Playing with my mind!

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MissMarie63
Regular Member


Date Joined May 2009
Total Posts : 30
   Posted 8/24/2009 1:30 PM (GMT -7)   
Hello everyone!
   I'm sorry if this is kind of a repost of what someone has talked about before. I tried looking through the forum but couldn't really find anything matching exactly what i'm feeling.
 
As good as it feels to have relief from the pain.. why does it feel like somedays i'm not sick?
I was a dancer... and i had to stop due to fibromyalgia. I could not even keep up with rythm never mind avoid passing out after about 20 minutes and then be drained and unable to move the next day.
 
However.. i danced for a little last night..annd i;m not in unbareable pain today.?? confused
 
Now don't get me wrong.. i feel some pain.. but is it just because i'm not in as good of shape as i use to be and im juse "sore"?
Do i even know what it feels like to be just exercise sore anymore?
 
There are some days where i feel like i can do anything i use to.. then reality will hit me! 
Is it that i forgot what it truly feels like to be complelty pain and fatigue free? lol
 
IT"S PLAYING WITH MY MIND!
 
I'm trying to get a job..and somedays i can work any normal job fulltime ... then others i feel like i can't even get up to work!
 
Are these just flares? or can i possibly not have fibromyalgia and maybe it just is gettin slightly better?
 
anyone else every feel this way??
"We all have many obstacles in out life, some of us have more then others.
 Mine may have limited my options, but it will never limit my possibilities"
-K.M.-


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 8/24/2009 2:20 PM (GMT -7)   
That's fibro Marie. Don't try to figure it out or you will go bonkers, just enjoy the good days when they come but don't overdo it. This morning when I got up I could barely move I was so sore from riding in the car for too many days. I had too much to do to give into it and now I feel much better, what a difference a few hours can make when it comes to fibro. shakehead I just take it as it comes and do what my body will let me do at that moment.
 
I'm glad you enjoyed dancing tongue
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
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MissMarie63
Regular Member


Date Joined May 2009
Total Posts : 30
   Posted 8/24/2009 2:28 PM (GMT -7)   
thank you!

What do you do about work?? my doctor said i can work part time to start.What do you do about the days u feel like you are about to pass out? lol
"We all have many obstacles in out life, some of us have more then others.
 Mine may have limited my options, but it will never limit my possibilities"
-K.M.-


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 8/24/2009 2:41 PM (GMT -7)   
If you work part time that should help.  You need to learn to pace yourself to get things done.  If you get a job, save your energy for work.  Don't scrub your floors the night before work.  Know what I mean?  Your house work and other projects need to be done at a slower pace...work a little, rest a little .  This will keep you from becoming so sore.  I think pain saps your energy.  I know I'm more fatigued when I'm having more pain than usual.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


MissMarie63
Regular Member


Date Joined May 2009
Total Posts : 30
   Posted 8/24/2009 2:53 PM (GMT -7)   
Thank you!
That has been the hardest thing for me to get use to.. pacing myself.
Thankfully i have a very udnerstanding boyfriend who isn't afraid to do the housework when i can;t ;)
I am so use to being a very active person, work and school and sports/working out daily.. too..nothing :-/
It took my massage career away from me and now all the medical bills have left me with no money to return to school.
How long does it take to get use to and ACCEPT that i have this condition??
"We all have many obstacles in out life, some of us have more then others.
 Mine may have limited my options, but it will never limit my possibilities"
-K.M.-


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 8/24/2009 3:14 PM (GMT -7)   
That depends on you as to how long it takes to accept this condition.  When I was diagnosed, I was glad to know it wasn't anything more serious.  I was told they didn't know what caused it so I knew there wouldn't be a cure for me so I just didn't dwell on it and kept living my life.  I had to make some changes and work around the fibro but I have had a very full and enjoyable life in spite of fibro. 
 
You learn compassion with this illness and you learn what REALLY is important in your life.  You get rid of the things in your life that aren't necessary and hang on to the things that are truly important to you.  Then you go from there. 
 
It's wonderful that you have an understanding boyfriend.  It's great to have some help.  But, remember, pace yourself.  Don't try to do things in the same time frame you did before fibro.
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Post Edited (Sherrine) : 8/25/2009 11:34:26 AM (GMT-6)


MissMarie63
Regular Member


Date Joined May 2009
Total Posts : 30
   Posted 8/24/2009 3:19 PM (GMT -7)   
i really appreciate your adivce.
My aunt has the condition as well.. but hers is more under control then mine is. And my parents (who live 21 hours away from me) always fear it's something else something worse that they are misdiagnosing ..which doesn't help my confidence haha
Sometimes i feel like i let mine affect me more then i should..but my doctor explained to me it affects everyone different.
I'm thankful to have people like all of you on here to help learn to deal with it untill i figure my life out with it!

