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Waterbaby
Regular Member


Date Joined Aug 2008
Total Posts : 96
   Posted 9/9/2009 10:27 PM (GMT -7)   
I don't mean to be a big baby or bring everyone down, but I just have to write this. I have reached a point where I don't think I can take the pain anymore. Doctors think that fibro and pain are caused by depression, but I can honestly say I wasn't depressed until all this pain set in. I was a happy person with a bubbly personality. Now, I am a person that no one wants to be around. I try not to talk about the pain, but it is so bad I can't pretend that I am happy. I am on Lyrica and Ultram ER. When I first started the Ultram I thought it was a godsend. My pain levels decreased significantly. Now, after months of taking it, it no longer brings me much relief. I am seeing a very nice rheumy, but he just doesn't seem to know how to help me. I broke down in tears at my last visit and all he could talk about was changing or increasing the antidepressent that they have me on. So now I am on another antidepressent for the last 3 months and I still feel awful. Why can't they get it? Of course we are depressed. We are in constant, unrelenting PAIN. Who wouldn't be depressed if they felt that way? I am taking the highest level of Ultram ER and don't know where to turn next. My doctor doesn't prescribe vicodin or oxycontin. He doesn't think they would help, and he won't prescribe narcotics anyway. All the way home tonight after work all I could think about was driving my car off the highway, into a ravine.. I don't need antidepressents, a counselor, another doctor.... I NEED PAIN RELIEF!!! My husband knows I am ***, but he has pretty much tuned me out when I talk to him about my pain. If anyone knows of something I can take, or something I can do to get some relief, please reply to this post. Thanks for listening.

I understand you are unhappy but we have rules about what you can post here. Please be careful about what you write.

Post Edited By Moderator (Jeannie143) : 9/10/2009 7:35:50 AM (GMT-6)


FMsaddenedspirit
Regular Member


Date Joined Jul 2009
Total Posts : 236
   Posted 9/10/2009 4:42 AM (GMT -7)   
 
WaterBaby
 
I am so sorry you are having such a hard time , I truly do understand the pain .
there are still some Doc's that don't see the need for pain Med's , I myself do not understand this thought...I have been to a couple and only had one visit. This type of doc is not for me. 
 
 I know we are all Different and react Different to Meds and Fibro, CF . and there are some that can do ok without taking narcotics for pain...
I am not one of them sadly . I do believe if I where not taking my pain Meds I would be bed bound , there is no way I could do it . I am lucky and have a great Family doc. who takes care of all my pain Meds.
I have never tried the Meds you are on..except Lyrica . but I would look for a Different Doc. you do have rights as a chronic pain Person., the right to pain relief and a life.
 
I know when I 'm real bad I take lots of Hot showers or a hot hot bath. this helps. And I have a lot of pain in my legs feet.. so I try to keep then up as much as Poss...
 
Please take care.
 
Can you see another Doc ?  confused  
 
I  do hope you get some relief soon.. You will be in my prayers.
 
Let us know ok.. Best wishes .   wink   



Spirit ~


Chiyo
New Member


Date Joined Feb 2009
Total Posts : 15
   Posted 9/10/2009 4:46 AM (GMT -7)   
Hello
I think we all feel this way i have been dealing with my Fibro Pain for a Little over 5 years now and just this past month was diagnosed with Fibro..I too am on Lyrica 75mg twice daily and Ultram 50 mg 2 pills 2 times a day plus xanax 0.25 mg for anxiety...I just called my Neuro yesterday to ask him to up my medicine because it doesn't seem to be working as it did before well i was told by the nurse as far as my ultram i could take 2 at a time 3 times daily.( i know that part wont work i have been on ultram for 5 years) i have made myself lower my dose on it on and off for years to keep me from taking so many. Anyways she is supposed to call me today to let me know if the neuro wants to up my xanax and my Lyrica so i am waiting on that. As far as depression i feel you there honey i also have been diagnosed with epilepsy in december 13th 2008. I get depressed alot but it is ONLY from the pain and lack of pain relief i to wish the doctors would understand this part. Please do not be suicidal don't let your conditions take you over as a person i know its very hard at times but suicide is not the answer thats for sure!! There are plenty of great people on this site to talk or vent to to try and help you out. Remember this quote my husband always says. { No Matter how bad you have it, There is some poor soul out there that has it ten times worse then you} He is a disabled american veteran so we know what the sucky part of life is all about we just try to keep going and not let our conditions control our souls and lives. God Bless You and i hope you can get some sort of relief sweety.
Chiyo

