Does this sound like fibromyalgia

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

unsure49
New Member


Date Joined Aug 2009
Total Posts : 3
   Posted 8/26/2009 12:54 PM (GMT -7)   
My symptoms started about 5 years ago and probably like most of yours were different and sporadic. My first thing was IBS(mostly diarhea) since I was under alot of stress at that time just thought that was what is was. I have always had a sensitive stomach. I also have had shaky hands for the last 5 years. about 3 years ago my hands got so bad that I was dropping thing and very stiff and the thumb area was blue. I didfinally go to the Dr and he took xrays and said I had arhritis. I also have bouts with sleeping problems. I have no problems falling asleep but staying asleep is another thing. I'm always cold and I live in central Texas where it is 100 and I wnat  to sleep with a down comforter. I have times where I cannot sleep on my side because my hips hurt and the back of my neck hutrs and inside of knees. I now have times when my calves feel really tight and have kind of a burning sensation. I have been to  the Dr but do not say too much due to thinking it is peri-menopausal(I'm 49) but I'm really starting to think it is not. I have days when I feel fabulous and then days where I'm achy and feel like I have been hit by a mac truck. I get very tired when that happens. If these things happened all at once maybe soneone could make a clear diagnosis but they are sporadic. I do notice weather palys a big part when there is weather change. I do not want to be a hypocondriac and go to the dr for things that are just mother nature. Does this sound like anyon elses's symptoms?  

vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 8/26/2009 1:15 PM (GMT -7)   

Your symptoms sound alike like mine and it took a long time for them to dx me.  I had every test known to man.  The burning ache in my butt, hips and legs are the worst and keeps me awake at night.  This week I feel like I have the flu.  When it gets cold, I feel like the skin on my legs is shrinking up around the bone and they feel very tight...especially the calves.

Many of us on this forum have had doctors shrug their shoulders and just say 'Fibro" without doing a thorough exam so I hope you have been through the gamit of testing, as fibro mimics many other disorders.  But..your symptoms sound like it could be fibro to me.

Donna

 

 


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 8/26/2009 2:01 PM (GMT -7)   
Hi, Unsure, and welcome!  It sure sounds like it could be fibromyalgia.  You are usually very stiff when you get up in the morning or if you sit or lay too much.  You do need to keep moving to keep the muscles more flexible.
 
A good doctor will run tests to rule out other illnesses because fibro symptoms are also like other illnesses.  Once they have done that, then fibromyalgia is generally diagnosed.  Make sure, though, that your doctor believe in fibro.  There are still doctors out there that don't.
 
Check out the Fibro 101 thread...the first thread on the forum.  There are links to good information about fibromyalgia, including a list of symptoms.  You just might see yourself there!
 
I'm so glad that you found us and joined in!  Read back posts and ask questions.  We are here to help you.  Hope to hear more from you soon.
 
Sherrine
 
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


puppylover
Veteran Member


Date Joined Feb 2009
Total Posts : 821
   Posted 8/26/2009 2:04 PM (GMT -7)   
Sounds like fibro to me, especially the sleep issues.  I was dx'd early this year although I believe I have had it for many, many years.  I never slept through the night and got up frequently to soak in the tub with hot water to help with the pain and stiffness.  I'm sleeping now most nights with medication.  I did have tests to rule out anything else.  In fact I had these same tests in the late 70's and several years ago.  That dr shrugged and said it must be arthritis.  I have a new dr now.
 
Puppylover
Fibromyalgia, arthritis in spine and hips, IBS, Raynaud's syndrome, hypertension
 
On the eighth day God created Golden Retrievers.


free2bfree
New Member


Date Joined Aug 2009
Total Posts : 19
   Posted 8/26/2009 2:24 PM (GMT -7)   
Dear Unsure49 --
 
I'd say that all of your symptoms could be caused by Fibro. 
 
I don't know that I'd try to get tested for everything most doctors wanna test ya for though.  It seems that so much time is spent chasing the diagnosis that precious time is lost in getting some sort of treatment going.  Like the diagnosis is the be-all end-all.  I think that it depends on which doctors and which specialties they have training in as to your final diagnosis, anyway. 
 
It seems that a symptom or condition that one doctors might label with one name ... can also be found with a different label from another doctor or specialist.  I'm also amazed at the differing approaches to treatment depending on the individual doctor.  Some just wanna give you pills.  Others tell you it's all in your head.  Some tell you that you need to try harder to do what you used to do ... you're just getting lazy.  (In sophisticated medical mumbo-jumbo, that is.)
 
