What is THIS??

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austin73
Regular Member


Date Joined Dec 2008
Total Posts : 51
   Posted 8/30/2009 12:18 PM (GMT -7)   
I have been getting severe stabbing pain in my jaw - feels like it is right under my skin like it's a nerve or something like that.  I have had this happen before but didn't happen very often and it would happen a few times over about an hour and then disappear.  It was always in the same spot.  Now it seems to be higher up on my jaw instead of on my chin and it isn't going away.  It is sore to the touch and feels like an electric shock.  I am also developing a cold and GOD FORBID I SNEEZE!!  That just about puts me thru the roof with pain shooting thru my jaw.  Is this what is called myofascial pain (sp?) - or some type of nerve pain related to fibro??  Anybody have something similar to this?

SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 8/30/2009 1:23 PM (GMT -7)   
It sounds like this could be TMJ..I don't know a lot about it, but I know there are a lot of people here who have it. Hopefully one of them will come by soon and be able to give you more info!
"The ideals which have lighted my way, and time after time have given me new courage to face life cheerfully, have been Kindness, Beauty, and Truth"~Albert Einstein


Sherrine
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Date Joined Apr 2005
Total Posts : 17094
   Posted 8/30/2009 2:12 PM (GMT -7)   
This could be TMJ that is affecting you.  Myofascial pain doesn't have anything to do with the face.  I thought it did because of the name but then I researched it and it has to do with the fascia that is part of the muscle.
 
If this continues, you might want to see your dentist and see what they have to say about it.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 8/31/2009 1:06 AM (GMT -7)   
I had such a pain in my cheek, last winter. It was devastating. All I could do is lie in bed with a tube of oral gel, and a cold pack. Couldn't do a thing for 4 days until I got to a dentist. At first she looked and said; "I don't see anything". Then with a different angle x-ray, she found it. A tooth (molar) cracked clean down to the root. It had to come out sliver by sliver and she said, "if any piece penetrates the sinus, you will need emergency surgery". I said "get it out of there! She did. It took like 2 hours of pulling, but out it came. I felt 1000 percent better. Good Luck.

SassyMyKitty
Veteran Member


Date Joined Apr 2009
Total Posts : 673
   Posted 8/31/2009 4:20 AM (GMT -7)   
I would see a dentist. I have TMJ, and it doesn't really sound like it to me. It may affect everyone differently, but, with me, it is this really deep aching pain all along my jaw bone, especially up in the joints, and when it is really bad, my jaw cracks every time I open and close my mouth. It sounds to me like you have a nerve in your mouth that is being affected somehow. I would go to a dentist, and if they find nothing wrong, talk to your doctor. Sorry I don't have better advice for you.
'Cause when push comes to shove
you taste what you're made of.
You might bend til you break
'cause it's all you can take.
On your knees you look up
decide you've had enough.
You get mad.
You get strong.
Wipe your hands
shake it off.
Then you stand.
 
-"Stand" by Rascal Flatts
 
 


anstar
Regular Member


Date Joined Jan 2005
Total Posts : 249
   Posted 8/31/2009 9:42 AM (GMT -7)   
Sounds like trigeminal neuralgia. Check out the symptoms and see if fits for you. I've been diagnosed with it. It's excrutiating! The wind, a stray hair, *anything* that touches that side of my face when it's flaring, causes an electrical pain that will drop you to your knees.

austin73
Regular Member


Date Joined Dec 2008
Total Posts : 51
   Posted 8/31/2009 10:12 AM (GMT -7)   
After reading about trigeminal neuragia it sounds like almost exactly the type of pain that I am having. It feels like an electric shock exactly as they describe. I have an appointment with my GP next week so I will bring it up to him. This is the first time that it has hung around for more than a day. It has now been three days and I can't touch my face in that area or I get a shock like feeling. What do you do for treatment? It sounds like there are a few choices but do any of them really help short of surgery?  How bad do you have it? Does it get worse and spread to other areas so more than one place - like your entire face/head hurt? That would be horrible to have that electric shock feeling going on all over - it takes my breath away from just the one little area that mine is occurring in. 

anstar
Regular Member


Date Joined Jan 2005
Total Posts : 249
   Posted 9/28/2009 7:10 AM (GMT -7)   
Hey austen, I'm sorry it took so long to get back to you. <blush> What did your doctor say about TN?

austin73
Regular Member


Date Joined Dec 2008
Total Posts : 51
   Posted 9/28/2009 10:35 AM (GMT -7)   

He ignored me like usual and said I must have done something to irritate my jaw.  That was the end of the conversation.  He then asked me how my depression was doing.  WHAT DEPRESSION? I haven't seen him in a long time since he is my general practitioner here in town. I went thru the Mayo clinic's fibro program this  summer and before that I was seen by a rheuematologist at Mayo last spring. Since then I have been seeing a psychiatrist here in town - he's in charge of getting my meds straight. I hate saying that. It sounds like I am a head case! I am now switching doctors.  I am fed up with him and his nurse.  The nurse has told me that I just have "live with it" and before I was diagnosed she told me that "maybe it's just age" - I am 35!! All he wanted to do in the first place was load me up on more anti depressants - like most doctors that think we are crazy.

I am actually going back on lyrica.  I don't have any diagnosis for my jaw pain but that should help with the nerve pain I guess.  I am going back on lyrica - I call it my FAT PILL - because Cymbalta and Savalla did nothing for my pain.  When I get my new general practitioner - who has been recomended to me by another fibro patient- I will discuss with her the jaw pain thing.  I will probably be seeing her within the next month - as soon as I start swelling up from the lyrica.  I guess I might get an Rx for a water pill this time if I swell like I did last time.  That's what the pyschiatrist said anyway.

It just is a never ending battle.  turn


anstar
Regular Member


Date Joined Jan 2005
Total Posts : 249
   Posted 9/28/2009 1:06 PM (GMT -7)   
I'm sorry. :( I completely understand the frustration with doctors. I'm almost convinced that nothing short of walking into the waiting room carrying my head in a duffel bag will get me anything other than, "It's just the fibro. You'll have to learn to deal with it." <sigh>

Lyrica messed with my vision so I had to switch to Cymbalta. I'm just about out of it now and will not be able to afford to refill it. I need a generic option with my health insurance. Name brand is just too expensive for a single mother working for the state.

Hang in there! :)

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40565
   Posted 9/28/2009 1:36 PM (GMT -7)   
Hi Anstar,

Try to get your cymbalta, I understand that running out can be very difficult. Withdrawal symptoms are bad. Can you get some samples to tide you over? Be careful.

I hope that you don't have to deal with that. Maybe you haven't been on them long enough for the withdrawal. You should always taper with this medication. Let the doctor know that you are out.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


anstar
Regular Member


Date Joined Jan 2005
Total Posts : 249
   Posted 9/29/2009 11:35 AM (GMT -7)   
I'm already onto my free samples. The doctor gave me a 30 day supply of samples. I need to call her and ask if I can have some more. She's pretty good at helping me out. She put me on a cholesterol medicine that costs $105!!! a month (*with* my insurance...eep) and gave me a card that allows me to get it for $5 a month for a year. That'll help a lot, until the year is up. Not sure what I'll do then. :(

I suffered from severe withdrawl when I went off Lyrica. I'm not looking forward to experiencing that again. Because of the vision problems, I was not able to wean off. I had to stop cold turkey and that was awful!
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