kathydownunder
Regular Member


Date Joined May 2009
Total Posts : 447
   Posted 9/10/2009 6:34 AM (GMT -7)   
Waterbaby
I can understand where you are coming from and I have been there for me I need to change my medications about every two months for them to work for me. My Doctor would tell me it was the way my body handled them. She has Fibor as well, so she was interested in what worked for me. While she was still working we had a great relationship she asked me to give her any news i found out and we would go from there. For me if we tried something and it did not work we changed it. Changing worked for me some times I have never been able to go back on those tablets and others I change around, but I never did this with out my Doctor knowing. Keep hanging in there I love to tell people that remission does exsist I had two years off it nd neven now I am nowhere near as bad as I was before that time.
Kathy

SassyMyKitty
Veteran Member


Date Joined Apr 2009
Total Posts : 673
   Posted 9/10/2009 6:35 AM (GMT -7)   
I am really sorry that you are in so much pain. I know how you feel because I have been there. I was in the ER one time for my hip, and there was an older woman in the waiting room with me who also has fibro. She told me, "If you have never thought of suicide, then you don't really have fibromyalgia." Normal people don't understand what we are going through. They think that we are just depressed. But with depression, there is usually an underlying cause. I really think you need some help. I know you don't think it, but it sounds to me like you do. If your doctor won't prescribe you a better pain med, then maybe you need to find another doctor. I tried Ultram. It didn't work for me. My doctor was kind enough to give me lortabs. They are only 5s, but they are so much better than nothing. I really am sorry you are going through this. You might consider telling your doctor how you feel. Tell him that you need something stronger because you are in so much pain that you just can't deal with anything at all. I hope you start feeling better. I wish you the best. Take care. *very soft hugs*

Post Edited By Moderator (Jeannie143) : 9/10/2009 8:17:01 AM (GMT-6)


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 9/10/2009 6:55 AM (GMT -7)   
Ok, for those of you who don't know how this disorder works, the fibro wipes out a lot of our serotonin in the brain. Serotonin is used in the perception of pain, regulation of sleep cycles as well as mood. Anti depressants are used to help prevent the "burning off" of the serotonin. THEY AREN'T JUST FOR YOUR DEPRESSION. Doctors prescribe the antidepressants to help your brain cope with the pain.

Also, unkind as it seems, you have to start coping with some level of pain every day. You will most likely never get back to your pain-free life. It is a bitter pill to swallow but the sooner we understand that, the sooner we can all get on with the best we can make of our lives. I use heat, muscle rubs, hot showers and massages from my hubby to help in a non medicated way. And because I have had the symptoms of this dam* disorder for my entire life I have learned to just keep going. I had no alternative... this was my life. You can do this, too. I find that whenever I do something totally absorbing like sewing, reading, cake decorating, eggury, writing... I don't notice the pain. I can't run from the pain and just like labor pains, I run toward it.

Sometimes at night I just lay there and analyze the pain, where it starts, where it goes, how strong it is... I think that by doing this I separate the emotional reaction from the pain perception, much the way that narcotic analgesics work. I have some darvocet for days I have to deliver cakes and I'm in a really bad way but I also have degenerative joint disease in my spine and carrying heavy cakes is like a knife in my back. I save the darvocet until I'm almost incapacitated. I have to because it is so addictive.

