savella is out!

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merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 8/27/2009 8:10 AM (GMT -7)   
I finally stopped taking it. 3 weeks in, no relief and horrible side effects.
 
I am disapointed.
 
 
melissa
Chronic Lyme Disease
Fibromyalgia
Chronic fatigue syndrome
Polycystic Ovarian Syndrome
Sleep Apnea
Hypothyroidism
Adrenal Fatigue
 


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 8/27/2009 8:58 AM (GMT -7)   
So sorry Melissa that the Savella has not helped you. It is too bad that you endured
all the side effects without getting any relief. I hope you will find something that works
well for you. Sending pain-free vibes your way.

I am on week 6 of Savella and no bad side effects and no relief either. I will continue to
take it and hope it kicks in. My next rheumy appt. is September 8th, maybe he can tell
me what is going on.

Take Care
Robin
 
 possible MCTD, Raynauds, Fibromyalgia, Osteoporosis, Degenerative
 Disc Disease, Osteoarthritis, High Blood Pressure, Migranes and
 Pseudothrombocytopenia, biopsy shows a Scleroderma variant
 MEDS: Methotrexate, Savella, Boniva,Lisinopril, Folic Acid, Flexeril, and
 Vitamin Supplements


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 8/27/2009 10:00 AM (GMT -7)   
I'm so sorry...for both of you.  I know when you start something new your hopes are up.  But, keep searching.  You'll find something that will help you control the pain.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


DreamspinnerCheryl
Regular Member


Date Joined Aug 2009
Total Posts : 59
   Posted 8/27/2009 6:12 PM (GMT -7)   
My question here-has anyone taken Savella and found that it helps with the fatigue? My pain level isn't so bad that I can't live with it, but this fatigue is ruining my life.

My ARNP wants to start me on Savella, but I'm skeptical. Plus, I'd have to stop the Pristiq I just adjusted to. I'm just wondering if the benefits might outweigh the possible negatives.

Anyone?

upbeat
Regular Member


Date Joined May 2009
Total Posts : 240
   Posted 8/28/2009 11:16 AM (GMT -7)   
Melissa, sorry it didn't work for you. It is hard when you get your hopes up that it will work!

Dreamspinner, I do think I had more energy on savella. Your Pristiq is already an ssnri, so maybe it wouldn't be to difficult to switch. I know savella works on the norephinephrine more than cymbalta, but I don't know about Pristiq. Good luck.
Fibro dx 2004, RLS, raynauds


cbear
Regular Member


Date Joined May 2009
Total Posts : 138
   Posted 8/28/2009 11:25 AM (GMT -7)   
im sorry the savella didnt work for you. i havent even tried it because of all the possible side effects. i have yet to hear about this med. work for anyone. (that doesnt mean it wont work for some). i think we all keep waiting for some miracle cure or med. you were brave to try it. take care.
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