Genetic Joys And New

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SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 8/28/2009 10:43 PM (GMT -7)   
Think I may have posted awhile back about my father. But I found out Thursday now I have fibromylagia. So what can I expect to go though besides me griping and smacking the doctor when he pushes a spot and says "does this hurt" ? Anything I can do to help myself?
 
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
Undergoing Radiation Taking Lorazepam (Ativan) on Radiation Days


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 8/28/2009 10:52 PM (GMT -7)   
Exercise every day, even if it's only a little bit and even if you don't want to. Yoga and stretching are good for most people. Sleep. Eat small meals with protein every few hours to keep you blood sugar even. Learn moderation; take a lot of breaks when you have to do something. Find something that brings joy to your life. Work on your friendships so they don't slip away. Find an in-person support group so you can find good doctors and people that understand you. Lighten up on yourself - don't feel guilty about every little thing. Laugh at least once a day.

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 8/28/2009 10:56 PM (GMT -7)   
Oh your funny Dagger. Seeing your name reminded me of an eposide on JAG. But the soldiers name was Digger on that. Well I laughed a lot today, (tried to teach mom how to swim haha) Should I see a specialist person doctor?
 
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
Undergoing Radiation Taking Lorazepam (Ativan) on Radiation Days


myjoy
Veteran Member


Date Joined Feb 2009
Total Posts : 686
   Posted 8/29/2009 3:54 AM (GMT -7)   
I have had either a rhuemetologist, or now, an internist, for my fibro doctors. I've heard that some people do fine with their General Practitioner.....but I would say the other two probably keep up on the latest in fibro better than a GP.
DX fibromyalgia 2007, osteoarthritis, obsessive-compulsive disorder OCD, depression, anxiety, sleep apnea, hysterectomy.

fluoxetine (prozac), abilify, trazodone, lorazepam, prilosec, nabumetone, hydrocodone, c-pap machine.


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 8/29/2009 8:40 AM (GMT -7)   
Hi Desiree and welcome to the family. It doesn't matter what title your doc has as long as they believe in fibro and keep up with the latest info on it. My GP dxd me and sent me to a rheumy to confirm. I have since changed rheumies. When I was trying to choose one I talked to his nurse to get his opinion on fibro and MPS both and whether he was a firm believer in both. I also have auto-immune diseases so I do need a rheumy. Finding a great doc is half the battle with fibro.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 8/29/2009 8:59 AM (GMT -7)   
Hi, Desiree, and welcome!  You can have a full and enjoyable life in spite of fibromyalgia.  A lot has to do with your attitude.  You can make yourself miserable or you can enjoy life.  Take each day at a time, look at your blessing instead of the things that bother you.  You will be surprised how the pain can drift in the background!
 
Be sure to read the Fibro 101 thread...the first thread on the forum.  There are links to good information all about fibromyalgia.  The more you know about this illness, the better you learn how to control it.
 
I'm sorry you have this diagnosis but we will be here to help you.  Hope to hear more from you soon.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 8/29/2009 11:32 AM (GMT -7)   
Hi Desiree, Welcome ! You are now a forum fibromite!

I feel I know you already. Before I joined the forum I was lurking around the
Fibro forum and Lupus Forum. I have read many of your posts. I am a fibromite who also
has Scleroderma and my rheumy also believes I have MCTD.

As you already know fatigue is such a dominant factor in this crazy illness that we
have to be careful not to overdue. I know you have Wegeners and there are some
overlap in symptoms.

Take Care ....Oh you asked about what kind of doc do we see... A rhuemy

Robin
 
 possible MCTD, Raynauds, Fibromyalgia, Osteoporosis, Degenerative
 Disc Disease, Osteoarthritis, High Blood Pressure, Migranes and
 Pseudothrombocytopenia, biopsy shows a Scleroderma variant
 MEDS: Methotrexate, Savella, Boniva,Lisinopril, Folic Acid, Flexeril, and
 Vitamin Supplements


SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 8/29/2009 12:03 PM (GMT -7)   
Now I'm kicking myself. I have a Rheumy for the autoimmune disease LOL. Im telling him about my dx of fibro next week! lol.
 
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
Undergoing Radiation Taking Lorazepam (Ativan) on Radiation Days


gonuts
Regular Member


Date Joined Jan 2008
Total Posts : 159
   Posted 8/29/2009 12:58 PM (GMT -7)   
Hey Smurf, sorry your a fibromite now. But I'm selfish, cause now i can see your post here too. That makes me happy. Your an inspiration to me. I love your attitude and the funny way about you.. You may have read, i lost a very dear friend how too was very funny just like you.. Thanks for being you. Laura
Cervical spine surgery 2004, C-section 1986, Cholecystectomy 1999, Thoracic and Lumbar injury 2000. Anxiety/depression 2008. Fibromyalgia 2009, Thyroidectomy 2008. Degenerative disc disease. IBS. Asthma, Rheumitoid Arthritis, Sacroillitis, Scolylosis, disc bulge in L5/S1.possible ankylosing spondylitis. Meds: Lisinophil, xoponex, symbocort, pulmocort, troponal, vitamin 2000 D, Vitamin B complex, Hydrocodone, Tylonal Arthritis, Cymbalta.prednisone and Lyrica


DreamspinnerCheryl
Regular Member


Date Joined Aug 2009
Total Posts : 59
   Posted 8/29/2009 5:18 PM (GMT -7)   
Got my "official" diagnosis today of fibro. My ARNP has suspected it for some time now-I suspect she's especially aware, as she has a wicked case of RA herself.

Sooooo....I'm starting on Savella tomorrow, I admit, with much trepidation. We'll see how this goes.

Gentle hugs all around....
Cheryl, new "fibromite".
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