Saying Hi, I haven't been around for awhile, need to let off some steam.

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jewelrylady
Veteran Member


Date Joined Jun 2008
Total Posts : 717
   Posted 8/23/2009 12:23 AM (GMT -7)   
Hi to all, I have not posted for awhile but I have stopped in to read posts & check to see how you all have been doing.  I have been up & down, dealing with Doctors, need I say more?
 
What does a person have to do to get a Doctor to listen to you?  Stupid question right?  Ok, I am frustrated with all of them.  I told a Doctor that on the forums we try to remember that in each Medical School graduating class, half of the new Drs are graduating in the bottom half of the class.  She told me that there is a saying in Medical School:  "What do you call the person who is graduating in last place in the worst medical school in the country?  "Doctor!!!" I had to laugh at that one.
 
I have been trying to tell Doctors for years that I have a problem with my lungs & I have shortness of breath.  So, naturally, they send me to a cardiologist to have my heart checked.  In the past 3 years I have had 4 echocardiograms, one EKG, a stress test (I failed because I couldn't breath) I have been under the gamma camera, had x-rays, been shot up with dyes & radioactive thingys & you know what they found?  I don't have anything wrong with my heart.  Who knew?!?  So, I have been told by about 5 Doctors, over the last year,  that my problem is, I need to exercise & I am lazy (said politely) & just need to push myself harder.   I would say, but I can't breath!!!!  And they, one and all, said "Well, it will be hard at first, but it has to be done."  Anyway, a Doctor, to placate me said, "ok, we'll do a CT Scan of your lungs."  Guess what?  I have a lot of lung scarring & a breathing function test showed I was only able to take in 68% & breath out the same.  So tell me, am I wrong to feel smug?  Shouldn't I be feeling "Oh no!!!"   I feel vindicated!!!  How weird.
 
I have some muscle problems that I have been trying to get someone to look at, (Heavy Sigh!!!) so I saw yet another Rhuemy, I drove for 2 hours to see him, armed with a list of my symptoms & questions about my muscles.  When I met him he had my chart that my Doctor had faxed over & he had read it.  Wow, for a minute I was impressed!!  But I was wrong, when I told him I had a list of my symptoms & I wanted to talk to him about some of them, he looked at me funny, shook his head & said No!!  He had already dx'd me using my files.  He said: I hate to tell you but you have a very severe case of Fibromyalgia with chronic fatigue.  You just need to exercise more, do low impact & learn to live with it.  He told me he didn't believe there was such a thing as Chronic Fatigue Syndrome.   I was so upset I asked him about my hip muscles, I lost all my hip muscles 4 years ago & can't get up if I squat down.  So I said that was my very first symptom, even before the Fibro, I was working, I was active & then I lost all my muscles in my hips.  You know what he said?  "I probably knew that it was going to hurt, on a subconscious level, & I just stopped using them until they had atrophied."  I could have stayed home!!!!!
 
Last month when I knew I had to go to the pulmomologist, again 2 hours away, I really wanted to ask if I had to be there.  My hair dresser found that very funny but I was serious, I don't think I should have to go & pay them good money to just dx me using my chart. 
I should have listened to myself because after driving 2 hours to get there I saw him for 10 minutes & he said basically in 2 months I want you to have another CT scan & breathing function test done.  That was it.  He called me "Maam" when he came in & said "See you in 2 months, Maam." as he left.  As I followed him out I wanted to say "Just call me 2 because I was you 2:00 appointment."  Let's have some kinda relationship here.  He obviosly didn't even know my name.
 
Well, I do feel a lot better because I know you all understand this kind of frustration & I don't have to worry about being judged.  It is nice to have someplace to come & vent.  Thanks for the listening ear.  Hugs, Denise
 

 I have:  Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety  Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11


Jhemi
Regular Member


Date Joined Jul 2009
Total Posts : 223
   Posted 8/23/2009 2:05 AM (GMT -7)   
I'm surprised he believes there is a "syndrome" called Fibromyalgia. Many do not.

I understand perfectly how you feel about doctor's that won't listen. I went through three of them before I found my family doctor.

One of the doctor's believed everything I had was due to my diabetes and low thyroid. Each time I went in to see him he made me take blood tests for these. He also sent me in for a colonoscopy where they found a polyp that was pre-cancerous. He never even mentioned this to me and when I brought it up he said oh. Like it was nothing...well it was "something" to me!

I had Fibro for almost two years or longer before I was finally diagnosed with it due <in my mind at least> to the incompetency of doctor's.

Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 8/23/2009 2:43 AM (GMT -7)   

I know exactly what you mean when the DR you are with won't listen or don't even know what the hell they are doing. I got one of those DR's to. I can't wait to get rid of him.

You vent all you want. shocked   It's good to vent sometimes because if you don't it feels like you are going to explode.

