Good Morning Rusty
From Sunny Phoenix AZ .. LOL..
Glad you like the journal idea.. I read that somewhere when I first starting going to sites like this one. I guess its a real good idea for Doc apt also.. what I do is read through and summarize my symptoms for my Doc instead of having them read my journal. makes it easer for them.
and it helps me cause I can't seem to remember everything when I do go to the Doc. LOL.. just too much to cover in one Apt.
I have read its a good idea also if you happen to need to apply for SSD . just make sure you put in it how this DD affects your every day life. your struggles etc. what you can't do anymore. .
Sounds like your dear husband is trying .. this is a blessing , I bet it kills him seeing you hurt and he can't do anything to help.. I know it does my honey
I do also believe that this can run in familys... and its Sad you have had this for so long.. so many young people with this now.. you know my age.. I expect a few issues.. but someone young... not fair.. I do beielve God would not give us more than we can handle... something in here we are to learn. I think anyway .
You know my grandmother had this we think also .. but at that time they did not have a name for it... now my daughter also has always had pain from age 12 up.
just thinking out loud . Sorry .
I still work Full time for now.. but I am Blessed to work from home. and do a split shift . work 4 hrs off 2 and then back on for another 4 .. its all I can handle ,But Praise God I can still do it.
I Have Been blessed with a family that really tries to understand this.. My daughter is in school for massage. and is specializing in Fibro Massage.... Sweet Hu... my Dad , & Mom have educated them self's , and of course see the struggles.
my dear husband he is just the best. and I have a couple of friends . Don't need more than that. LOL.
I hope your family can be of good support for you .. we all need someone . I really spend more time here talking about symptoms. as I don't want to always be telling my family just how I feel... they see the hurt and fatigue , so I come here to ask questions , get advise, support and just to plain VENT . LOL..
I pray today is a good day for you ... Take care my dear...
Post Edited (FMsaddenedspirit) : 9/15/2009 6:42:01 AM (GMT-6)