Hang in there and just KOKO! (Keep on keepin' on!)
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


cydful
New Member


Date Joined Jul 2009
Total Posts : 17
   Posted 9/10/2009 7:00 AM (GMT -7)   
Waterbaby,
I'm fairly new here, but I wanted to say I really feel for your situation. I don't know why so many people and doctors want to blame fibro on depression, but I believe that it's not depression that causes fibro but fibro causes the depression.

For instance, many years ago, when I was young, athletic, healthy and in my 'prime' years I started going to the doctors for severe fatigue. At that time I was also beginning to experience the muscle aches, which I mentioned to my doctors, including the neurologist and sleep doc that I was seeing to try to figure out my sleep problem. He diagnosed me with narcolepsy and mistakenly stated that my muscle issues were cataplexy from the narcolepsy. After many different meds and not feeling any better I gave up, thought the docs had to be wrong, and attempted to ignore my symptoms.
Several years later, I couldn't ignore my symptoms any longer, the pain became much much worse-I went back to the same primary doctor I started with, mainly for the reasoning I knew he had already had my past history written down about the body aches, etc.; that is when he suspected fibromyalgia, and started the tests all over again. They then realized that not only did I have 'mild' narcolepsy but also sleep apnea. My point is, several years ago I was not depressed and the doctors did not even mention depression to me; after attempting to deal with all the symptoms I became depressed during the years-from the pain, fatigue, migraines, issues at work from all the pain, fatigue, and migraines. Still, my doctors do not push the depression issue at all-actually I think it may have only been mentioned once or twice at the very beginning-then dropped.
I hope you are able to find the right doctors that realize we are only depressed from having to deal with the pain, etc. Hang in there, I wish the best for you.

Post Edited By Moderator (Jeannie143) : 9/10/2009 8:16:14 AM (GMT-6)


austin73
Regular Member


Date Joined Dec 2008
Total Posts : 51
   Posted 9/10/2009 9:01 AM (GMT -7)   
I am sorry you are struggling and in so much pain.  I am also dealing with doctors that will not give me much for pain and seem to be more concerned with depression than my pain. I was finally able to get flexeril but I can only take that at bed time since it knocks me out. Can't function at work with that. Docs around here believe that a person with fibro pretty much has to "deal" with it and hope that either Lyrica (made me swell and gain weight), Cymbalta (did nothing) or Savella (trying it now-nothing so far) works or you are SOL. They think that it will just create another problem to deal with if they give you a narcotic to help with the pain. If some of these doctors could be in our shoes for just a little bit they would understand and be a little more sympathetic and willing to help. I also have a husband who doesn't understand and really doesn't care to hear about it.  He is to self involved to worry about me.  Please keep going and know that life will get better one of these hours, days weeks. I keep thinking that every single day - what choice do we really have?  WE DON'T! JUST KEEP PUSHING ALONG! We are all there right with you going thru the same crap - that's why we have this place - so we can vent and have people that totally understand!

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 9/10/2009 10:34 AM (GMT -7)   

Hi, Waterbaby.  I'm so sorry that you are having so much pain.  I agree with you in that you probably developed the depression after getting fibro but, I also agree with your doctor in that your pain is worse because of your depression.  Anybody would be depressed having chronic pain for years.  I've had fibro for 22 years and don't remember what it was like to have no pain. 

I do NOT agree with the woman in the ER that Sassy was talking about who said that if you've never thought of harming yourself then you don't really have fibromyalgia.  I've had a lot of pain throughout my years but never once did I ever even dream of harming myself.  Instead, I found ways to control the pain and live my life.  There is no way I was going to allow fibromyalgia to control my life and my thinking.