Thank you so much :)
"We all have many obstacles in out life, some of us have more then others.
 Mine may have limited my options, but it will never limit my possibilities"
-K.M.-


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 8/24/2009 9:29 PM (GMT -7)   
Marie, I am glad you posted this question because I do the same thing. When I feel good I wonder, "was the pain yesterday as bad as I thought it was or was I imagining it?" Yesterday and this morning I needed my cane, this afternoon I didn't. Some days I think I am not sick then the next day I realize I am. It is so weird and I still haven't gotten used to it a year later.
Sue

DreamspinnerCheryl
Regular Member


Date Joined Aug 2009
Total Posts : 59
   Posted 8/25/2009 8:59 PM (GMT -7)   
You know, the uncertainty of it all is getting to me, too. I can get up feeling pretty good, and be down badly by midafternoon. Or, get up feeling terrible, and clear us some before the day is over. Some days are reasonably good all day. As I don't yet have an "official" fibro diagnosis (had more labs drawn today, and may see a rheumy based on results), I'm not sure which would be worse-to find out I do have it, or to find out I don't. If I don't, I'd still I'd be wondering what the heck is wrong with me-or, is it all "in my head".

I also tend to wonder, on good days-are the bad days as bad as I make them out to be? Then I have another bad one, and know that, yes, they certainly are!

These on-again-off-again days are making me crazy!

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 8/25/2009 10:42 PM (GMT -7)   
Hi Marie...

As you can see many of us have the same feelings. That is one thing I love about posting and reading on the forum. I know others totally understand me and how I feel. I do hope you are able to dance a bit. It's such a beautiful form of exercise and self expression and I'd hate to see you totally give it up. But like Sherrine and others have said..learning to pace yourself is the key.

Go easy and enjoy the days that are 'almost' normal.
Chutzie
Play fair. Don't hit people. Say you're sorry when you hurt somebody.
~Robert Fulghum

(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums
(/|\)


AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted 8/26/2009 4:34 AM (GMT -7)   
We all have fibro fog; we can't remember if this has been discussed before or not! turn smilewinkgrin
 
Seriously, I do know what you are talking about.  Some days I feel fine, and others, I feel like I've been hit by a truck.  Sometimes I can relate it to over-doing something, but often, there is no rhyme nor reason.  I've even gone through periods where I've wondered, "Do I even have fibro?" but then the pain and fatigue will hit full force, and my doubts definitely go away.
 
Like others have mentioned, I just try to pace myself, even on the days I'm feeling okay.  I try to save my energy for the things that are important like work or an outing with my family, and I try to enlist all the help I can get with the unimportant stuff (like house cleaning, etc.).  The things I can't get immediate help with (like cleaning my carpet or windows) I just try to ignore until I can get help or afford to pay someone to do it.
 
Fibro is such an unpredictable force, and it is different for everyone.
 
BTW, my daughter is a dancer too.  :-)
 
Hugs - Austen
"There is no charm equal to tenderness of  heart." - Jane Austen
 
Fibromyalgia, 2 back surgeries, Meniere's Disease, 30+ kidney stones, GERD, IBS, Asthma, Allergies, Endometriosis, Heart Arrythmia, Myofascial Pain, TMJ, Bi-lateral sacroiliitis.
 
 
 
 
 
 


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 8/26/2009 9:32 AM (GMT -7)   
Yesterday was so odd. I felt pretty good all day and had to go to the dollar store to get something for work. I didn't take my cane because I felt good, but as soon as I got into the store, I was in a lot of pain and limping and not enough energy to go out and get the cane! Sheesh. You just never know what to expect.

Sue

RedDiane
Veteran Member


Date Joined Jun 2007
Total Posts : 906
   Posted 8/26/2009 9:42 AM (GMT -7)   
I would like for all of you who have days when you feel good or fine to just rejoice. In the 25 years I've had fibro, I've had almost no days when I woke up and felt fine. This is the truth. Diane
Fibromyalgia since 1984, Sjogren's, Hashimoto's Thyroiditis, Auto-immune eczema, GERD, osteoarthritis, IBS, RLS, sleep apnea


CathyA
Veteran Member


Date Joined Mar 2005
Total Posts : 1431
   Posted 8/27/2009 6:03 AM (GMT -7)   
When I first got fibro, after a horrible bout with influenza, pneumonia and ear infections, and beginning perimenopause, I felt horrible each and every day. After a few years, I began to get one good day every once in awhile. Then I got more and more. Now that I'm completely through menopause (well, almost......ovaries are still clanging, churning, hissing), I have alot of good days.
But you're right..........I never know from one day to the next how I will feel.
When I was in the worst throws of fibro/perimenopause, I wouldn't even know from hour to hour how I was going to feel. I would get all ready to go get groceries, and then not be able to make it out the door.
What seems to have helped me the most in the recent couple of years is using a CPAP machine, regularly taking some vitamins, having the kids move to college, and trying to stay away from sugar (the hardest part of all!).
Like RedDiane says.........just take pleasure in the good days!
And Diane, I sincerely hope you can get a few better days! ((((((hugs))))))
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