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Littlesrebel
Regular Member


Date Joined Jul 2009
Total Posts : 163
   Posted 8/20/2009 7:26 PM (GMT -7)   

People who have migraines or insomnia or arthritis should not compare themselves to us FM patients. FM is so debilitating for some. I have to use a cane. Some people on this site can't work, b/c of this.

I would say Lupus, HIV, Cancer is sad for me to have seen and any immune difficiency, because I have personally had family members with it or pass on from it. cry For me all diseases and illnesses are terrible afflictions and cannot be compared. It's sad to see someone all swollen up like a balllon and it's sad see a person in terrible pain in a burn ward. Nothing can be compared.

I don't want to get to the point were I can't work. I have been in situations where I was out of work, b/c of FM and it scared me. My work is my livihood. I love what I do. I respect my job. If I could not work. I don't know what I would do. I feel sadness for those of you who can't work.


Fibromyalgia, Chronic Myofacial pain syndrome, Malaise, Fatigue, Migranes, Cervicalgia.
 
 
 


myjoy
Veteran Member


Date Joined Feb 2009
Total Posts : 686
   Posted 8/21/2009 3:59 AM (GMT -7)   
Thank you for your thoughts. I can't work from my fibro. It's hard to take some days. My trouble is of course pain - but the cognition is a bad problem for me. I worked in an ER....12hour shifts, before I had fibro.

I totally agree about not comparing illnesses - and not comparing people within an illness. I get real tired of hearing about so and so and all she can accomplish even with her fibro. How am I supposed to feel when I hear this? Like a failure in my own illness? I think not - we all have our own cross to bear and it's no one's job to judge another person's suffering.
DX fibromyalgia 2007, osteoarthritis, obsessive-compulsive disorder OCD, depression, anxiety, sleep apnea, hysterectomy.

fluoxetine (prozac), abilify, trazodone, lorazepam, prilosec, nabumetone, hydrocodone, c-pap machine.


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 8/21/2009 6:58 AM (GMT -7)   
I agree. Comparing diseases is like comparing apples and oranges.

I am one who lives with fibromyalgia, degenerative disc disease, osteoarthritis,
osteoporosis, and scleroderma. I may have an overlap of lupus and RA. Each disease
is seperate, but alot of these diseases have similar overlap. My fibromyalgia is very
real and very painful. My scleroderma is very real and very scary. I have a 3 inch
dent in my right forearm and that arm is starting to atrophy, but does not hurt like
fibromyalgia.

No matter what you have , you have to learn to cope and figure out how you are
going to live with it. You can choose to make yourself miserable or you can accept
the fact that things aren't like they used to be. I choose to be happy.

Wishing everyone a happy painfree day, no matter what your affliction is

Robin
 
 possible MCTD, Raynauds, Fibromyalgia, Osteoporosis, Degenerative
 Disc Disease, Osteoarthritis, High Blood Pressure, Migranes and
 Pseudothrombocytopenia, biopsy shows a Scleroderma variant
 MEDS: Methotrexate, Savella, Boniva,Lisinopril, Folic Acid, Flexeril, and
 Vitamin Supplements


American Woman
Regular Member


Date Joined Jul 2009
Total Posts : 96
   Posted 8/21/2009 2:02 PM (GMT -7)   
I agree with Robin that we have to accept what we have and learn to deal with it and to stay positive. I also have osteoarthritis and some days I don't know what hurts worse. I guess if I can feel pain then I am still alive and that makes me happy.

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 8/21/2009 3:00 PM (GMT -7)   
Danib,

Dealing with any illness is not easy. Eveyone has a choice how they deal with it. Mind over
matter does not remove our pain. But having a positive approach in dealing with it does.

How to make yourself miserable

1. Ask yourself repeatedly Why me? Why Me?
2. Dwell on every ache and pain
3. Feel guilty about your illness
4. Believing you are your disease

You have a right to be angry but carrying all the anger is not going to help .
I am sure your friend did not mean to hurt you when she told you It's mind over matter.
She probably thought she was helping.

Danib, I believe you are really hurting and grieving the loss of your good health.
Do what you can do to keep your stress down and stop hanging out with people you believe
make you feel bad.

The acceptance of the illness goes a long way in helping you learn to cope.

No one is dismissing your pain and hurt feelings. Those are real.

I choose to be happy, that does not mean I always am, But I am determined I am
not going to let my iinesses take over my life. I still need to be in control.

I have been through the grief but I can not stay there.

Your in my thoughts danib
Robin
 
 possible MCTD, Raynauds, Fibromyalgia, Osteoporosis, Degenerative
 Disc Disease, Osteoarthritis, High Blood Pressure, Migranes and
 Pseudothrombocytopenia, biopsy shows a Scleroderma variant
 MEDS: Methotrexate, Savella, Boniva,Lisinopril, Folic Acid, Flexeril, and
 Vitamin Supplements


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 8/21/2009 5:21 PM (GMT -7)   
Danib,

How to make yourself miserable points are issues we all deal with. They were'nt meant as
an attack. At some point in our illness I believe EVERYONE of us asked WHY ME? or
FELT GUILT, or DWELLED on our aches and pains. MY point was it does us no good not
to move beyond that. Danib I do understand. I feel your pain, and am sorry if I hurt
you. That certainly was not my intention. My attemts to help you back-fired.

I did not know my initial post about accepting our illnesses and learning to deal with
them would be so upsetting to you.

I read your posts and do not find them to be negative. You are a supportive member of
this forum, and again I am truly sorry if I offended you.

Robin
 
 possible MCTD, Raynauds, Fibromyalgia, Osteoporosis, Degenerative
 Disc Disease, Osteoarthritis, High Blood Pressure, Migranes and
 Pseudothrombocytopenia, biopsy shows a Scleroderma variant
 MEDS: Methotrexate, Savella, Boniva,Lisinopril, Folic Acid, Flexeril, and
 Vitamin Supplements


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 8/21/2009 5:48 PM (GMT -7)   
 
 I wrote this 6 months ago
 
I Mourn
 
I mourn the loss of my good health
and I do feel the grief
 
To lose physical capability
I am still in disbelief
 
Sometimes I feel sad and wonder
Why? Why me?
 
But then I count my blessings
And realize I'm lucky
 
Robin
 
 possible MCTD, Raynauds, Fibromyalgia, Osteoporosis, Degenerative
 Disc Disease, Osteoarthritis, High Blood Pressure, Migranes and
 Pseudothrombocytopenia, biopsy shows a Scleroderma variant
 MEDS: Methotrexate, Savella, Boniva,Lisinopril, Folic Acid, Flexeril, and
 Vitamin Supplements


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 8/21/2009 7:26 PM (GMT -7)   
Thank you


Wishing every fibromite a wonderful weekend !!!!!!
 
 possible MCTD, Raynauds, Fibromyalgia, Osteoporosis, Degenerative
 Disc Disease, Osteoarthritis, High Blood Pressure, Migranes and
 Pseudothrombocytopenia, biopsy shows a Scleroderma variant
 MEDS: Methotrexate, Savella, Boniva,Lisinopril, Folic Acid, Flexeril, and
 Vitamin Supplements


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 8/21/2009 7:49 PM (GMT -7)   
We are both sorry and that's a GOOD THING !!!
 
 possible MCTD, Raynauds, Fibromyalgia, Osteoporosis, Degenerative
 Disc Disease, Osteoarthritis, High Blood Pressure, Migranes and
 Pseudothrombocytopenia, biopsy shows a Scleroderma variant
 MEDS: Methotrexate, Savella, Boniva,Lisinopril, Folic Acid, Flexeril, and
 Vitamin Supplements

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