I do not take narcotics.  I did talk to my doctor about it once and he explained that when taking narcotics, many times you will need more and more to get the same results that you got when you first started taking it.  That can lead to other problems and I didn't want to go there.  (This is probably what your doctor is talking about.)  He did give me Vicodin for break through pain but I never resorted to it because I know that the pain waxes and wanes with fibro and that I would be feeling better eventually.  I didn't want my body to become dependent on a narcotic.  That's my opinion.  I know there are many on this forum that take narcotics and their decision is between their doctor and themselves...just like my decision is between my doctor and myself.  I'm not saying I will never take narcotics since I don't know the future but, as long as I can control the pain, I'm going to keep doing what I'm doing.  

What am I doing?  I take ibuprofen with food and extra strength Tylenol for pain.  I use malic acid/magnesium and vitamin D to help with pain and fatigue.  I wrote all about these in the Fibro 101 thread in case you are interested.  I also do gentle stretching exercises, also found in Fibro 101, and I do gentle exercises.  I like to walk and swim.  When I started walking, I could barely go past a few houses.  Now I walk my dog every morning for one mile.  I do a lot of walking in my home, running errands, etc.  If you sit or lay too much with fibro, you will be stiff as a board and in more pain.

I go for gentle massages.  I see a massage therapist that not only is licensed but certified.  She has to take classes every year to learn all the new techniques.  The massages really do help me a lot.  I take hot showers and use moist heat.  You can get a Bed Buddy at Walgreen's and other places or you can make your own by taking a tube sock, filling it 2/3's full of long grain rice (not instant) and tying a knot at the end.  Pop it in the microwave and it gives off moist heat due to the moisture in the rice.

I also think positively.  I never found that thinking negatively helped me one iota.  It just made me more miserable and more depressed, caused more tears, more pain, etc.  So, if it wasn't helping me, I wasn't going to do that!  Instead, I look at the good things about my life.  I look around at all the blessing and the things that I can do with fibromyalgia.  I keep myself busy and, like Jeannie said, the pain fades somewhat in the background.  I love doing genealogy because I totally forget the pain but yet I'm doing something of value for future generations of my family.  Anyway, I think you have the picture.

Sunday I started scrubbing baseboards.  Trust me, I put this off as long as humanely possible but it had to be done and I'm a widow and don't have anyone that can to it for me and I can't afford to hire someone to do it.  I had no choice.  The dirt was driving me crazy.  I knew I would be in a world of pain.  I started and worked several hours on Sunday and several hours on Monday and, yes, I was in extreme misery.  Tuesday I had a massage and that helped me so much.  Yesterday I thought I'll mop the floors now.  The worst was over with scrubbing baseboards, after all.  Well, for some reason, mopping was even worse than scubbing!  When I got done, I could hardly move at all and the pain was wrapping around my rib cage and it hurt a lot to breathe, too.  I took my ibuprofen and several hours later took Tylenol and these still didn't help. 

Then, I remembered that I had a back massager in my closet.  I completely had forgotten about that.  It is a pad that I can put in a chair.  When I sit down, the pad goes from my neck, down my back, until it reaches the back of my knees.  It has five zones on it and vibrates.  You can keep it on one zone or have it go up and down your back.  It also has heat.  Well, talk about a lifesaver!  This is now my new best friend.  If any of you can get this, I highly advise it.  By evening, I had total control the the pain again.  What a blessing.

So, Waterbaby, I've written a lot here to show you that you can work around the pain.  You can find things that will help you.  You just have to keep searching.  Keep reading on this forum because people do share what works for them...just like I have done for you.  Some of this could help you, too....especially the walking.  Once you get moving and looking toward the future with anticipation and hope, your frame of mind, your attitude will be affected and you should feel better.  I do  hope you feel better soon.

Sherrine   


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 9/10/2009 11:41 AM (GMT -7)   
Waterbaby you feel free to vent on here anytime you think you can't take anymore of this. Sometimes just sharing how you feel with those that understand where your coming from helps.
 
For the most part pain isn't my biggest problem but fatigue is but I've had some pretty good flares over the years of having fibro.  I'm not on narcotics cause I don't think I need them at this time but that is my choice and I don't blame anyone that does take them for relief.
 
