Foods that set off Fibromyalgia

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Ladygkp
New Member


Date Joined Sep 2009
Total Posts : 7
   Posted 9/13/2009 5:27 AM (GMT -7)   
Hi,
I'm a newbie at this so please forgive me if I've put this question in the wrong place. I have been reading with great interest peoples experiences with food that sets off the pain associated with Fibromyalgia. Could people send me the list of food/s that causes their Fibro to flare up please. Also, foods that make you tired would be really helpful too.
Cheers,
Ladygkp.

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40595
   Posted 9/13/2009 8:01 AM (GMT -7)   
I am not sure, but I think carbs cause a lot of fibro distress. Hopefully other more knowlegable members will come along with more advice for you.

Hugs, Karen

PS welcome to the fibro forum. You might want to read fibro101. There could be something there that will help you.
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Jhemi
Regular Member


Date Joined Jul 2009
Total Posts : 223
   Posted 9/13/2009 9:13 AM (GMT -7)   
I think it depends on the person, for me it seems to be sugar, chocolate, anything with caffeine <because it keeps me awake>.

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 9/13/2009 10:13 AM (GMT -7)   
Hi and welcome to the forum Lady, Be sure to check out the fibro 101 thread on the top left
corner of the page. There is a lot of good information.

I know if I eat too much of anything that is salty like pretzels or chips I will probably be
hurting. Water retention adds to muscle achiness. I try to drink plenty of water throughout
the day and try to eat healthy. My weakness is choclate, and try to eat it in moderation.

Excercise, relaxation, and soaks in a hot bath help me with the pain. Doing something fun
also helps me. I take Savella daily and use Flexeril only when I am in a flare for my Fibro.

Are you on any medication?

Come back to post, comment, vent ask questions. There is always someone here to help.

Robin
 
 MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia
 MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 
  
 
 
 
 
 
 
 
 
 
 
 
 
 


Ladygkp
New Member


Date Joined Sep 2009
Total Posts : 7
   Posted 9/13/2009 3:09 PM (GMT -7)   
Hi Crazykitty,
Thanks for this info. I was on medication for depression "Pristique" but since we've moved to the mid north coast I don't need the meds for depression and so therefore any help they were giving me for the Fibro has gone. I've never heard of Savella or Flexeril or been offered them by my Dr....could you give me some more info on them please.
Thanks so much,
LadyG.

Ladygkp
New Member


Date Joined Sep 2009
Total Posts : 7
   Posted 9/13/2009 3:13 PM (GMT -7)   
Thanks so much to all who answered this query. I'll check out the Fibro 101 for sure and will go on an elimination diet to see if I can find out what sets off mine, even though at this stage I seem to have it all the time especially in my feet and hands.
Cheers,
LadyG.

WhiteChocChip
Regular Member


Date Joined Jun 2009
Total Posts : 439
   Posted 9/13/2009 3:33 PM (GMT -7)   
I think the foods that set my fibro off are the ones that are unhealthy. Greasy fried foods, highly processed foods, too much caffeine, etc.

I try to get as much whole grains as possible, don't drink much coffee, and eat as much fresh fruits and veggies as possible. I like scrambled eggs mixed with a little cheese and loaded with veggies with a can of V8 or a Carnation Instant breakfast. For snacks I try to go for nuts and dried fruit. Other meals I usually eat more veggies than meat and more meat than carbs. My typical plate of spaghetti will have a small amount of whole wheat noodles drowning in meat sauce (made with wine, red pepper flakes, and parmesan cheese) topped with a pile of fresh mushrooms and green bell peppers sauteed with garlic. I do tend to eat more cheese than I probably should, but I always try to have it with whole wheat breads ... like quesadillas on whole wheat pitas. YUM!

I don't really think there's any special way to eat for fibro sufferers other than to just eat healthy :)

Ladygkp
New Member


Date Joined Sep 2009
Total Posts : 7
   Posted 9/13/2009 4:02 PM (GMT -7)   
Thanks for the reply/s....will take all into consideration indeedy.
LadyG.

donnaeil
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Date Joined Jun 2006
Total Posts : 1156
   Posted 9/13/2009 6:24 PM (GMT -7)   
I can eat almost anything. However I need good protein and lots of carbs because I swim a lot and need energy.

Donnaeil

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 9/13/2009 6:58 PM (GMT -7)   
Hi LadyG., You asked me about Savella and Flexeril.
 
Savella was approved by the FDA for the treatment of Fibromyalgia. It is a serotonin
booster and helps the neurotransmitters in our brain function properly, and helps with
pain regulation. Flexeril is a muscle relaxant I use when I am flaring.
 
You can go to the top right side of the page and put in a search for savella and flexeril
to read old posts about members experiances using these medications.
 
