Fibromyalgia and Endometriosis

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Starynight
Regular Member


Date Joined May 2009
Total Posts : 51
   Posted 9/20/2009 3:17 PM (GMT -7)   
I was on a site awhile ago and it said it is commone to have both fibro and endometriosis.  Does anyone here suffer from both like I do?
Pain is temporary.  It might last a minute, or an hour, or a day, or a year but eventually it subsides and something else will take its place.  If I quit, however, it lasts forever.
 
Fibromyalgia & Endometriosis
 
Trazasdone, Yaz, tylenol, aleve


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 9/20/2009 3:27 PM (GMT -7)   
Yup. I do. I know of many women on an endometriosis forum that have both.

Starynight
Regular Member


Date Joined May 2009
Total Posts : 51
   Posted 9/20/2009 3:59 PM (GMT -7)   
which forum do you follow?

Pain is temporary.  It might last a minute, or an hour, or a day, or a year but eventually it subsides and something else will take its place.  If I quit, however, it lasts forever.
 
Fibromyalgia & Endometriosis
 
Trazasdone, Yaz, tylenol, aleve


crazyoldcatlady
Regular Member


Date Joined May 2009
Total Posts : 194
   Posted 9/20/2009 4:54 PM (GMT -7)   
Yep, me too. My endometriosis is well under control now with depo Provera (thank you JESUS!!!) But I suffered horribly for years and was unable to conceive.
Donna
 
I would be unstoppable...
                           if I could just get started.


Starynight
Regular Member


Date Joined May 2009
Total Posts : 51
   Posted 9/20/2009 5:08 PM (GMT -7)   
I am hoping that won't happen to me :( that is what deeply saddens me most about it all.  I was on Depo before I have a hard time with the birth controls.  I just started Yaz and it *knock on wood* hasn't been bad I haven't had any problems (yet).
Pain is temporary.  It might last a minute, or an hour, or a day, or a year but eventually it subsides and something else will take its place.  If I quit, however, it lasts forever.
 
Fibromyalgia & Endometriosis
 
Trazasdone, Yaz, tylenol, aleve


AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted 9/20/2009 6:15 PM (GMT -7)   
Count me in.  I've had endo since I was 18 and have had 3 surgeries for it. 


"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
 
 
 
 
 
 


mamanan
Veteran Member


Date Joined Jun 2008
Total Posts : 846
   Posted 9/20/2009 7:01 PM (GMT -7)   
I had endo and had 2 laparoscopies b/c I couldn't conceive (I now have 4 dks). This was before fibro though. I had horrible cramps where I couldn't even stand on the first day of my period. Now my period is much better, but the rest of my body hurts, go figure.
possible fibro and trigeminal neuralgia
50 mgs amitriptyline


FMsaddenedspirit
Regular Member


Date Joined Jul 2009
Total Posts : 236
   Posted 9/21/2009 7:29 AM (GMT -7)   
I have
adhesions witch is very similar to  endo ,. but is more spread out in a larger area . and is not connected to hormones. . it is bad though.. it will put adhesions all over from under my ribs all the way down. they have to open me up every 10 yrs or so and clean then all out as it will get to where I cannot walk for the pain... also is like long strings of adhesions.. so when I rip one its like a rubber band effect.. and traumatizes organs as it comes back on you like a rubber band does your hand if you pull it out real far and it breaks . how it comes back and hurts your fingers.. I had to give up my Favorite carrier because of the heavy lifting. cry   no heavy lifting for me the rest of my life or it could get then growing again ... I really Don't want to go there again.. but have lately had some real familiar pains in my abdominal area.
 
My Doctors had a hard time wit this as to start with as they thought it was Endo.. but told me its very similar and just as bad if not worse because it covers a larger area.
 
I am sorry you have this to deal with .. I would not wish this on anyone.. as if Fibro is not enough Right .  ?
 
Take care.


Spirit ~


Littleneck
Veteran Member


Date Joined Mar 2009
Total Posts : 599
   Posted 9/21/2009 4:59 PM (GMT -7)   
I had endometriosis and also fibroids, for years and years and years. I had 3 day surgeries for endo, more for the fibroids, and finally had everything taken out but my ovaries which, thank goodness, are still managing to work!

lost in philly
Regular Member


Date Joined Jan 2009
Total Posts : 243
   Posted 9/22/2009 9:50 AM (GMT -7)   
Me too. The endo came at the same time as the fibro and it was really really horrible at first until they could control it with bc pills. My fibro really is affected by my endo--if one is bad so is the other. I think it is all the hormones and extra estrogen from the adhesions. But just my guess. Someone needs to research this!
lost in philly

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Fibromyalgia, Endometriosis, Migraines, Asthma, Chronic Fatigue

Savella, Topamax, Morphine, Percocet, Wellbutrin, Abilify, Crestor, Resoril, Loestrin, Imitrex

B12, Magnesium, Melatonin, Omega3
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

"Knowing without doing is like plowing without sowing."


