Lumps in neck with Fibro?

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Regular Member

Date Joined Jul 2009
Total Posts : 25
   Posted 8/28/2009 11:56 PM (GMT -6)   
I can't remember anything these days, so can't remember if I have asked this before.  I'm having much more pain in my neck, back, shoulders, and between my shoulder blades.  Three weeks ago I noticed swollen lumps on both sides of my neck right about the collarbones.  I went to 2 family doctors, and they both said they thought it might be an inflammed muscle issue because they couldn't feel any lymph nodes, so they didn't think it was cancer.  Everything online says it is cancer, TB, or Lyme disease, but I don't have the other symptoms.
Has anyone with Fibro ever developed large swollen lumps is this area?  I went to a back doctor, and he's sending me for a neck MRI to see if vertebrae are pressing on the spinal cord. 
I've always had sort of moderate, miserable Fibro, and don't really know if somehow this could be Fibro that has suddenly gotten much worse.    I'm really scared

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Date Joined Dec 2008
Total Posts : 2386
   Posted 8/29/2009 12:53 AM (GMT -6)   
Im new to fibro but guess what. I am in remission from a tumor. Anyhow here's a quick lesson....anything that is an abnormal growth (and tumors) is cancer. Whether it is cancerous or not is a completely different story. So, dont settle for those doctors and get into a teaching hospital. Why teaching hospitals? Cuz they have better equipment, new methods and SPECIALISTS.

Just so you know, this is how it went down for me: Woke up one morning super naseauted like I was in morning sickness but all preg tests shows negetive. Eye swollen shut, double vision when I hold eye open. In and out doctors, eye doctors for 2 weeks. The pain gets so bad it triggers a migraine and I curled into a fetal position on my bed and called the doctor again, cried so much they gave me an emergency appointment. I go in, I tell the doctor to kill me. She decides to sedate me with nice pain killers and nasea meds then call the hospital to talk to doctors to see what to do. She sends me for an MRI to the hospital. Failed MRI, hospitalized 1 week. Stump hospital, get a referral to a teaching hospital that has state of art technology and specialists. See a specialist, get a emergency biopsy and another week in hospital. Find out about the tumor, get into chemo and radiation then go in remission. So thats my story, I'll spare the horrid details LOL.

You need a biopsy. Til then, dont scare yourself and pray.
Smurfy Shadow/Desirèe 
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Veteran Member

Date Joined Apr 2008
Total Posts : 1522
   Posted 8/29/2009 12:54 AM (GMT -6)   
If you have fibro, you have the symptoms of Lyme Disease. Go to the Lyme forum and learn more.

Nana Monster
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Date Joined Jul 2009
Total Posts : 949
   Posted 8/29/2009 7:05 AM (GMT -6)   
Hi Blue,
    What do the lumps feel like? I am prone to lypoma tumors (fatty ones).  All I have to do is get bumped just right.
I fell off my steps and my leg bent funny and now I have one on the side of my knee. Sometimes with me they
are instant, other times they take years to grow. I've been sliced and diced so many times my son asked me if
I was a "secret slicer". Thank God, my kids have inhertied my sick and demented sense of humor.
             Nana Monster

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 8/29/2009 10:01 AM (GMT -6)   
Blue, I have gone to the doctor and had him check my neck cause it feels like I have lumps in the glands but it is knots in the muscles from MPS (myofacial pain syndrome). Many with fibro also have MPS. I have knots in my muscles all over my body. I was getting massages but I've had so much other stuff going on this summer I haven't had one in a long time.
luv and hugs
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Regular Member

Date Joined Jul 2009
Total Posts : 25
   Posted 8/29/2009 10:12 AM (GMT -6)   
Marlee, thank you for giving me some hope that this is not cancer.  What are your lumps like?  The ones on the side of my neck are like 2 soft mushy eggs, but a little flatter.  The family doctors couldn't feel anything like a lymph node - no small harder bumps.  Just large barely firm lumps maybe 2 inches long and 1 1/2 inches wide. I'm really scared cause I thought big lumps always means cancer.  One of the doctors insisted that he had seen this before and it involved muscle issues.  I guess I should go to an oncologist and go through whatever tests they want.  I don't know if they came up overnight, but I just noticed them one day about 3 weeks ago.

