New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

New Member

Date Joined Sep 2009
Total Posts : 1
   Posted 9/9/2009 5:33 PM (GMT -6)   
I have fibro.  Since 2001.  I also have interstitial cystitis.  I am on Lyrica.  It is making me fat.
Just started it after all the years of hurting.  I like it okay.  It does help on my bad days and
it keeps my hands and arms from drawing up and under and all that good stuff.  Having a interstitial cystitis flare up right now from the Rhuem. changing me to Savella.  It made me have no pain but I also had no Brain!!!  Could have committed  if I could have made myself find the bedroom or any other room.  I was just weird.  Bad side effects from that stuff including this flare up.  Taking pain meds for my IC(interstitial cystitis)right now and I hate I have to.  I am not walking well all this week.  Nothing seems to work in the leg area.  I am thinking on getting a cane.  My kids say no cane!! I am 40 and my life is well not real great right now.  I do take anti depressants and anti anxiety drugs.  I take a handfull of pills every night which in its on right is depressing.  I just wondered if someone could refer me to a good doctor.  That Rheum. thought I was crazy.  I just knew he did so I didn't go back just go to my Pcp.  I think they think I am a little off too.  I just hurt all the time and I am tired all the time and I just need a break from this stuff.  I live in Chattanooga TN and would love a great doctor that would listen.  I have a family to raise luckily I don't have to work but I do need to do the mom stuff.  This is a weird condition that needs to be studied enough to know that we are not crazy women.  You can email me anytime.  I need someone to talk to that has the same problems as me.  They have canceled the fibro support group around here before I could get started.  Please if anyone can help me with doctor info that would be great!!!
Thanks for listening to me whine!! One of those days.

Post Edited By Moderator (Sherrine) : 9/10/2009 12:07:08 PM (GMT-6)

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 9/9/2009 7:35 PM (GMT -6)   
Cindy, Welcome to the forum, you are among friends here, people who understand the daily
struggles of living with Fibromyalgia. For some good info check out fibro 101 on the left
top side of the page.

I am sorry you are hurting so bad. Finding a good doctor is sometimes difficult. I have been
through a couple before I found one who I thought was knowledgeable, uderstanding and

I lived in Chattanooga for three years before any of my fibro problems, it is a beautiful
city. I miss walking the pedestrian bridge, a breathtaking place to excercise. I don't know
how many rheumys are in that area, but you could contact your healthcare provider to
see what your options are.

Have you tried Cymbalta? My body could not tolerate it. Others here found good luck.
Savella just started to work for me, I am one of the lucky ones who didn't have any of the
bad side effects. It kicked in on week seven. Hoping you will be able to find a great rheumy
who can provide you with a great med combo.

Sometimes soaking in a hot bath can help with the pain, it helps relax the muscles. I found
the more stressed I am the , the more I hurt. I do deep breathing relaxation therapy
during the day, it takes the edge off a little bit. I also take flexeril if I am flaring.

Sorry I could not provide you with a name of a good rheumy in your area. I did want to
welcome you. There might be a member here that can provide you with that info.
Hope you find relief soon!!!!!!

Come here to vent, comment or ask questions. There is always someone here willing to


 MCTD( Scleroderma, Lupus, and RA)  Fibromyalgia, Raynauds,
 Osteoarthritis, Osteoporosis, Degenerative Disc Disease
 Hypertension, Migraines and Pseudothrombocytopenia
 MEDS: Methotrexate, Savella, Flexeril,  Diltiazem, Boniva
 Vitamin D, Calcium, Folic Acid, Multi-Vitamins

Post Edited (crazykitty) : 9/10/2009 11:11:06 AM (GMT-6)

Forum Moderator

Date Joined Apr 2005
Total Posts : 17057
   Posted 9/10/2009 1:16 PM (GMT -6)   

Hi, Cindy, and welcome!  You said  you didn't work but you had all the "mom stuff" to do.  Well, let me tell DO work!  I used to teach and when I left teaching to take care of my family, I never worked harder in my life!  It's not an 8 hour job.  It's a 24  hour job and you need to be ready for anything to happen.  It's tough having fibro with young children.

I use ibuprofen with food, extra strength Tylenol, malic acid/magnesium supplements, vitamin D, gentle stretching and gentle exercises, and massage to help with my fibro.  I've managed this way for over two decades and have had a full and enjoyable life in spite of fibromyalgia.