For me the depression and anxiety problems came long before the fibro did. I take 100mg of amitriptyline a day and I do believe it does help with the pain. I take up to 3mg of xanax a day. I was on these before I was dxd with fibro which may be why the fatigue was much worse than the pain even from the beginning.
 
I also use a TENS unit to distrupt the pain signals to the brain when the pain is really bad. I have a DIL that also has fibro and her doc recently rxd a TENS unit for her and she couldn't believe the difference it makes on her back which is her worse area.
 
I use heat in any form dry, wet or heated in the microwave it doesn't matter to my body. I use lidoderm patches for areas close to the skin like my hands or ribs.
 
My GP doesn't know it yet but I fired him Tues mostly due to his nurse but it was time to change docs anyway. I have a great rheumy for the fibro and auto-immune disorders I have. I see him Tues and will ask for referral for an internist. I don't care how many docs I have to hire and fire before I find one that understands me and will work with me no matter what the problem is.
 
Hang in there and things will get better.
 
luv and hugs
Marlee
 
 
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


gonuts
Regular Member


Date Joined Jan 2008
Total Posts : 159
   Posted 9/10/2009 1:16 PM (GMT -7)   
Hi, I just wanted to say, I am suffering especially today with awful pain. But my rheumy doc unlike your doc, wanted me to see a pain management doc. I told them i do not want to become my sister-in-law. she is addicted to her pain meds. I see what they are doing to her.. I just don't want to be there. So i will try to tolerate the pain as much as possible. I was prescribed Hydocodone for my back by my neurologist. But i only use it if i absolutely need to for sleep. Otherwise, they can have that stuff.
I will pray for you to find some kind of relief and/or resolution to your pain. :-)

Take care, Laura wink
Cervical spine surgery 2004, C-section 1986, Cholecystectomy 1999, Thoracic and Lumbar injury 2000. Anxiety/depression 2008. Fibromyalgia 2009, Thyroidectomy 2008. Degenerative disc disease. IBS. Asthma, Rheumitoid Arthritis, Sacroillitis, Scolylosis, disc bulge in L5/S1.possible Lupus and/or ankylosing spondylitis. Meds: Lisinophil, xoponex, symbocort, pulmocort, troponal, vitamin 2000 D, Vitamin B complex, Hydrocodone, Tylonal Arthritis, Cymbalta.prednisone and Lyrica


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 9/10/2009 3:23 PM (GMT -7)   
Waterbaby, I am sorry you are in so much pain. I understand pain too, what has helped
me get through the day is being aware of all my activiy. Am I doing too much? Do I need
to rest? Am I feeling tense? If I answer yes to any of these questions, I sit quietly and
concentrate on my breathing, taking in deep breaths through the nose and slowy releasing
them through my mouth. Sometimes just five minutes of relaxation therapy will help with
the pain. I am not saying the pain will magically disapear, but will take the edge off.

I take Savella for fibro pain, it has helped with the burning achy muscles, and I use
Flexeril, not on a daily basis. Excercise helps relieve stress and the less stress the better.
When I am stressed the more pain I feel, that is why it is important to see what you can do
to help eliminate stress. I really hope you are able to find relief soon!

Robin
 
 MCTD( Scleroderma, Lupus, and RA)  Fibromyalgia, Raynauds,
 Osteoarthritis, Osteoporosis, Degenerative Disc Disease
 Hypertension, Migraines and Pseudothrombocytopenia
 MEDS: Methotrexate, Savella, Flexeril,  Diltiazem, Boniva
 Vitamin D, Calcium, Folic Acid, Multi-Vitamins
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 


Canamia
Regular Member


Date Joined Dec 2008
Total Posts : 25
   Posted 9/10/2009 6:00 PM (GMT -7)   
gentle hugs! i know how depressing it gets when u are in constant pain and when it seems no one understands y u "complain" so much it makes it worse. my bf thankfully is supportive and wishes he could help. The days i cry from pain he feels helpless. I was just put on soma yes and it seems to help some for a few hrs. Im only on 2 xs a day to try it for 6 days and so far i am happy w it. Of course once it wears off i want to cry as i cant take another one foe a while. I truly hope you can find a good dr who understands the disorder. My pain dr thinks there arenlt as many "TRUE" Firbo pts as there are dx which i dont agree w but she does try to help some. Goodluck sweety!