There are two things I would ask to have checked while at the doctor's office, however: 
 

Being cold all the time can indicate thyroid imbalance ... which can also be associated with all hormone imbalances and changes that go with being peri-menopausal.   

Many of the Fibro symptoms also are similar to Mononucleosis (Mono). 

 
In my opinion, it's possible that it could be any combination of all three (Fibro, thyroid, Mono).  Arthritis in its many forms also shares many common symptoms.  There ya go ... could be all four, but who's counting.  ~he-he~ 
 
Another personal opinion is that they all could be inter-related since they all have to do with the immune system and the thyroid is one of THE master glands that affects just about every function of the body.
 
There's my more than two cents! 
 
Take care ... hang in there!  ~*~ Karen  turn free2bfree
 
P.S.   The weird/queasy stomach that many of us experience can be from IBS ... but is also one of the stand alone symptoms of FM.  For me, it seems to happen when I'm having an especially bad period of time ... sorta what I'd call a re-activation of whatever started it all in the first place. 
 
I'm sticking my neck out by saying this ... but IMHO, it's sort like a retro-virus or like a relapse of a mono episode.  Does anyone else think there could be a similarity or correlation?  Or have I been "at this" for too long? 
 
 
~done playing doctor for the day~  nono

unsure49
New Member


Date Joined Aug 2009
Total Posts : 3
   Posted 8/26/2009 2:37 PM (GMT -7)   
Thank you all for your answers. I forgot to mention I do have my thyroid checked quite often due to my mother have a benign tumor on hers removed when she was in her 30's. My levels have been normal. My red blood count was low last time I was in but I'm sure that was due to heavy periods. I'm trying to make my symptoms better by taking vitamins and having massage(they help a great deal even though the next day I sometimes feel bad)
 
I think the worst is you look fine so people have no idea how you really feel.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 8/26/2009 2:54 PM (GMT -7)   
It IS important to be checked out because fibro symptoms are very similar to Lyme, lupus, Ms and others.  In the Fibro 101 thread there is a link called What Else Could It Be.  There is a list there.
 
Since there is no real medicine to treat fibromyalgia then it is important to get these other illnesses ruled out.  There are medications to help these other problems and the meds can help them from getting worse.  So, you would not be wasting your time.  You should get a proper diagnosis...just in case it isn't fibro.
 
I've had fibro for 22 years...and it's not mono.  I'm sure your doctor would recognize that but there are other symptoms that people with fibromyalgia have that people with mono don't have.  You do need to be properly diagnosed, in my humble opinion.
 
 
Sherrine 
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


free2bfree
New Member


Date Joined Aug 2009
Total Posts : 19
   Posted 8/26/2009 2:57 PM (GMT -7)   

Tell me about it!  LOL

The biggest problem is that we often look pretty good on the outside.  It takes a keen eye to see that some of us look rather haggard in our eyes.  The eyes tell all.  Doing your makeup and hair helps, but you can't fake a gleam in your eyes!

Take care ~*~ Karen  smilewinkgrin free2bfree


free2bfree
New Member


Date Joined Aug 2009
Total Posts : 19
   Posted 8/26/2009 3:22 PM (GMT -7)   

Dear Sherrine --

~not meaning to appear like a bull in a china shop~ 

I didn't mean to imply that one shouldn't seek the right diagnosis ... I just know that for some of us it's not possible to afford every diagnostic test and tool to get the diagnosis.  Many of us are "self-insured" if you know what I mean.

I agree that it's good to know what possible conditions could cause a certain set of symptoms.  This message board, the moderators (thank you thank you!!!), and the links you list are really wonderful in helping newbies (and not-so-newbies) in finding possible solutions that may work for them.  I also believe that there is as much value in the sharing that goes on at this message board as multiple trips to some doctors.  LOL

I guess that between my pocketbook and my energy level, I'm just not sure that I am willing to exhaust every single test known to man as some doctors seem to want to do.  And as for getting the diagnosis ... the thing that makes the most difference for me is finding what works to help me live a better life.

Thanks for all you do, Sherrine.  ~*~ Karen turn free2bfree
 
P.S.  I don't really want to list all of "what ails me or has ever ailed me" ... but suffice it to say that you and I have been on the same journey for many many years.  This particular part of my path has been ongoing for 15 years now.  As a young adult I suffered from Mono (including several relapses) for 5 years, and I've never been the same since then.  Fibro and CFS for me has been like Mono X 100.  (Side note:  Testing positive for EBV is extremely common for FM and CFS ... even when the patient is unaware of having had Mono.)
 
Did you read Ostler's Web waaaay back when?  (Remember, I'm a newbie to this message board and I'm not up to speed on the regulars here.)