You also said most of your pain is in you feet and hands. have you been checked for
arthritis or Raynauds?
 
Take Care, :-)
Robin
 
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 


Ladygkp
New Member


Date Joined Sep 2009
Total Posts : 7
   Posted 9/14/2009 1:47 AM (GMT -7)   
Thankyou for this information Robin. I do have a lot of muscular pain and tenderness in many other places, but I notice it mosty in my feet and hands. I've never heard of Raynauds so I will look it up. My GP doesn't seem to think I have arthritis.
Cheers,
LadyG.

FMsaddenedspirit
Regular Member


Date Joined Jul 2009
Total Posts : 236
   Posted 9/14/2009 4:58 AM (GMT -7)   
 
Hi Ladyg
 
Welcome to our Fibro Family ... I am sorry that you have Fibro . Its a hard life to live...
 
You have come to a great place though .. lots of support. you can ask questions , vent , and even ramble Like I do LOL..
 
What's nice about this board is every body really does care.  
 
I have had a lot of interest in this question myself lately ... some of use on here are trying to eat more protein. as Carbs do seem to make things worse.. , fried foods, anything greasy makes me hurt and not feel well... I think Sugar also , but on this I'm not sure if the Non sugar sweeteners are good for us ether. I seem to have read something about that somewhere.
I try to eat healthy , not to much processed foods, backed way off the fried foods, eat more Veggies, Fruit ( but be careful lots of sugar in the fruit. ) Yogurt for snakes
 
 
I don't drink any soda/s except Jobs. sugar free carb free.
I do drink Coffee , but have started switching to Tea after a few cups , compared to a pot of coffee. so  its a slow process.
 
I have also read that some people developed  a gluten , and or lactose intolerance.
 
I am interested in what everybody responds .
 
I look forward to getting to know you .. Take care
 
Have a Blessed Day tongue

Spirit ~


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 9/14/2009 6:32 AM (GMT -7)   
Hi LadyG and welcome to the family. I see others have directed you to the fibro 101 thread.
 
I haven't found any foods that trigger fibro. I did find out recently that I have celiac and can not eat glutens but I have been off glutens, only a few slip ups, since the end of July and it has helped my digestive system but not the fibro. I'm still hoping as my small intestine heals I will be able to absorb more nutrients and have more energy since that is my main problem. I have been trying to add more protein to my diet. I wish it was that simple for me to cut out foods that trigger it.
 
Read and ask questions and we are here for you.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


MT Lady
Veteran Member


Date Joined Jul 2008
Total Posts : 955
   Posted 9/14/2009 7:39 AM (GMT -7)   
Like Marlee, I went glutein free for almost two years and found no real difference in my fibro fog or pain. I also eliminated coffee, regular and decaf...made no difference. Currently, I am low carbing it, following South Beach Diet and I find if I have too many carbs, even if they are "good" carbs, just a day high in carbs, I really think it affects the fibro. Someone told me a while ago that carbs can cause an inflammatory process in your system, which in turn causes pain. Certainly makes sense but I really don't know if this is true and if it is, if it's true in everyone??? You might want to try it for yourself and see. I think most will agree here that fibro seems to affect everyone differently, different medications seem to help some and not others, etc., which makes it even more difficult to manage.
I wish you well,
Miriam

Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.


KerriH
Regular Member


Date Joined Mar 2008
Total Posts : 316
   Posted 9/14/2009 11:23 AM (GMT -7)   
Welcome Ladygkp!
 
I haven't noticed any difference in my symptoms by eating more of, or refraining from, any particular food.
 
I do know that Jokat swears that cheeseburgers & Diet Coke are extremely therapeutic, though I'm not sure if any studies have been done to prove this.  tongue

Kerri

Fibromyalgia since 2007

"No pessimist ever discovered the secret of the stars or sailed an uncharted land, or opened a new doorway for the human spirit."
 
Helen Keller


Ladygkp
New Member


Date Joined Sep 2009
Total Posts : 7
   Posted 9/14/2009 7:23 PM (GMT -7)   
Thankyou all for your answers to my questions. I am a Ceoliac so combined with the Fibro it's a real it gets a bit tricky. I don't eat gluten or wheat though and find if I accidently do my pain does seem a bit worse. I think I am going to try the no carbs no fried food thing and see how it goes. I have also been looking into food additives and am gob smacked by what's put into our food that we don't really realise.
Any how....keep on keeping on....one of these days we shall get a break through I'm sure.
Blessings to all,
Lady G.

Littleneck
Veteran Member


Date Joined Mar 2009
Total Posts : 599
   Posted 9/14/2009 10:22 PM (GMT -7)   
For me it's coffee and salty foods. I can no longer eat things like potato chips (not that I ate lot anyway), snacky things, extra salt to cooked food - I find that my mouth is really sensistive now too, so it gets all cut up. The coffee also because of the sensitivity, which is kind of weird, but oh well. I love tea so it was pretty easy to switch completely.

