HELP new here w/ ?'s about Savelle

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Seekingchange
New Member


Date Joined Aug 2009
Total Posts : 1
   Posted 8/29/2009 6:18 AM (GMT -7)   
Hi all,
I'm new here but not new to Fibro. Was diagnosed in 2005 but I was sick and searching for the answer since 2000. I made it till 2007 with taking much medication but during my pregnancy I finally gave in. Once I stopped nursing my son in 11/2008 I agreed to start the meds. I've done Zoloft and Lyrica (on which I gained about 70 pounds!) Cymbalta, Pristiq, Namenda (for memory), Amien, ambien CR, Vicodin, Tylenol with Codein, Lortab............there's more but I think you get the picture. Anyway I tried all these with no improvement and terrible side effects. I'm currently on Flexiril, Percocet, Lexapro, Trazadone (which has now given me involuntary hand movement/twitches) and Neurontin still with little relief. As a result of all this I reach the point where I was no loger able to work on 3/09. So I finally get to my question..........My Rheumatologist started me on Savella two days ago. I'm not hopefull at all simply because nothing else has worked. In order to take this I have to stop the Lexapro which does help some and doesn't give me terrible side effects, BUT if I miss even a day I am like Oscar the grouch on steriods! I saw a few comment here about Savella (none good) I'm hoping for more feedback from all who have tried it...................has it worked for anyone?
Thanks for your help.....glad to have found a place where people may understand how I feeel.

Fibromyalgia
IBS
Insomnia
Depression

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 8/29/2009 7:14 AM (GMT -7)   
Welcome to the forum Seekinchange,

I know you know what you are dealing with. You have lived with it for 4 years. Sorry to
hear you are still looking for the right med combo for pain relief. There are so many of
us still looking, myself included.

I am one that has been on Savella for 6 weeks, no bad side effects and no relief either.
Today I am having a doozy of a flare, I hope this isn't an indication of how this stuff
is suppose to work. I guess of all the meds I have tried, the one that seems to take the
edge off is Flexeril. I usually use it when I am flaring, so I don't take it on a daily basis.

There has been a lot of discussion on Savella here. Alot who have tried it had really bad
nausea. You can read old savella posts by going to the right upper corner of the page
and put in a search. I have not heard of anyone here finding relief using it.

Glad you have joined our fibromite family. Come here often to vent or ask questions.

Robin
 
 possible MCTD, Raynauds, Fibromyalgia, Osteoporosis, Degenerative
 Disc Disease, Osteoarthritis, High Blood Pressure, Migranes and
 Pseudothrombocytopenia, biopsy shows a Scleroderma variant
 MEDS: Methotrexate, Savella, Boniva,Lisinopril, Folic Acid, Flexeril, and
 Vitamin Supplements


Jhemi
Regular Member


Date Joined Jul 2009
Total Posts : 223
   Posted 8/29/2009 7:42 AM (GMT -7)   
All Savella did for me was make me agitated.

upbeat
Regular Member


Date Joined May 2009
Total Posts : 240
   Posted 8/29/2009 1:44 PM (GMT -7)   
Hi, I was on Savella and had to go off due to an increased heart rate. I have a sensitive heart though and any meds that have an increased heart rate as a side effect usually affect me. How did you do on Cymbalta? Savella and Cymbalta are similiar, both SSNRI's, but Savella affects norepinephrine more than Cymbalta (according to my doctor).

My doctor said the other day she is not going to use the Savella much anymore because of the side effects. It has to be helping someone out there, the clinical trials seemed so promising. Maybe it will the one for you! Please let us know how you are doing with it.
Fibro dx 2004, RLS, raynauds


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 8/29/2009 4:27 PM (GMT -7)   
Hi and welcome!

I'm not on Savella but I just wanted to welcome you to the fibro family. This is a great bunch of people who are always willing to help and share their experiences plus will be there with a shoulder to lean on whenever you're in need. It's our 'specialty'. ;-)

Warmly,
Chutz
Play fair. Don't hit people. Say you're sorry when you hurt somebody.
~Robert Fulghum

(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums
(/|\)


vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 8/29/2009 4:41 PM (GMT -7)   

Hi and welcome!  I have not tried Savella or Lyrica and don't intend to as I know several people who have been on it and DO NOT have any of the relief they portray in the commercials.  That's not to say some haven't been helped.  Plus I don't have health insurance and couldn't afford it anyway.  The one thing I would caution you about, however, is to not stop the Lexapro cold turkey.  I have been weaning off this drug for months and as soon as I miss two days have horrible withdrawal effects...mainly brain zaps.  Maybe the Savella is in the same family of drugs so you won't experience withdrawal side effects, but I would ask your doc.  Sometimes they switch medications around and you think it's the new drug giving you problems but it's really the withdrawals from the one you have stopped taking.  Just my opinion and I have just come to the conclusion that sometimes...Less is more!

Donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


DreamspinnerCheryl
Regular Member


Date Joined Aug 2009
Total Posts : 59
   Posted 8/29/2009 5:08 PM (GMT -7)   
The latest bank of labs came back, and I got the letter from my practicioner today-it's "officially" fibro. She wants me to start the Savella, meaning I have to stop the Pristiq I'm still trying to adjust to. Good grief, I'm still getting over the Effexor withdrawal! If I'd read more positive comments on the Savella, I might feel differently. Oh, well-can't say that the Pristiq is helping all that much, guess I'll give Savella a go. Ya'll be prepared to hear me from me on this......thank goodness you're here!
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