Hope to become more active in group

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Wishst
Regular Member


Date Joined Feb 2007
Total Posts : 55
   Posted 9/19/2009 12:36 PM (GMT -7)   
Hi Everyone,
I have been reading posts for the last few years and only posted a few times, but I thougt maybe since I am on the computer a lot more lately, I might get more involved.  This place is so loving and encouraging for everyone.  You have really helped me make it through some tough days.  It's really hard talking to your friends and family about how you're feeling when they have no idea how you feel.  I'm sure you all can relate to that.  So here's my history of this crazy fibro.  I was dx offically in November of 2005, although looking back I know I had this years before my dx after learning so much about fibro these past few years.  I'm 49 years old and now am on disabilty for the last three years.  I have a very DH and three grown children, 27 yo who's still at home, he's a teacher, a 25yo dgt who lives across the country in CA, and my youngest son 21 just moved back home after living three years out in CA with his sister going to school.  I also have three dogs, a lab mix, a bishon and my newest baby a little yorkie.  I have six cats.  I know what you're thinking.  nono This lady is nuts.  But the animals are what keeps me going.  I was an RN then worked as a hospice volunteer coordinator and loved it, but the pain and fatigue were getting so bad I had to leave.  I try to keep active, by taking small walks during the day or trying to keep the house picked up and clean.  (Again, I know....all those animals!)
I don't have a car full time, so I'm by myself a lot during the day.  So I've gone from a very active life to staying home most of the time.  It gets very discouraging.  Do you know how we all wished to have some time at home without work just to relax and get caught up at home?  Well my wish came true, but I wish I now had the energy and no pain to live the life I used to have.  I also have type II diabetes with neropathy, depression, hypothyroidism, IBD,
sleep apnea and all the other wonderful things that go along with fibro, including the "fog".  I go to a very supportive GP who has really helped these past few years and I have a good rhematologist, along with a sleep specialist.  I'm also so lucky that way to have really good doctors I can depend on.  I'm on Cymbalta for my fibro and depression, which has worked miricles for me.  A few months ago they switched me from Paxil to Cymbalta 30 mg, which didnt seem to work, at that time Iwas in so much pain I was ready to ask for narcotics, but they increased the Cymbalta to 60mgs, which helped my pain soooo much.  In fact I was almost pain free for three months, but it's come back, but not to the degree it was before.  I take glucophage for my diabetes along with Lantus insulin once at night which is new, Synthroid, Lipitor, Prevacid, Lopressor, B12, Iron, Vit.D,Multi Vits,Omega 3, and Unisom sleep tabs.  I can't take any of the other drus approved for fibro like Nerontin or now I cant think of the other one (Fibro fog kicking in) because I had such a bad reaction to Nerontin, they thought I had a stroke from it, but just severe side effect.  That's another thing, I am highly sensative to meds and allergic to everything! 
 
So That's pretty much my life the past few years.  I'm looking forward to meeting new people here and starting to feel productive again!  Thank you again to all of you that make this forum so supportive.  I really does make a differece in people's lives!
Gentle Blessings to All
Deb wink

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 9/19/2009 1:54 PM (GMT -7)   
Deb, I am glad that you started posting again. You have been through alot and your
experiances will help alot of people. You being a RN and a hospice volunteer, I already know
you are a very caring and empathetic woman.

Sorry to hear you are hurting. It must be frustrating trying to find a good med combo when
you are highly sensitive to meds and have an allergy thing going too. Maybe your Doc will
up your Cymbalta. It is good to hear you are trying to stay active. You know how good it is
for fibromites to get excercise. I am a big believer in soaking in a hot bath and doing
relaxation therapy, for me it is deep breathing. It helps get rid of stress.

I see you are a cat lover too! I only have 2 cats. I am 57, married to wonderful guy, my
daughter is 33, married and they blessed me with a beautiful grandaughter who is one.

Living with illness is an adjustment to say the least, I do have pain but I am happy. I guess
I have finally adjusted to my new normal. It did not happen overnight, but it did happen!

Glad you are here!