Waterbaby
Regular Member


Date Joined Aug 2008
Total Posts : 96
   Posted 9/12/2009 3:37 AM (GMT -7)   
First of all thank you to everyone for your kind replies. Many of you seem to know that sometimes this is the only place where we can talk about the emotions we are struggling with everyday. I am not an ungrateful person bemoaning my fate and very existance. I am very grateful for the blessings in my life, but there are times when the pain becomes so unbearable that it is virtually impossible to think of anything else. These are times when I simply cannot take my mind offmy problems by concentrating on a hobby or some such thing. These are the times when my mind is searching for an answer and I find myself in a very dark place. Please don't judge me or others like me who dare to mention that sometimes we feel we cannot go on another day. Please don't tell me I just need to accept the pain. I have already accepted it. Another issue is that we are not all suffering the same level of pain. I have a job in retail and am also babysitting my Granddaughter on my days off. I don't have a choice. I have to work. As for the babysitting; I volunteered to do that. Anyway, I can't take time to work on a hobby to distract myself. Just dealing with work is kicking my butt. Please listen when someone is crying for help, don't just assume they are weak willed people who are not grateful to be alive.
That is just not the case!
bulging discs in neck & thoracic region, low back pain, arthritis in lumbar region, diabetes, high blood pressure, depression, anxiety,
meds: enjuvia, pristiq, actos, amaryl, lyrica, hyzaar, elavil, ultram
 
 
"Two paths diverged in a yellow wood, and I, I took the one less traveled by...And that has made all the difference."  Robert Frost


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 9/12/2009 7:16 AM (GMT -7)   
No one said that you were ungrateful and weak willed.  I don't know where that came from!  You came on to vent, which you did, and you asked for help.  You have had a lot of heart-felt resposes.  I know that I spent about 30 minutes pouring out my heart to you trying to give you ideas that might help you with your pain and to give you hope.  You sounded like that's what you needed by what you wrote on your first post.  If I am one that offended you, that wasn't my intent.  I'm only here to try to help people and share what has helped me all of these years.  I hope you are feeling better soon.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 9/14/2009 8:05 AM (GMT -7)   
Waterbaby, I have just finished re-reading this thread and noticed you added your dx
in your second post.

I see from your signature that you have bulging disc problems and lower back pain. I
was wondering if you have ever met with a neurosurgeon to discuss back surgery.

I know that disc problems can cause excruciating pain because I have been there. In 2005
I had back surgery, a lumber laminectomy. Before the surgery I was on Vicodin 24/7, and
muscle relaxers for nine months. The surgery gave me relief! No surgery is guaranteed,
but it might be something for you to consider. I still have problems with my back but not
with the hellish pain I once suffered. Hope you can find relief soon!

Robin
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 


MT Lady
Veteran Member


Date Joined Jul 2008
Total Posts : 955
   Posted 9/14/2009 10:16 AM (GMT -7)   
Hi Waterbaby,
I completely "get" where you are at. I believe I've been there myself and I continue to have some very bad days, when the pain combined with the fatigue are simply too much for me to handle. I think what adds to it is having a husband that doesn't get it. I believe mine doesn't either. He becomes very frustrated, I think, because he can't "fix" me and your husband might be feeling the same way. It still doesn't help us, I realize that.

I recently saw a new rheumy. I was seeing one for 20 years, a wonderfu woman who really worked with me and had so much compassion for my pain. She retired and in the past year, I've seen three rheumys, the first two refused to work with me with medications, so I left their practice and continued to search. This woman, I believe is great. I strongly recommend you find another doctor.