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 8/26/2009 3:50 PM (GMT -7)   

Thanks for clarifying your position.  I just want to make sure that a new person, coming here for help, doesn't end up self-diagnosing.  That could be tragic because some of the illnesses that have the same symptoms can get worse.  If you find a good doctor, some of this can be ruled out with bloodwork. 

I totally understand that some can't afford all the tests but try to do the best you can.  It's good to get a diagnosis and I think it helps you deal with the illness and know you are not crazy! 

Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


unsure49
New Member


Date Joined Aug 2009
Total Posts : 3
   Posted 8/26/2009 4:09 PM (GMT -7)   
Thanks Sherrine, I understand what you are saying about assuming what it might or might not be. I do worry about the cost of all the test since my insurance is not what it once was as like many Americans these days. It seems like right when I feel like I really need to go and get all the test I start feeling good and start second guessing myself. I 'm not one to complain about things and am raising 2 young children 10 and 7 so I need the energy. I don't know if I mention that in the last year have had problems with dry eyes andgetting eye infections. The last 6 months have really had problems with blurry sight. Even after I have my eyes examined it seems my contact work for a couple of weeks and then I have I guess what you call hard to focus eyes. Is this somethin that is common with Fibro?

free2bfree
New Member


Date Joined Aug 2009
Total Posts : 19
   Posted 8/26/2009 4:11 PM (GMT -7)   

You are totally right, Sherrine ... and sometimes A diagnosis is better than NO diagnosis.  At least you are given a certain amount of validation for what you're going through.  And even if it's the wrong diagnosis ... hopefully it will lead to further exploration and answers ... and eventually a proper diagnosis.

Hmmm ... proper diagnosis.  It sometimes depends on which area of medical specialty you talk to!  ~he-he~  It's all relative, if you know what I mean. 

I just feel that so many of the "related diagnoses" that are out there are just simply another facet of the same stone.
 
Thanks for not shooting me  ~*~ Karen  yeah free2bfree

free2bfree
New Member


Date Joined Aug 2009
Total Posts : 19
   Posted 8/26/2009 4:18 PM (GMT -7)   
unsure49 said...
Thanks Sherrine, I understand what you are saying about assuming what it might or might not be. I do worry about the cost of all the test since my insurance is not what it once was as like many Americans these days. It seems like right when I feel like I really need to go and get all the test I start feeling good and start second guessing myself. I 'm not one to complain about things and am raising 2 young children 10 and 7 so I need the energy. I don't know if I mention that in the last year have had problems with dry eyes andgetting eye infections. The last 6 months have really had problems with blurry sight. Even after I have my eyes examined it seems my contact work for a couple of weeks and then I have I guess what you call hard to focus eyes. Is this somethin that is common with Fibro?
Dear Unsure49 --
 
When I was very first ill, I was practically unable to focus on anything up close, though I was still okay when driving.  I had blurry vision at times and tunnel vision at other times.  I'd have to double check the most recent "Currently Official List of Recognized FM Symptoms"  ~wink, wink~   ... but the last I knew, it's an offically recognized symptom for both FM and CFS.
 
After about a year of the crazy vision problems, it improved.  I still have troubles with my eyes from time to time, especially when I'm in the midst of a bad flare up.
 
Here's looking at you!  cool    Karen ~*~ free2bfree

puppylover
Veteran Member


Date Joined Feb 2009
Total Posts : 821
   Posted 8/27/2009 2:03 PM (GMT -7)   
Unsure, dry eyes and eye infections started for me a couple of years ago.  I finally had this procedure done where the doctor plugs the tear duct drain.  He felt that my tears were draining so quickly that my eye was getting no moisture.  I went ahead with it because I was tired of all the infections and the doctor said my eyeball was getting kind of scratched because there were no tears when I blinked.   Happy to say it helped me.  I have not had anymore infections and I don't even have to use drops everyday.  I still have vision problems but that is from a type of retinopathy that I have.
 
Puppy lover
Fibromyalgia, arthritis in spine and hips, IBS, Raynaud's syndrome, hypertension
 
On the eighth day God created Golden Retrievers.

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 05, 2016 5:54 PM (GMT -7)
There are a total of 2,733,258 posts in 301,097 threads.
View Active Threads


Who's Online
This forum has 151238 registered members. Please welcome our newest member, ejc61.
321 Guest(s), 17 Registered Member(s) are currently online.  Details
martha, bluelyme, MustangSally52, Lymepilot, Artist Mark, Lilyblues22, NiceGuyEddie, Scaredy Cat, 142, jdm99, jabele, ChickNorris, wearyRAsufferer, k07, Tall Allen, julymorning, Graytech


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer