I have to vent before I can help anyone else today!!!!

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Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 9/8/2009 12:44 PM (GMT -7)   
First of all I didn't get up til 8:15 this morning and I didn't even feel groggy when I got up...yeah. That was the only part of my morning that was good.
 
I had been sitting at my computer for a little while and Krissy had something she shouldn't have so I got up quickly to get it away from her and I got lightheaded, nothing unusual for me, but this time I wasn't close to a chair cause I was in the hall and I noticed my left hand kinda jerking, I guess you could call it, didn't do it very many times but enough to scare me. I got back to the couch and called the doc office and spoke to the nurse, the first thing she asked me was if I was keeping my liquids to a liter or less a day??? No I'm not, I have sjogren's and it is impossible for me to keep my liquids to a liter or less a day. The liter or less is cause of the low sodium problem I have been having. She says to me, "we can't do anything to help you if you don't keep your liquid down to a liter or less a day but if the jerking starts and doesn't stop you need to go to an ER".  I have not had my sodium checked for three weeks, she doesn't even know what it is. mad She did say she would let the doc know about the jerking when he comes into the office the next time, where is he???
 
I was livid and in tears when I got off the phone with her and I will never speak to her again. She is not a doc, not even a PA. How dare she dx my problem as being from the low sodium when she doesn't have that right to begin with and doesn't know what my sodium is, it could be back up by now and this could have nothing to do with low sodium.

I already had made an app with my rheumy for next Tues and I will talk to him and catch him up on everything that has been happening with the celiac and the sodium problem and ask him for a referral to an internist in his area.

I was so upset I had to get out of the house awhile and I had a shopping list that I had been making for several days so I went and got that done to relax.

Okay, now I feel better after unloading that on my fibro family. smilewinkgrin

luv and hugs

Marlee

 

 

 

 

 

 

 

 

 



Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 9/8/2009 1:00 PM (GMT -7)   
Oh Marlee,

That nurse was an incompetent idiot. It almost most makes you feel like not calling your doctor's office when there is a problem. However, I think you should inform your doctor about her treatment of you.

The fact is, she works for you. YOu are the reason she receives a salary and, you deserve respect.

I hope your hand shaking ends. I get up slowly, when I think about it, to reduce the dizziness which my doctor has explained in not a real medical problem. I do not like that feeling.

Donnaeil

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 9/8/2009 1:22 PM (GMT -7)   
Marlee, I am so sorry you are upset. You had a frightening experiance and you did the
right thing by calling your doctors office. I would of been frightened too. I don't know
how that nurse could diagnose you over the phone. If the doctor has not called back yet,
I would give him a call. It will give you peace of mind to be able to hear what he thinks.

It was good that you gave yourself an opportunity to relax, by doing some shopping.

Relaxing vibes coming your way!!!!!!!!

Robin


 
 MCTD( Scleroderma, Lupus, and RA)  Fibromyalgia, Raynauds,
 Osteoarthritis, Osteoporosis, Degenerative Disc Disease
 Hypertension, Migraines and Pseudothrombocytopenia
 
 MEDS: Methotrexate, Savella, Flexeril,  Diltiazem, Boniva
 Vitamin D, Calcium Supplements and one a day multi vitamins
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 

Post Edited (crazykitty) : 9/8/2009 2:27:37 PM (GMT-6)


vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 9/8/2009 1:50 PM (GMT -7)   

Marlee, that is terrible and not to take away from your experience but when my mom was INSIDE an MRI machine they faxed her GP AGAIN (they had done so two days before) for a report they needed for comparison.  Then they called when there was no response  and they got an answering machine...so I DROVE to the doctor's office and picked up the report.  When I asked the receptionist/nurse if she had gotten the fax, she looked at me and said..'Does it look like I have the time to sit next to that machine all day long and wait for fax's to come in...it's in the back room."  Then I asked why the answering machine kept picking up for hours on end she said "We eat lunch around here, you know."  My mom's MRI showed lung cancer and she died shortly thereafter...when the lung doctor found out how that nurse has treated me he reported her to some ethics agency and she was fired.

I know how you feel, that's all I can say, and I am sorry that someone with no idea what your situation is treated you like that.