Robin
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 


puppylover
Veteran Member


Date Joined Feb 2009
Total Posts : 821
   Posted 9/19/2009 2:21 PM (GMT -7)   
Well hi Deb.  Glad you are posting.  This forum is great.  I think anyone with all those pets is wonderful!  My house will never be really clean again because I have golden retriever fur everywhere, little nose prints on every window.  My DH doesn't care and if my friends are really friends they don't care either.  You have a lot off stuff going on but it sounds like you have support and good doctors.  I'm looking forward to hearing from you again.
 
Puppylover
Puppylover
 
Fibromyalgia, arthritis in spine and hips, IBS, Raynaud's syndrome, hypertension
 
On the eighth day God created Golden Retrievers.


Jhemi
Regular Member


Date Joined Jul 2009
Total Posts : 223
   Posted 9/19/2009 3:51 PM (GMT -7)   
I simply adore kittens and puppies...and when they're grown they are such a big help at keeping loneliness at bay. Animals seem to have a way of knowing just when you need some attention by making it seem like they need it don't they? ;) But alas, I can't keep up with pets. I just dont have the energy to attend to their needs as I should...so like with children, I am a pet "Auntie"...;)

beanley
Regular Member


Date Joined Sep 2009
Total Posts : 124
   Posted 9/19/2009 6:20 PM (GMT -7)   
hi deb nice to meet you.
fibro, migraines, ibs


WhiteChocChip
Regular Member


Date Joined Jun 2009
Total Posts : 439
   Posted 9/20/2009 2:02 PM (GMT -7)   
Hi Deb :)

If you're up to it, I could totally use some help coming up with the Koffee Klatches while Chutzie's away. If you come up with a good idea just post :D

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 9/20/2009 2:55 PM (GMT -7)   
Hi, Deb, and welcome!  You already know what a great forum this is.  We have wonderful members that love to help one another and we really do care about each other! 
 
If you've been lurking for years, I hope you checked out the Fibro 101 thread.  There is a lot of good information in there about fibro and things that may help you.
 
I'm looking forward to hearing your input in the forum.  Everyone has such different experiences and you never know what you will say that will be just what another member needs to hear. 
 
Please, though, keep walking and moving.  I slowed down at first but that was the kiss of death for me.  I discovered that I needed to keep moving to help keep my flexibility and cut down on the pain and fatigue.  Walking is my form of exercise and I do swim, too.  I have a Havanese and she walks me for a mile every morning!  smilewinkgrin    When I started to walk, I couldn't go very far but I have worked my way up and now I can walk a good distance.  The stretching exercises on Fibro 101 help too. 
 
I'm an animal lover and can't be without one, either.  Besides my Havanese, I have two feral cats.  I'm a widow so these guys really keep me company. 
 
I'm so glad that you decided to join in.  I hope to hear more from you soon.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


MT Lady
Veteran Member


Date Joined Jul 2008
Total Posts : 955
   Posted 9/20/2009 7:11 PM (GMT -7)   
Hi Deb and welcome!
I can so relate to what you wrote about having a job outside the home, having to give it up and now being home, alone. Does that come under the heading "be careful what you wish for?" because I too use to envy the women that were able to stay at home and now that I'm home, well, I yearn for a more social life. I do work, but do it from my home and I also have two dogs which are wonderful companions. As much as I'd love to go back to working outside my house, I know I cannot. There are just too many times when I need to rest. I try to tell myself that I am blessed in many ways and try not to dwell too much on what use to be.
Again, welcome! Looking forward to hearing from you again,
Miriam

Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.


mamanan
Veteran Member


Date Joined Jun 2008
Total Posts : 846
   Posted 9/20/2009 7:22 PM (GMT -7)   
Welcome Deb! from a former poster... to lurker.. to poster again. I was angry for awhile and had to stay away. But now my fibro is under control and I'm back trying to help others like this forum has helped me. You sound liek you have a lot going for you. I'm looking forward to getting to know you better!
possible fibro and trigeminal neuralgia
50 mgs amitriptyline


Wishst
Regular Member


Date Joined Feb 2007
Total Posts : 55
   Posted 9/20/2009 8:06 PM (GMT -7)   
Thank you everyone for your well wishes and welcomes! It's so encouraging to have so many people care and share! I plan on being active in the forum and getting to know a lot of new friends. Just wanted to respond with a quick Thank you ! I'm looking forward to getting to know you all!
Gentle Blessings
Deb
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