Have I got a story to tell

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New Member

Date Joined Aug 2009
Total Posts : 14
   Posted 8/24/2009 12:43 PM (GMT -6)   
hello all im new here, my name is Jackie and im a 48 year old female who lives in Bedford Virginia and will be moving to Delaware next month.
my story starts 9 years ago in 2000,i was going through a terrible divorce with all the stress my eyesight went double. this happened around may and went on until august.
i went to the eye doctor and she told me that my eyes had turned and i needed to go and see a nurologist. at the time i was moving back to delaware to stay with my mom so i thought i would wait until i got moved to go and see a nuro.
with everything going on i never did go see a nuro and my eyesight straightend out, in october of that same year i met my now wonderful husband who i married that next month in november.
the day i was to get married my sight went double again, i got married and continued on with life until december when not only had was my sight double i couldn't see certain colors.
my husband took me to the emergency room where the dr. there set me up with an appointment with a nuroligist.
i went to see the nuro 3 days later and he did a spinal tap and mri's of my brain, after i went back for my dx he told me that my brain had shrunk but i had no brain lesions and nothing showed on the spinal tap.
he dx'ed me with MS because my mother has MS and started me on avonex, all that did was make me worse so i stopped the shots, my eyesight got better in march of that next year from doing intro steroids.
i kept going back and he did the same test on me all the time, walk across the floor and touch your toes. after a few months of this it got old and the bill was piling up, so i decided to just try to live life the best that i could.
i never stopped working and went on with life thinking i had MS and there was no cure for it, but all through the years before that i had terrible mussel pain, i always had back problems and brain fog and i can never in my entire life say i went to bed and woke up rested.
my grandmother would always tell me i was born tired and never got rested.
so i go on with life for the next 9 years, about 5 months ago i had alot of stress at work and it started to affect my eyesight, not double but just to where my eyesight was so bad i thought i was going blind.
i kept on with life and last week august 15th a day before my birthday i was at work and the left side of my face went numb,im a cashier for walmart so i called for a csm and it was 15 minutes before i was to go home, nobody came.
that 15 minutes turned out to be a 1/2 hour and i was 15 minutes late getting off from work, when i got off the register i went and told them that the side of my face went numb and i drove myself home.
when i got home i laid down for a few minutes and the next thig i know my leg and arm go numb, i get my husband to take me to the hospitol and when we get there they admit me.
they took mri's of my brain and my neck and told me it showed nothing and they didnt know what happened to me.
they sent me home after 3 days, and i didn't have insurance so im sure this bill is going to be a dosey but i will worry about that when the time comes.
in the mist of all of this when i knew my eyesight was going really bad i signed up for SSD in june because i didnt know how much longer i was going to be able to work.
now i can't work at all and im trying to get ahold of SS to let them know, but we will be moving in a few weeks and when i get there im going to sign up for medicade. i need to see some kind of doctor as i really think i have FM and the pain anymore is more then i can take.
all i want to know is whats wrong with me so i can get treated for it to where i can live some kind of normal life.
this all just makes me mad as blazes, thank you for letting me tell my story and any advice would be greatly appriciated.

Forum Moderator

Date Joined Apr 2005
Total Posts : 17057
   Posted 8/24/2009 12:57 PM (GMT -6)   
Hi, Jackie, and welcome!  The pain and brain fog does sound like fibromyalgia but the numbness that has happened to you several times, along with the vision problems, doesn't.  I'm not a doctor and I'm just guessing but this kind of sounds like a mini-stroke that my friend had many years ago.  It's called a transischemic attack or TIA for short.  Here is a link about them and see if it sounds like you.  But, I don't know why they couldn't see this in an MRI.
Be sure to check out the Fibro 101 thread...the first thread on the forum.  There are links to good information about fibromyalgia, including a list of symptoms.  You just might see yourself there.  You will learn a lot from this thread.
I'm so glad that you found us and joined in.  We have wonderful members that love to help one another and, as a bonus, we really do care about each other, too!  So, I think you will like it here.
Read back posts and don't hesitate to ask questions.  We are here to help you.  Hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 8/24/2009 3:42 PM (GMT -6)   
Hi Jackie and welcome. Have you had any problems with anxiety or panic attacks??? The reason I ask is cause I have had some very strange feelings from anxiety and even problems with eyes when I'm really anxious. You have gone through a lot of stress in your life and there seems to be a connection between the eye problems and stress. Stress can be caused from good things like moving too.
Read the fibro 101 thread and write down the symptoms that fit you and take them to the doc with you.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
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Regular Member

Date Joined May 2009
Total Posts : 138
   Posted 8/28/2009 2:32 PM (GMT -6)   
im so sorry for what you are going through and have been going through for quite some time. sometimes the struggle to get a correct diagnosis is over-whelming. you have already been through so much. and im sure that medical bills piling up doesnt help with the stress. i hope you are able to get medicade. getting ssi may not happen until after you have moved. ive heard it can be difficult to get, so dont take no for an answer. get records from all your drs. do some research on getting ss. good luck and i will be thinking of you.

Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 8/28/2009 11:48 PM (GMT -6)   
Hi Jackie and welcome!! You're now part of this warm and wonderful family here and you'll quickly find we truly care! I would think this is very stressful and frightening for you. And I agree...you need to see someone who can get to the bottom of what's happening.

I will also reiterate what Sherrine said about the TIA's. My grandmother had several of them and tried to pass them off as 'nothing' but by ignoring them she let a lot of damage happen that was unnecessary. Also, if you feel like you're having a stroke....like the feelings you had...immediately get to a hospital!! YOU call 911 and if you were at work call from the register if need be. Stroke is not something that can wait. There are clot-buster drugs that can dissolve the blood clot causing the stroke but ONLY if you get the injection within 3 hours of the time you had the stroke. NOT 3 hours and 10 minutes...but no more than 3 hours. Do not go home, do not drive...get help if you ever feel that way again. We do not want anything to happen to you.

It is totally possible you have fibromyalgia but like Sherrine said...the numbness is not fibro. There are hospitals around that are church based and will treat you whether you have the means to pay or not. In fact all hospitals are required to take their share of patients without insurance. Don't feel bad about it...you are not alone.

Keep in touch and let us know what you find out...
Play fair. Don't hit people. Say you're sorry when you hurt somebody.
~Robert Fulghum

(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums

Veteran Member

Date Joined Apr 2004
Total Posts : 6056
   Posted 8/28/2009 11:53 PM (GMT -6)   
Wow! I can't add much except "Welcome!" and I'm sending some prayers to help you along.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross

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