MCTD dx confirmed today

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crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 9/8/2009 2:43 PM (GMT -7)   
 
 
   Hi, turn
  I have been following all the posts and ready to jump back in there again!
 
 Today I went and saw my rheumy. He confirmed what I guess I already knew.
 I have Mixed Connective Tissue Disease. My overlap is Scleroderma, Lupus and RA.
 Scleroderma is my dominant disease in the overlap. My meds are staying the same
 with the exception of my blood pressure medication Lisinopril is changed to dilatiazem,
  which is a calcium channel blocker, which will help with the Raynauds. The Methotrexate
  I take is an immunosuppressant that is supposed to slow down disease activity.
 
  I had a skin biopsy August  2008 that had confirmed the scleroderma, and I
  have noticable skin changes. My lupus is real simular to my Fibro but I can tell the
  flares apart, because I generally get the rashes with the Lupus. I do not have the
  typical malar rash across my cheeks. I get rashes on my chest and neck. I have a
  erythma patch on my forehead, it looks like a bike tire patch, thank goodness I
  wear bangs!
 
  I do have some wonderful news to share. The Savella finally kicked in and have not
  had the burning achiness for a week now. I am still very fatigued, but that will pass.
 
  I am glad to be back posting. I don't know how many posts I will get in a day, it
  is getting harder for me to type because of my arm.  
 
  Have a wonderful day turn
 
  Robin
 
 MCTD( Scleroderma, Lupus, and RA)  Fibromyalgia, Raynauds,
 Osteoarthritis, Osteoporosis, Degenerative Disc Disease
 Hypertension, Migraines and Pseudothrombocytopenia
 
 MEDS: Methotrexate, Savella, Flexeril,  Diltiazem, Boniva
 Vitamin D, Calcium Supplements and one a day multi vitamins
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 


crazyoldcatlady
Regular Member


Date Joined May 2009
Total Posts : 194
   Posted 9/8/2009 2:45 PM (GMT -7)   
So glad you got some answers. I hope relief is soon to follow.
Donna
 
I would be unstoppable...
                           if I could just get started.


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 9/8/2009 2:59 PM (GMT -7)   
Robin, I'm so sorry you are having all of these problems but it is good that you finally know for sure what is going on.  Now, I'm sure there will be a better plan of action for you.
 
I'm so glad the Savella has kicked in for you.  It couldn't have come at a better time!  I hope you get things under control and start to feel better.  I'm praying for your arm.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 9/8/2009 3:06 PM (GMT -7)   
Robin...you are such an inspirtation...really.  I cannot fathom having to deal with so many painful disorders at once, and with such a fabulous, positive attitude.  I am so happy you now know what you are dealing with and that you get the relief you need and deserve.
 
Many, many hugs to you, my friend.
 
Donna
fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 9/8/2009 6:06 PM (GMT -7)   
Thank You for your sweet replies. This forum provides such a great opportunity to vent,
share iinformation, ask questions and help others. Being here I do not feel I am alone.


I am blessed to have found this forum

Robin
 
 MCTD( Scleroderma, Lupus, and RA)  Fibromyalgia, Raynauds,
 Osteoarthritis, Osteoporosis, Degenerative Disc Disease
 Hypertension, Migraines and Pseudothrombocytopenia
 
 MEDS: Methotrexate, Savella, Flexeril,  Diltiazem, Boniva
 Vitamin D, Calcium Supplements and one a day multi vitamins
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 


myjoy
Veteran Member


Date Joined Feb 2009
Total Posts : 686
   Posted 9/9/2009 3:52 AM (GMT -7)   
Thank you for being such an inspiration. I hope you get relief from everything soon. Good thing about the savella.
DX fibromyalgia 2007, osteoarthritis, obsessive-compulsive disorder OCD, depression, anxiety, sleep apnea, hysterectomy.

fluoxetine (prozac), abilify, trazodone, lorazepam, prilosec, nabumetone, hydrocodone, c-pap machine.


FMsaddenedspirit
Regular Member


Date Joined Jul 2009
Total Posts : 236
   Posted 9/9/2009 7:36 AM (GMT -7)   
Robin,
I am sorry you have so much going on with your health . at least now you do have a DX . and that alone helps... as its so frustrating knowing there is somerthing else going on but not knowing what..
I am gald you have found a Good Doc also... they are so hard to find. I hope nd pray that you start feeling somewhat better Soon .
You always are very caring in your responce to every body . and have much insite
 
Thanks for all you give to us... Take care of yourself first ,stay strong.
 
Huggles.
Spirit ~


upbeat
Regular Member


Date Joined May 2009
Total Posts : 240
   Posted 9/9/2009 11:58 AM (GMT -7)   

Robin,

Glad you finally know for sure what is going on. I am so glad the Savella is working for you!! yeah


Fibro dx 2004, RLS, raynauds

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