Has your doctor recommended a muscle relaxer? I can't tolerate Flexeril, just leaves me feeling hung over the next day, but this new doctor put me on Skelaxin, just one at night, which I believe is really helping me. I also take one gabapentin (Neurontin) at night. Both of these meds are helping with my lower back pain, which is much worse during the night. Since I've been taking these two meds, the pain is not waking me up during the night, which indeed is a blessing.

I wish you well,
Miriam

Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.


FMsaddenedspirit
Regular Member


Date Joined Jul 2009
Total Posts : 236
   Posted 9/14/2009 12:46 PM (GMT -7)   
Waterbaby
 
I am sorry if you felt like anybody was telling you to just accept the pain.. Honey we all go through times when we just really just feel we  can't take anymore.. I really don't think anybody meant anything derogative about there response to you ..
I have re read all the responses also , there are quit a few coping idea's , but no one is saying you are weak. or just not trying ..
If I said anything to upset you .. please understand not my intention at all. I do sincerely apologize...
 
 I think we all just wanted to help, and when you are in this place , constant pain place, there really is not much anybody  can do to help except give support and understanding.
 
my pain is pretty sever also. I think I have a pretty good understanding.. but once again we are all So different
 
I pray for all here ,, sending you soft Fibro Huggles. and prayers for a better day ..
 
Take care my dear.
 

Spirit ~


rusty73
New Member


Date Joined Sep 2009
Total Posts : 5
   Posted 9/14/2009 4:16 PM (GMT -7)   
Waterbaby,
 
Wish there was a switch to take the pain away.  I am now on a med list of Cymbalta, Nuronton, Vitamin D, Calcium, along with Vicadin.  Recently a Dr. that I saw suggested to my Dr that I try replacing the the pain pills with a muscle relaxer.  Actually this does help at times but I do like having the pain pills.   I was sent to a phycical therapist who showed me some simple exercises that, at times, helps with the pain relief.  My favorite is wall pushups.  It helps my back some when the pain starts.  You will find though after reading the replies that everone has to find there own  combination of meds and exercises that work for them.  The one thing I am getting is that I am not alone in this and you need to know that there are many that are in the same situation.  My hope is that Dr.'s will one day find the cure of all cures.  When things start getting the worst come back to this forum and you will see you are not alone.
 
Rusty turn

Waterbaby
Regular Member


Date Joined Aug 2008
Total Posts : 96
   Posted 9/14/2009 7:18 PM (GMT -7)   
Dear Sherrine and Fmsaddenedspirit you did not offend me at all. Thanks for taking time to reply to my posts. I really appreciate it! Hope you all are feeling better soon.
bulging discs in neck & thoracic region, low back pain, arthritis in lumbar region, diabetes, high blood pressure, depression, anxiety,
meds: enjuvia, pristiq, actos, amaryl, lyrica, hyzaar, elavil, ultram
 
 
"Two paths diverged in a yellow wood, and I, I took the one less traveled by...And that has made all the difference."  Robert Frost


FMsaddenedspirit
Regular Member


Date Joined Jul 2009
Total Posts : 236
   Posted 9/15/2009 4:59 AM (GMT -7)   
Good morning Waterbaby ,
 
Just wanted to say .. I hope today is a good day for you ... yeah
 
You will be in my prayers.. along with eveybody on this board.
 
Lots of soft hugs
Spirit ~


Luvzminis
Veteran Member


Date Joined Apr 2008
Total Posts : 2568
   Posted 9/15/2009 2:05 PM (GMT -7)   
I take malic acid/magnesium (Thanks, Sherrine!!) alfalfa, calcium, and flax oil.  I order from Puritan's Pride.  Knocking on wood, but the stiffness and pain have been better, tho cold weather is on the way, so will see.  Now if I could just stop the fibro fog and occasional bouts of fatigue....  best of luck and God bless.
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