Be sure to check out the Fibro 101 thread...the first thread on the forum.  There are links to good information about fibro including links about malic acid/magnesium supplements, vitamin D (may people with fibro are deficient in these vitamins and nutrients), and gentle stretching exercises.  Back posts give a ton of information, too.

I use an Internist for my fibromyalgia.  I have never been to a rheumatologist.  I just didn't want to add another doctor to the mix.  Here is a link that gives names of doctors in every state that treat fibromyalgia.  Maybe one is close to you.  I hope so.

I'm so glad you found us and joined in!  We have a wonderful group of members that love to help one another and, as a bonus, we really do care about each other, too.  Don't hesitate to ask questions because we are here to help you.  I hope to hear more from you soon.


Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Regular Member

Date Joined Jul 2009
Total Posts : 236
   Posted 9/11/2009 3:49 PM (GMT -6)   
Hi Cindy ...

Welcome to our Fibro family .. as you see lots of great people here. and like Sherrine said people really do care here.

I just wanted to pop in and say Hi and welcome... Sorry you to have to live this life with Fibro.
lots of good information here. a great place you come to and people do understand what you are going through..

Take care. and I'll catch you later when I have more time to post ok..

Spirit ~

Veteran Member

Date Joined Mar 2009
Total Posts : 599
   Posted 9/12/2009 5:21 AM (GMT -6)   
Hi Cindy, welcome. This is a great supportive community. I'm 41 and take Cymbalta, Baclofen, gabapentin (neurontin), and Tramadol. The Baclofen and Tramadol are new for me; I am wondering if Cymbalta is making my anxiety worse. I won't post too much tonight because I'm way up in the "fog" but wanted to say hello.

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 9/12/2009 10:43 AM (GMT -6)   
Hi Cindy and welcome to the family. Isn't Chattanooga where Ruby Falls is??? Sherrine is right being a MOM is the hardest job there is, if you turn it upside down it spells WOW.
I hope Sherrine's site is helpful for you in finding a doc. I have a good rheumy but need to find a good internist for primary doc. I really believe having a great doc that you can connect with and understands you and respects your decisions when it comes to your health care is the key. I thought I had that with my GP but the quality of care has been on a down hill slide and I found out this week they have been bought out by a big conglomeration which explains a lot of what has been going on. Since there are no docs on the site listed in my area I'm going to ask my rheumy Tues for a recommendation. Since the nurses work the closest with the docs I asked to speak to my rheumy's nurse to get his beliefs on fibro and MPS before I hired him. I didn't want to waste my time or money on someone to find out he didn't believe in fibro. If you know other people in your area with fibro they can tell you how their docs handle their care.
Good luck and I hope this flare passes soon.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
Vit D/calcium

Veteran Member

Date Joined Mar 2008
Total Posts : 519
   Posted 9/12/2009 9:49 PM (GMT -6)   

Cindy, Welcome!! I am newly returned from being away for awhile from the group. You will find that there are many loving & helpful people here.

I too was on Lyrica last year for about 9 months. I finally had to go off because I had gained so much weight while on the Lyrica & also Cymbalta. Many people have had good results with them, I just couldn't handle anymore weight gain. Right now I am trying to lose all the extra weight, which is very hard when you are in pain much of the time!

I hope you are able to find a good Rheumatologist. It makes all the difference to have a doctor who is familiar with Fibro. I know how you feel when you say that they all think you are crazy! I used to feel that way too, until I found my wonderful doctor & Rheumy.

I'm sorry there are no support groups close by, but you will find that this site is a support group & family all in one. Someone is always here to listen or talk anytime you need!

I wish I could be of more help! The Fibro 101 thread is a great help.  I hope you get to feeling better soon!


Never regret something that made you smile!

Fibromyalgia*Osteoarthritis on Spine*SleepApnea

Menopause*RLS*Spurs on Spine*Allergy/Sinus

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, October 23, 2016 3:32 PM (GMT -6)
There are a total of 2,710,669 posts in 298,921 threads.
View Active Threads

Who's Online
This forum has 153471 registered members. Please welcome our newest member, Angelz777.
406 Guest(s), 6 Registered Member(s) are currently online.  Details
cupcakespinkgal, akckhakhss, Asnape3228, Girlie, yancync, CaliJR

Follow on Facebook  Follow on Twitter  Follow on Pinterest

©1996-2016 LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer