? heavy metals testing and lyme testing

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yo-yo
Regular Member


Date Joined Aug 2009
Total Posts : 159
   Posted 8/25/2009 2:10 PM (GMT -7)   
Hi,
I've been seeing a NP for over a year and have had several tests, including food sensitivities, hormones, parasites, c.dif, h. pylori, amino acids, etc.  The only things that I think helped  was the amino acids testing.  It showed I was extremely low in most amino acids and I've been on an amino acid powder that I make into smoothies daily.  Within days, I felt really better, more energy, really good.  This lasted about 6 weeks, then flares started and for the next 6 weeks I felt crummy.  Now for the last 2 weeks I've  been okay with just a flare here and there that lasted half or a whole day. 
 
I guess my question is: should I go forward with MORE testing?  The NP wants me to have heavy metals and lyme tests.  I have backed out of the heavy metals testing twice now.  The NP wants to do it intraveniously using dmps or dmsa, I'm not sure which.  I've researched both and I'm not happy with what I've found.  Dmps is not approved to be used in the US but can be bought and used by practitioners.  Dmsa and dmps have side effects I don't like the sound of.  I, like most of you, am really sensitive to meds and even some herbals and tend to be really cautious.  Some of the things I read , people's symptoms were worse after the test .
 
As for the Lyme test, US and Europe can't seem to agree on what tests really work, what the tests really mean etc.  Basically, I don't think I have Lyme.  I never remember being bitten  by a tick, they are not very prevalent in my area (sw WA)  and I've never been an outdoor type person.  However, my NP has told me from the beginning she thinks, by my symptoms,  I have Lyme and should be tested.   If it turned out I do have Lyme, it would mean lots of antibiotics for weeks, months, years.  I just don't even want to think of that.   I have put it off to this point and we have done several other tests and things to improve my wellbeing.  Really I just think I have fibro and all its wonderfulness!  Maybe I just keep looking, hoping, that there is an answer out there for me.  Its been 40 years of up and down, yo-yo life for me but I keep hoping and searching for something better. 
 
Well, I've vented now!  I would like my fibro friends input.  You have been through all these same things too.  Should I go forward with the tests  when I feel and think this way or not?
 
Mary Lou

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 8/25/2009 3:18 PM (GMT -7)   

Mary Lou, I'd have the Lyme testing done, especially since your doctor is suspicious.  The bloodwork could be sent to Igenex, in Palo Alto, California.  That is supposed to be the best lab for seeing if you have Lyme.

Check over at the Lyme forum.  They can give you good advice about this.

Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 8/25/2009 10:46 PM (GMT -7)   
Hi Mary Lou,

One thing to remember is...even if you do test positive for lyme disease you can still have fibro on top of that. It's a very hard call to make though. Since fibro is diagnosed by ruling out others disorders then I would go ahead with the lyme test but there would have to be a compelling reason for the heavy metal one for me.

Keep us posted,
Chutzie
Play fair. Don't hit people. Say you're sorry when you hurt somebody.
~Robert Fulghum

(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums
(/|\)


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 8/25/2009 11:01 PM (GMT -7)   
No one wants to take antibiotics for months or years but sometimes, it is necessary. If you have Lyme and don't treat it, you will probably never improve.

merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 8/27/2009 7:58 AM (GMT -7)   
I would definitely get you tested for Lyme. I have had lyme/fibro 2.5 years. I would try to get tested by igenex in california if you can afford it. The tests you want is  called a western blot IgM and IgG. you can also get these done thru a regular lab.
 
testing for lyme is not very accurate. So if you test negative you might want to take a course of abx to tease the lyme out. your medical porfessional will help you decide what to do.
 
I have had heavy metal testing done. I took 20 oral chemet pills and then collected urine. IT really didnt tell me too much except I am high in lead. I havent done anything about it.
 
 
 
 
so if it were me I would get the lyme testing at Igenex for 200$ and skip the heavy metal testing for now.
 
i dont remember a tick bite or rash and I got Lyme! IF you have a pet its possible.
 
 
good luck
melissa
Chronic Lyme Disease
Fibromyalgia
Chronic fatigue syndrome
Polycystic Ovarian Syndrome
Sleep Apnea
Hypothyroidism
Adrenal Fatigue
 

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