Sorry to hear you are not doing well at this time.
Here's my story: I think I've had fibro since my 20's. I'm an A-type personality, always wore out fast but kept on going. I married young had two kids and divorced after 14 years. An emotionally wrenching time for me. I also had an auto accident at 27, whiplash and the pain that goes with it. I remarried and acquired a wonderful DH and three more children that I helped raise. Pain and exhaustion getting worse but I just keep on keeping on. I wasn't dx"d until I was about 45. I went to college at 48 then worked until I was 60 and just could not do it any more. How bad is it--I think my name says it all. Yo-yo. I have good periods and not so good periods. I don't use a cane but I do have a handicap sticker and I use it when I need it. I don't use any meds, I have major sensitivities to most meds, I use suppliments , work with a NP, exercise when I can, and pace myself. One of the best ways I've found is to set my kitchen timer on my range for 20-30 minutes, and move around doing housework etc. and when the timer goes off, set it again for the same amount of time and go do sitdown stuff. I read, use the computer, pay bills, and other quiet activities. The timer seems to motivate me not only to move around so I won't stiffen up but to get me out of my easy chair or away from the computer( it can be addicting!) and also to actually get someting done ---ahh! a feeling of accomplishment to my A-type personality.
Yes, you will have hard times but you will have good times,too. Keep coming to the forum, you have friends and lots of support here.
I had growing pains as a child. My Dr's warned my parents of a CNS problem that would develop later in life. I was sent to Urgent care locked up in fetal position a youth. I would get locked up huched over too when I was younger. Had mild Scoliosis. Went through life with migranes since my period. I would cry during them. Unbearable. Felt like I had arthritis during my period times on my legs. Never had cramps or other PMS symptoms. Stayed active. Exercised a lot. Felt fatigued in college. Had to take naps. My fatigue and legs would hurt with migranes daily then on. Saw many Dr's. Just recently got diagnosed with FM. I'm in my 30's using a cane. That's about it.
I really appreciate so many of you responding. Thanks!! I really don't dwell on what the future holds for me as far as my fibro is concerned but it does cross my mind. I suffered from severe growing pains when I was a kid - don't know if that has anything to do with this or not but I know that somebody else mentioned it. My father passed away from cancer when I was 13 - major sleep issues since then - that reminds me of the other medication that I am on that I couldn't remember on my first post - Trazadone. That is a life saver for me also. I really think that traumatic events are what set off my fibro, abuse (sexual as a young kid but not by parents) and later physical and emotional abuse by 2 boyfriends and then I was attacked and severely beaten by a drugged up chick who thought I was somebody else - this was all by age 30!! I guess those things put together plus being a type "A" person might have just put me over the top. Who knows??
I am hoping that the savella will work and sooner than later. Only on day three but so far no side effects. Hoping it stays that way. I was also given an rx for some flexeral (sp?) that I need to pick up after work. I heard that makes you really tired so you basically just need to take it at night??