My new favorite snack is from my Asian grocery - crunchy rice crackers wrapped in seaweed. I can eat those til the cows come home.

GottaSki
Regular Member


Date Joined Nov 2009
Total Posts : 47
   Posted 11/11/2009 2:55 PM (GMT -7)   
Hi Ladygkp and group-

I'm another newbie here. Diagnosed with Fibromyalgia on 10/27. I am also another Celiac/Fibromyalgia! I've been gluten free since March when I was diagnosed with Celiac. I too had major improvement with gastro issues, but no improvement with fatigue, muscle/joint pain and fog -- in fact these things became worse.

I tried Savella for two weeks, was not able to get past the first level of 12.5mg twice per day due to EXTREME irritability. Yesterday I was prescribed Flexeril -- I took at bedtime and I awoke this morning just a bit sore, rather than pain and stiffness I've had each morning for over two years.

Back to your question about what to eat...I've done alot of reading and it seems most agree that sugar is not good for fibro. I haven't cut it out completely, but have cut back -- for instance using honey on my quinoa in the morning instead of brown sugar...still have to check if honey is a no, no too :)

Another symptom that I'm told is not Celiac or Fibro related is heat intolerance -- my reaction to warm weather/exercise had doctors suggesting that I should cut back on exercise for fear of severe allergic reaction.
Well that probably is a factor in my worsening condition. These past two weeks I've gotten moving again slowly. My hope is that with continued healing from Celiac, my body will absorb nutrients properly. That combined with exercise and better sleep should help.

Good Luck to you!

-Lisa

cat8201
Regular Member


Date Joined Nov 2009
Total Posts : 135
   Posted 11/11/2009 4:12 PM (GMT -7)   
I'm a total sugar addict. And I drink soda's daily.

I have noticed lately that I feel better when I eat things like cereal & milk. Instead of meat.

I'm not sure why, but heavy foods make me feel quesy lately. But recently I also had a 6 week episode of gastroenteritis and vomited daily.

I have found that I am sensitive to msg/phosphates and highly processed foods.
27 yrs old-Fibromyalgia; PCOS; Surgery induced Menopause; Classic Migraines with Aura; Neuropathy; Ankylosing Spondylitis w/ narrowing around the spinal cord; Spinal Stenosis of the Cervical & Lumbar Spine; other little things
 
Medications for pain: Oxycontin; Soma **will update when change meds for sleep, etc.
 
Other treatment: Aquatic Therapy (still have to start); Sleep Study (need a sitter)


Sharmedimsure
Regular Member


Date Joined Oct 2009
Total Posts : 24
   Posted 11/12/2009 10:44 AM (GMT -7)   
Hi,
 
    I have ibs along with the fibromyalgia so I have to stay away from dairy and fried foods. I do find that when my ibs flares, everything tends to follow . I have read about staying away from nightshade vegetables because they  cause inflammation. I of course lived on tomatoes and potatoes  in the past but have found that when I cut these, I do feel better. Of course it is hard to kick habits sometimes and I forget sometimes, too. Here is some info on nightshades that I found helpful....
 
I hope you feel better.
Shar

(Revelation 21:4) And he will wipe out every tear from their eyes, and death will be no more, neither will mourning nor outcry nor pain be anymore. The former things have passed away.”


Sharmedimsure
Regular Member


Date Joined Oct 2009
Total Posts : 24
   Posted 11/12/2009 11:20 AM (GMT -7)   
more on nightshade veggies...
http://www.whfoods.com/genpage.php?tname=george&dbid=62

(Revelation 21:4) And he will wipe out every tear from their eyes, and death will be no more, neither will mourning nor outcry nor pain be anymore. The former things have passed away.”


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 11/12/2009 12:12 PM (GMT -7)   
Hi Gottaski and welcome. I'm surprised we have as many as we do with celiac and fibro. My little theory that maybe I was feeling better cause the intestines are healing flew out the window yesterday when fibro hit me with a vengeance. I'm back to feeling like my body is trying very hard to fight something off and the pain is terrible.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


GottaSki
Regular Member


Date Joined Nov 2009
Total Posts : 47
   Posted 11/12/2009 1:50 PM (GMT -7)   
Thanks Marlee!

There are quite a few Celiacs from a celiac forum I'm a regular on that have had improvement in their Fibro symptoms with intestinal healing, but there are also a few like me that the Fibro symptoms got worse after going gluten free.

We are all just a bunch of puzzles...I'm just hoping to find a few more pieces that fit.

Thanks again for the welcome!

-Lisa
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