hello all im new here, my name is Jackie and im a 48 year old female who lives in Bedford Virginia and will be moving to Delaware next month.
my story starts 9 years ago in 2000,i was going through a terrible divorce with all the stress my eyesight went double. this happened around may and went on until august.
i went to the eye doctor and she told me that my eyes had turned and i needed to go and see a nurologist. at the time i was moving back to delaware to stay with my mom so i thought i would wait until i got moved to go and see a nuro.
with everything going on i never did go see a nuro and my eyesight straightend out, in october of that same year i met my now wonderful husband who i married that next month in november.
the day i was to get married my sight went double again, i got married and continued on with life until december when not only had was my sight double i couldn't see certain colors.
my husband took me to the emergency room where the dr. there set me up with an appointment with a nuroligist.
i went to see the nuro 3 days later and he did a spinal tap and mri's of my brain, after i went back for my dx he told me that my brain had shrunk but i had no brain lesions and nothing showed on the spinal tap.
he dx'ed me with MS because my mother has MS and started me on avonex, all that did was make me worse so i stopped the shots, my eyesight got better in march of that next year from doing intro steroids.
i kept going back and he did the same test on me all the time, walk across the floor and touch your toes. after a few months of this it got old and the bill was piling up, so i decided to just try to live life the best that i could.
i never stopped working and went on with life thinking i had MS and there was no cure for it, but all through the years before that i had terrible mussel pain, i always had back problems and brain fog and i can never in my entire life say i went to bed and woke up rested.
my grandmother would always tell me i was born tired and never got rested.
so i go on with life for the next 9 years, about 5 months ago i had alot of stress at work and it started to affect my eyesight, not double but just to where my eyesight was so bad i thought i was going blind.
i kept on with life and last week august 15th a day before my birthday i was at work and the left side of my face went numb,im a cashier for walmart so i called for a csm and it was 15 minutes before i was to go home, nobody came.
that 15 minutes turned out to be a 1/2 hour and i was 15 minutes late getting off from work, when i got off the register i went and told them that the side of my face went numb and i drove myself home.
when i got home i laid down for a few minutes and the next thig i know my leg and arm go numb, i get my husband to take me to the hospitol and when we get there they admit me.
they took mri's of my brain and my neck and told me it showed nothing and they didnt know what happened to me.
they sent me home after 3 days, and i didn't have insurance so im sure this bill is going to be a dosey but i will worry about that when the time comes.
in the mist of all of this when i knew my eyesight was going really bad i signed up for SSD in june because i didnt know how much longer i was going to be able to work.
now i can't work at all and im trying to get ahold of SS to let them know, but we will be moving in a few weeks and when i get there im going to sign up for medicade. i need to see some kind of doctor as i really think i have FM and the pain anymore is more then i can take.
all i want to know is whats wrong with me so i can get treated for it to where i can live some kind of normal life.
this all just makes me mad as blazes, thank you for letting me tell my story and any advice would be greatly appriciated.