Veteran Member

Date Joined Nov 2008
Total Posts : 2854
   Posted 8/29/2009 10:43 AM (GMT -6)   

Blue...I was dx'd with myofascial pain syndrome Marlee.  My lumps are like grisley, spongy knots and are in the muscle.  I'm no doctor but cancerous lumps are usually hard and do not move under the skin, or so I was told when I was concerned about them.  I get a massage when I can stand to be touched to have them worked out.

I stay as far away from Google as I can get!  Don't go there...the worst case scenario always pops up first!



fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium

Forum Moderator

Date Joined Apr 2005
Total Posts : 17060
   Posted 8/29/2009 10:54 AM (GMT -6)   

I get muscle knots and a gentle massage helps.  I also have a fatty tumor on my back.  It is mushy and sometimes it itches.  Just get it checked out and try not to worry.  It could be really nothing.


Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Regular Member

Date Joined Jul 2009
Total Posts : 25
   Posted 8/29/2009 12:40 PM (GMT -6)   
Thanks, Sherrine.  Yeah my bumps are mushy and soft.  I am getting am MRI next week and will see a doctor that maybe can tell me what this is.  I've already had 2 colom surgeries this year and need another as well as gallbladder removed, so neck surgery would not be welcome.  I'm trying not to completely freak out this week-end, but I'm not doing very well.

Regular Member

Date Joined Jan 2008
Total Posts : 159
   Posted 8/29/2009 4:16 PM (GMT -6)   
hey blue, Just to mention i have enlarged lymph nodes on my left side under my are that luckily are fatty too. Also, I have lympomas that are really mushy soft bumps like you describe. when i went into my doc he said if it were firm and harder, then it's time to worry. So relax if you can. Wait to see what the outcome. STRESS is bad for fibro!!! smilewinkgrin I will be thinking of you. Good luck Laura :-)
Cervical spine surgery 2004, C-section 1986, Cholecystectomy 1999, Thoracic and Lumbar injury 2000. Anxiety/depression 2008. Fibromyalgia 2009, Thyroidectomy 2008. Degenerative disc disease. IBS. Asthma, Rheumitoid Arthritis, Sacroillitis, Scolylosis, disc bulge in L5/S1.possible ankylosing spondylitis. Meds: Lisinophil, xoponex, symbocort, pulmocort, troponal, vitamin 2000 D, Vitamin B complex, Hydrocodone, Tylonal Arthritis, Cymbalta.prednisone and Lyrica

Nana Monster
Veteran Member

Date Joined Jul 2009
Total Posts : 949
   Posted 8/29/2009 4:28 PM (GMT -6)   
     Did you have any pain with the lumps? I know that sometimes when a lypoma surfaces  it will have like a
burning soreness. I've had about 7 removed and have another 5 still in me. The one on my neck sounds like
yours. It's between my collarbone and at the top of my lung so they don't want to take it out. It's been there
for about 20 years. Others like the one in my knee are instant.
   Good luck with your testing.

Regular Member

Date Joined Jul 2009
Total Posts : 25
   Posted 8/29/2009 8:54 PM (GMT -6)   
Thanks for the comments.  There was no burning or soreness with the two lumps.  I'm not very attractive so I never look in mirrors, but I just reached up to adjust my collar and thought "what's that?"  So there was no indication they were there.  I calmed down later today and will try to make it through the next days/weeks to obtain a solid indication of what these are.  There are no more bumps or lumps and no smaller hard lymph gland type inflammations.  It's so great to be able to share my fears with others - thank you.
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