I've been seeing a NP for over a year and have had several tests, including food sensitivities, hormones, parasites, c.dif, h. pylori, amino acids, etc. The only things that I think helped was the amino acids testing. It showed I was extremely low in most amino acids and I've been on an amino acid powder that I make into smoothies daily. Within days, I felt really better, more energy, really good. This lasted about 6 weeks, then flares started and for the next 6 weeks I felt crummy. Now for the last 2 weeks I've been okay with just a flare here and there that lasted half or a whole day.
I guess my question is: should I go forward with MORE testing? The NP wants me to have heavy metals and lyme tests. I have backed out of the heavy metals testing twice now. The NP wants to do it intraveniously using dmps or dmsa, I'm not sure which. I've researched both and I'm not happy with what I've found. Dmps is not approved to be used in the US but can be bought and used by practitioners. Dmsa and dmps have side effects I don't like the sound of. I, like most of you, am really sensitive to meds and even some herbals and tend to be really cautious. Some of the things I read , people's symptoms were worse after the test .
As for the Lyme test, US and Europe can't seem to agree on what tests really work, what the tests really mean etc. Basically, I don't think I have Lyme. I never remember being bitten by a tick, they are not very prevalent in my area (sw WA) and I've never been an outdoor type person. However, my NP has told me from the beginning she thinks, by my symptoms, I have Lyme and should be tested. If it turned out I do have Lyme, it would mean lots of antibiotics for weeks, months, years. I just don't even want to think of that. I have put it off to this point and we have done several other tests and things to improve my wellbeing. Really I just think I have fibro and all its wonderfulness! Maybe I just keep looking, hoping, that there is an answer out there for me. Its been 40 years of up and down, yo-yo life for me but I keep hoping and searching for something better.
Well, I've vented now! I would like my fibro friends input. You have been through all these same things too. Should I go forward with the tests when I feel and think this way or not?