 

huggies

Donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


myjoy
Veteran Member


Date Joined Feb 2009
Total Posts : 686
   Posted 9/8/2009 2:02 PM (GMT -7)   
Sorry you were treated so badly, Marlee. I hope you feel better soon.
DX fibromyalgia 2007, osteoarthritis, obsessive-compulsive disorder OCD, depression, anxiety, sleep apnea, hysterectomy.

fluoxetine (prozac), abilify, trazodone, lorazepam, prilosec, nabumetone, hydrocodone, c-pap machine.


Littleneck
Veteran Member


Date Joined Mar 2009
Total Posts : 599
   Posted 9/8/2009 2:31 PM (GMT -7)   
Marlee, I know just how it feels to be on the receiving end of a miserable health care worker on a power trip. I'm sorry. They use their control for evil and not good, and I think there's a special place in hell waiting for health care workers who do not belong in the industry but persist in making us more miserable. I never, ever let things like that go unreported, and I try to let as many people know as possible. Feel better soon. Deep breaths.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 9/8/2009 2:42 PM (GMT -7)   
Marlee, you have had a terrible summer, haven't you!  My first question is.....how did the nurse know you were supposed to keep your liquids to 1 liter a day and also how did she know about your low sodium problem?  That is information that only your doctor should know.  My doctor's nurses never discuss my health.  If I call with a problem, they write the info down, speak with the doctor, and call me back with what the doctor had to say.  They aren't privy to my health records.  I'm glad you are going to find an Internist.  They have more education and can probably see what is going on.
 
My second question is.....did you buy yourself another purse today?  That ALWAYS makes you feel better!  devil
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 9/9/2009 7:08 AM (GMT -7)   
Thanks everyone, I can always count on my fibro family!!! This is still bugging me and it will til I make sure the doc, which I have known for about 16 yrs, knows she is practicing medicine behind his back and to me that is what she is doing. She is the main reason I have been wanting to change doctors. My DH goes to the same doc so even if I don't go back he will here about this from DH.
 
Had I not been so upset yesterday morning over the jerking I would have let her know who was helping paying her salary.
 
I have not had anymore problems with the jerking, thankfully.

No, Sherrine my shopping yesterday was for household things, no Goody's for me. devil
 
Today I get my eyes checked. Let's see if I need quad focals. smilewinkgrin
 
luv and hugs
Marlee
 
 
 
 
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


jjuice2
New Member


Date Joined May 2009
Total Posts : 9
   Posted 9/9/2009 8:54 AM (GMT -7)   

Hello everyone,

As you can tell, I hardly ever post but I read nearly every day.  I had to comment on this topic though. 

I love, love, love my neurologist/pain mgmt. doc but dealing with his staff is a total nightmare.  If I need a refill on something I have to call every day because in the past, they have let me run out of meds that you are not supposed to stop suddenly (like Topamax) even when I called w/plenty of notice.  I've learned that when I leave his office, I have everything i need because if I don't and have to call to get something, it will be a battle to get it.

When I tell him about it, he gets angry but tells me straight up how hard it is to find good help. He'll give me tips on how to try to get around the system next time, but it never works.  He really means well...he's just too busy to keep a handle on what all of his people are doing all of the time. When I tell people what I go through w/his office they think I'm crazy for staying there, but what do you do?  I adore the dr. ya know?

Anyway, Marlee, I can relate to nurses/staff playing the go between in a not-so-helpful way and I'm sorry you had to go through that.  It's always the last thing we need, of course!

Julie


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 9/9/2009 9:55 AM (GMT -7)   
Quadfocals???  Do you have four eyes, Marlee?  Oh, I forgot about the eyes in back of your head! devil
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 9/9/2009 10:01 AM (GMT -7)   

Marlee shops for purses?  Well, I have one I will donate.  It has woodchucks and squirrels on it and is made out of disinigrating burlap.  Plus it smells like gopher pee.  I think it used to be a knitting bag but I think it would look lovely with your new quadfocals.  Four times the beauty as you look at through those all those lenses.

Huggies

Donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 9/9/2009 10:03 AM (GMT -7)   
Don't ya just hate stupid?
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross

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