HARA 


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 8/23/2009 9:06 AM (GMT -7)   

Hi, Denise!  It's good to see you again.  I think I'd do some calling around and find a doctor that treats fibromyalgia patients.  I put this link up a couple of days ago.  Perhaps this would help you.  You are throwing your money away on these doctors.  You already know to do stretching exercises and light exercises but you need more help.  They are not even trying to help you.   I hope this link help you some.

http://fmscommunity.org/findingadoctor.htm

Sherrine 


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


jewelrylady
Veteran Member


Date Joined Jun 2008
Total Posts : 717
   Posted 8/23/2009 5:15 PM (GMT -7)   
Thank you all for your replies.  I have been really down on Doctors lately but I do know there are good ones out there.  I have had some wonderful drs over the years.  My GP is great & really believes me when I tell her about different symptoms & things.  The problem is always the Drs she sends me to.  She dx'd me with Fibro in 2004 & sent me to a Rhuemy in 2005 who also dx'd me with Fibro & CFS.  For my other symptoms she sent me to an internist, this was in early 2006.  The internist ( who I really liked) started by sending me to a Cardiologist to rule out heart problems & off it went.  After about a year the internist moved away & so I went back to my GP who referred me to another Cardiologist in 2007. I had lots of testing done for a lot of stuff again because I now had another Dr to deal with, one of many I didn't like.  My GP went on maternity leave & she had another Dr who took her place for about 3 to 4 months & she started with my heart as well.  Another factor in it taking so long to find some answers is I am sick in bed from about October to March or April.  Total all encompassing fatigue & I feel like I have the flu.  Getting to the kitchen for a drink takes all I have during these month & I have a total nonlife.  Also, since I can't work I have no income.  Thank goodness my husband has been able to keep his job & I have insurance through that.  We have to live very frugally so I tend to wait to see a Dr until I can afford some of the tests that they inevitably have to run.  The one thing all of these Drs have agreed upon is that I do have Fibromyalgia.  It is reall odd to me that they haven't had a problem with it.  The times are changing but there are still 75% of Doctors are no good.  Treat us as lazy, unfocused, totally into living an unhealthy life with no mind capable of reasoning for ourselves.  I have gone back & forth for the last few months about just letting it go & dealing with my health issues myself.  I am ever hopeful though, that something will be found to eliminate the winter illness.  This will be my 5th year of it & I am not looking forward to it at all.  Every year I hope & pray it won't come but it always seems to. 
 
Well, it has been along time since I have spoken about all of this to anyone.  My daughter has Fibro & she understands but no one else does.  You do, that's nice.  Thank you & many soft & gentle hugs to you all.  Denise

 I have:  Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety  Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 8/23/2009 11:21 PM (GMT -7)   
Sherrine said...

Hi, Denise!  It's good to see you again.  I think I'd do some calling around and find a doctor that treats fibromyalgia patients.  I put this link up a couple of days ago.  Perhaps this would help you.  You are throwing your money away on these doctors.  You already know to do stretching exercises and light exercises but you need more help.  They are not even trying to help you.   I hope this link help you some.

http://fmscommunity.org/findingadoctor.htm

Sherrine 

Sherrine thanks for putting this link up. You do not know what you just did for me. I hope to find a new DR. and Rheumy also.
HARA


vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 8/24/2009 5:30 AM (GMT -7)   
I saw a cartoon once of a patient holding a doctor's golf clubs hostage with barbed wire and in a circle of hand grenades until he got seen and dx'd correctly in a timely manner.
 
Maybe that's the answer.  I know it's frustrating.  I once had a doctor LOOK DOWN MT THROAT to examine my thyroid gland.  Talk about graduating at the bottom of his class.
 
I have a great doc now...but brother...it shouldn't be so hard!
 
huggies
Donna
fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted 8/24/2009 5:52 AM (GMT -7)   
I think we can all relate to your story in one way or another when it comes to doctors. 
 
While seeking a diagnosis for what turned out to be Meniere's Disease, I once had a neurologist who had me stand there and hyperventilate, and then he asked me if I was dizzy.  When I replied, "Yes" (duh), he proceeded to tell me that this was the type of dizziness I was experiencing (it wasn't), and he diagnosed me with anxiety and gave me an SSRI.  Needless to say, the SSRI made my Meniere's worse.  What a quack.  I was finally correctly diagnosed by a wonderful ENT at a research hospital.  Yep, I felt pretty vindicated too. (By the way, I do experience anxiety, but the symptoms were totally different with the Meniere's than with anxiety.  I tried to tell the neuro, but of course, he knew my body better than I... eyes )
 
I'm glad you finally got a dx, but I'm sorry it took so long.  I hope you feel better soon.  :-)
 
Hugs - Austen
"There is no charm equal to tenderness of  heart." - Jane Austen
 
Fibromyalgia, 2 back surgeries, Meniere's Disease, 30+ kidney stones, GERD, IBS, Asthma, Allergies, Endometriosis, Heart Arrythmia, Myofascial Pain, TMJ, Bi-lateral sacroiliitis.
 
 
 
 
 
 


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 8/24/2009 11:45 PM (GMT -7)   
I just want to say to everyone, "No one knowes your body better than you and you have to fight for what you want. Go get it!"
 
Yes I'm a little more positive today....lol tongue
 
 
HARA
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