daughter going to neurologist tomorrow

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Regular Member

Date Joined Jun 2009
Total Posts : 78
   Posted 8/24/2009 10:57 PM (GMT -6)   
My 14 year old daughter has an apt w the neurologist in the morning.  She is almost off the cymbalta-doing ok, still having problems w her coordination!  She use to Irish Dance!  It's not suppose to be permanant side effects.   School starts in less than a week, I had an apt w the counselor & he said to call in a couple of weeks to get her on a 504 plan.  I honestly don't see how she will make it in school.  Is there anyone out there who went to high school with FM?  How did  you handle it & cope w homework & gym class & just walking from class to class.  I'm praying about if I should home school her!  Thanks for any input! 

Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 8/24/2009 11:12 PM (GMT -6)   
Wow lettuce! My heart breaks but goes out to you and your daughter. I pray that some day she can return to some of those things she loves. And if not please encourage her in other areas. Being so young and having limits placed on you isn't easy. One friend has a daughter with juvenile diabetes. She's not quite a teen yet but she's already been allowed to go on a pump. She also found out in the past year or so that she has celiac disease.

Yes, limitations are hard on the young ones but they seem to be more resilient that us older folks and bless their hearts, they come back fighting. Maybe she'll be the one to go on to college and do the research to find out why we suffer with fibro. Don't tell her she can't. When I went back to college at 40+...lol...I had the beginnings of fibro. Some pain in my legs/shoulders/back but more pronounced was the fog. Learning was harder that it had been just a year or two before when I had taken a couple of classes. I would read a paragraph and forgot what the first sentence or idea was. Sometimes it would happen from the beginning of a sentence to the end. I would have no idea what I had just read. But I was determined and found whatever tricks I could to get it into my brain. Not only did I graduate I did it with 'honors'.

She CAN do it but it may not come easy. Take advantage of any and all help available with her education. She may have to get an IEP and that will follow her into college too. Never stop knocking on doors and asking questions. It's what got me through and still keeps me going.

Good luck and keep us posted on her progress!
Play fair. Don't hit people. Say you're sorry when you hurt somebody.
~Robert Fulghum

(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums

Veteran Member

Date Joined Apr 2008
Total Posts : 1522
   Posted 8/25/2009 12:54 AM (GMT -6)   
The 504 plan should be a great help. Think about any reasonable accommodations she may need. She may need alternate testing accommodations such as frequent breaks, taking tests in a quiet room, no time limits. She may need a second set of text books at home so she doesn't have to carry them, extra time on assignments, books on tape/CD. She may need a small laptop or netbook for note taking and organization. She may need to sit in a certain area or wear sunglasses in class. She may need a reduced schedule, maybe taking 4 classes/day instead of 6.

There are many things a school can easily do to accommodate her. The trick is figuring out what she needs. Make the appointment to start the 504 procedure ASAP so it is in place sooner. Some things, such as textbooks and books on tape/CD can take a while to get there.

While the school should have your daughter's best interests in mind, most districts are also very short on money right now. It should be easy to get the things that are free/low cost but you may have to fight for something that is costly.

Give it a try and see how it goes. I suggest you make an agreement with your daughter, such as she has to try it for a quarter or 't semester. This way she gives it a good try and doesn't quit too soon.

Does you school district offer homebound instruction for students with illnesses? That may be an option.

While homeschooling may be her best option, it has downsides also. I think it would be hard, as a parent, to know when you should push harder or when you should back down. Plus physical activity, even though painful, is necessary with fibro. She won't move around as much at home.

Good luck!

Regular Member

Date Joined Jun 2009
Total Posts : 78
   Posted 8/25/2009 11:50 AM (GMT -6)   

Just returned from the neurologist, she will have an EEG tomorrow & an MRI the next day.  They are checking for things like MS & seizure activity, why she's suddenly having more coordination problems etc.  School starts Monday so they are trying to get everything in now!  I've never heard of someone 14 having MS-my brother has it but he didn't show signs until he was 30. 

The counselor at the school won't work with me until 2 weeks into school, very  frustrating!  My son just gradtuated from the same school & said as far as counseling help is concerned this couselor is next to useless!   Why does everything have to be a fight!?!?  I feel like I'm swimming in mud, against the tide, uphill- all the time.  I know many people are having the same feeling & similar or worse problems!   

Thank you for the good advice!  We'll keep posting as to how things are going. 


Regular Member

Date Joined Aug 2009
Total Posts : 59
   Posted 8/25/2009 12:12 PM (GMT -6)   
So, why won't the counselor not work with you for two weeks?? I'd be raising holy hell over that-if this counselor isn't up to par, the school system should be held accountable for providing someone who is!

I've had dealings with school in the past, with my Asperger's son. Sometimes, you have to be an incredible pain in the tush to get them to work with you. Good luck!

Forum Moderator

Date Joined Apr 2005
Total Posts : 17061
   Posted 8/25/2009 12:20 PM (GMT -6)   

I sure hope they find out what she is dealing with.  Once you know that, then a good plan of action will be taken and your daughter should do fine.

Just keep reinforcing that she can do anything if she puts her mind to it.  There are thousands of stories out there of people overcoming what seemed to be insurmountable odds.  If she has the desire, she will find a way to accomplish it.  She knows she can count on her Mom, too!  That's wonderful. 

So, try to stop worrying and take each day at a time.  Somehow things always work out.


Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

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