JennyBHurts
Regular Member


Date Joined Jun 2009
Total Posts : 23
   Posted 9/22/2009 8:31 PM (GMT -7)   

Count me in, too.  I was dx at age 24, but I think I had endo ever since my first period. I have had 5 surgeries to remove adhesions and endo.  I ended up with a bowel obstruction because of the endo and had a resection 2 years ago. Then I developed scarring in my bowel where they did the resection and had another obstruction! It took 3 revisions to keep my bowel from scarring shut.  This is when my fibro started as well.  They say that any kind of trauma or illness/surgery can trigger fibro, and for me it definately was the case.

 

Jenny B 


Age 36
DX w/ fibro June 2009
DDD & annular tear at L5/S1
endometriosis since age 18, have had 5 surgeries to date
 
Current meds:
OxyContin 30 mgs 3 X day
Dilautid 2 mgs 1-2 X day for breakthrough pain
Elavil 25 mgs
Zoloft 75 mgs
Lunesta 2 mgs
Klonopin .75 mgs
Protonix 40 mgs
Flexeril PRN
Phenergen PRN
 
I am living in the body of an 80 year old......
 


To-The-Top
New Member


Date Joined Sep 2009
Total Posts : 5
   Posted 9/22/2009 10:48 PM (GMT -7)   
Jenny, my God girl, all them drugs at 36?! I have and still have lots of pains, stabbing pains in the inner thigh of my leg, it's a nerve that's in conjunction with my intestines. Every time, I have gas in the intestines, I get stabbed in the leg. If I would be standing I would hit the floor-pronto! I had my appendix & gallbladder removed & a hernia repair some 10 years ago. about 9 yrs. ago this pain started up. None of my doctors can figure out what is causing it. Since I've been reading on the forum about scar tissue, etc. and the complications of it, I'm thinking this may be my problem. That my bowels are all mixed up due to being entered for those surgeries. I feel the doctors just don't want to go inside to find out.
Anyway, they have had me on Neurontin, OxyContin, Percocet, and Zoloft. I had to quit the first 3, I was like a zombie & developed an allergy to them. On Zoloft I have only gained weight, the pains are still with me.
Maybe, you should search out new doctors & treatments.
You can't live this way, no way.
Keep me tuned in, I really care.

Littleneck
Veteran Member


Date Joined Mar 2009
Total Posts : 599
   Posted 9/23/2009 12:33 AM (GMT -7)   
LostinPhilly, you are right on - I think the hormone thing is way interesting and how it probably connects to fibro. I was up to 4 birth control pills a day to try and control bleeding, and the endo pain was more than I could bear. One day I started hemorrhaging from the fibroids and didn't stop (as I was public speaking, giving a presentation at work! yikes) and that was that. The endo pain made me feel like I was having an out of body experience - very floaty and sick. The hysterectomy brought instant relief from the endo and the fibroids. Even as I was taking the 4 bc pills a day I knew I probably shouldn't be. My estrogen levels were off the charts. That was about 2004.

sickof lyme
Regular Member


Date Joined Aug 2008
Total Posts : 110
   Posted 9/23/2009 8:41 AM (GMT -7)   
Does anybody know if Endo can cause pain in your side down your hips too?

Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 9/23/2009 11:29 PM (GMT -7)   
Yes, endo can cause pain in your sides, legs, hips, and chest. The endo and resulting scar tissue can press on nerves and cause pain or referred pain almost anywhere in your body. You can have endo almost anywhere including on your skin and in your lungs. I read a case study about a woman that had endo in her sinuses.

sickof lyme
Regular Member


Date Joined Aug 2008
Total Posts : 110
   Posted 9/24/2009 8:24 AM (GMT -7)   
Wow ,now im wondering about that,becuase I have tissue buildup with pain and was told it is Fibromyositis,but when I tried to go off my Birth control pill twice the pain in my lower back and sides and hip got worse...interesting ,unfortunately laproscopy is the only way to know and it may just be Fibro but the scar tissue is something I can feel ,just making a wild guess on whats going on with me!
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