyno, you have such great advice there, i really agree with it.
Sherrine, living in ireland doesn't give me the amount of choice i'd like in doctors, but guess what happened in work today.
A lady came in a and i guessed she had fibro, after talking for a few minutes she said there was a support group in my county and she has the name of some great doctors up the country that i could be refered to if i wanted.
Things are looking up today, i know i'd feel better, nothing ever lasts too long, even the bad days.
Thanks again guys and i hope i can be of help to others too.
boo
BikeBoo, biking with my boo since 1999
Of all the things i've lost, i miss my mind the most! But it has its advantages!
Fibro, spinal arthritis and all that goes with it.
GAD


Irish Babe
Veteran Member


Date Joined May 2007
Total Posts : 1371
   Posted 8/20/2009 11:59 AM (GMT -7)   

Boo, you sound sooo much better today. I am so glad. How wonderful that the woman came into your work today. A local support group and info on some 'good' drs, EXCELLLENT!! Sometimes our 'angels' don't have visible wings. :-)

I wish they had a support group around here, there was supposed to be one at our local hospital. I had called the # that I saw in our newspaper, the lady at the hospital never heard of it. She checked all their listings, nothing. I looked into this a couple of yrs ago, that was when we just got our computer. I finally tried to find something on the internet. Luckily, I found this site. What a blessing!

I hope this is a new beginning for you.

God bless.   Alice.


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 8/20/2009 2:40 PM (GMT -7)   

Boo, I'm really happy that you found a support group and they can steer you to a doctor that believes in fibro!  That's half the battle! 

I'm sorry I forgot you lived in Ireland.  I gave you a U.S. site... shakehead    But you are doing just fine without it, now!

Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Littlesrebel
Regular Member


Date Joined Jul 2009
Total Posts : 163
   Posted 8/20/2009 3:21 PM (GMT -7)   

Forget the Psych stuff for now. You don't need to re-live your past. One day I wrote it down, went to the church and gave away my past. I don't need the extra baggage. You don't either esp. if your trying to get pregnant. Cysts are normal. It's not a creation of your mind. It's just a cysts that can be taken out.

If it's true that you can't conceive look into getting a surrogate, adoption, legal guardianship, foster children. There are so many children out there waiting for homes. Maybe you can save one of them and give them a better life. rolleyes


Fibromyalgia, Chronic Myofacial pain syndrome, Malaise, Fatigue.
 
 
 


Littlesrebel
Regular Member


Date Joined Jul 2009
Total Posts : 163
   Posted 8/20/2009 3:29 PM (GMT -7)   

Since your counselor says "it's just pent up anger from a violent childhood that has me the way i am", then tell her how do you get rid of it? Remember a counselor is just another human being. They don't know everything.

Now this counselor has you worried about your childhood. I would tell that counselor to back off and change the tune to more positive things in counseling. OR get another counselor, or stop going, or really get rid of your past. Let it go. What you have is better now. Doesn't matter. The past is gone. Live today each day.

Listen to that song "I'm walking on sunshine." turn


Fibromyalgia, Chronic Myofacial pain syndrome, Malaise, Fatigue.
 
 
 


Littlesrebel
Regular Member


Date Joined Jul 2009
Total Posts : 163
   Posted 8/20/2009 3:31 PM (GMT -7)   
Oh I forgot to add FM is not is our heads. FM is real. It's not anxiety or depression.
Fibromyalgia, Chronic Myofacial pain syndrome, Malaise, Fatigue.
 
 
 


Littlesrebel
Regular Member


Date Joined Jul 2009
Total Posts : 163
   Posted 8/20/2009 7:42 PM (GMT -7)   

I'm young with many disorders and worry about when it comes my time to think about having children. My brother told me maybe it's just not for me. My parents told me don't worry since my brother has kids. The Dr's. tell me I would have to prepare a yr in advance. My husband is aging. I love to work. I can't see where children could fit in our life. My husband has not asked for kids yet. He just wants me to get better. I have heard people tell me I would be a great Mom.

For people out there I just think kids are a blessing. I read even in Bibilical times women were barren. It's not something new. It's a gift. A man can't bring a human into the world only us women. We are really special I believe for having the ability as women to have kids. I don't even know if I could adopt with my illnesses. I wonder. I would like to if I could not have my own. Look into it (adopt) if you can't have a child. I have a mansion, cars, a profession, and a family. I would give it all up to have a child. I know you probably feel the same way. I'm really praying for you that whatever happens is best. Your husband is so supportive. Your so lucky to have a good husband.


Fibromyalgia, Chronic Myofacial pain syndrome, Malaise, Fatigue, Migranes, Cervicalgia.
 
 
 


Jesry
New Member


Date Joined Aug 2009
Total Posts : 17
   Posted 8/20/2009 11:35 PM (GMT -7)   
Yeah, it's depression and anxiety. Right! Saw a therapist who said the same thing.

My doctor said she didn't think so, pushed me to get a second opinion...turns out my primary psych dx is ADD/HD. This and fibro causes a situational depression and anxiety. If the root cause is not recognized and treated, or at least recognized and legitimized, this in itself causes the depression and anxiety syndrome. Something about self-concept and self-esteem...

boo32
Regular Member


Date Joined Jun 2009
Total Posts : 222
   Posted 8/21/2009 1:04 PM (GMT -7)   
hi,
littlestrebal, thank you for the advice of giving way my past, i think something symbolic like you did would be very beneficial.

I didn't suggest fm was in our heads just in case you were offended, i was refering to the attitudes of the professionals i've seen.

I have reconsidered counselling, but there are some things that are hard to let go of and just get over.
I'm sure when your time comes to consider a family it'll all work out. My family also tells me that perhaps it's not meant to be. This is something i am happy to accept.

I wouldn't qualify for adoption or fostering, which is also a very personal decision.
It's good advice about preparing yourself for a family, perhaps not a year in advance, but there are loads of things you can do.
Good luck and i hope all stays well for you.
boo
BikeBoo, biking with my boo since 1999
Of all the things i've lost, i miss my mind the most! But it has its advantages!
Fibro, spinal arthritis and all that goes with it.
GAD

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