can FM symptoms come and go?

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foleyfan
New Member


Date Joined Sep 2009
Total Posts : 5
   Posted 9/23/2009 4:49 PM (GMT -7)   
I was diagnosed with FM after about 15 years of pain, morning stiffness, stiffness when arising from a seated or reclining position even if I'd only been resting for 30 minutes or so) and extreme trigger points.  I finally had an answer. I finally knew the name of the monster Id been fighting for so long. I finally knew why my memory was embarrassingly bad and I finally knew why I fatigued so easily with physical exertion (I had blamed it on being 100lbs overweight but now I'm not so sure...other overweight women seemed to be able to do things I could not do without needing a nap afterwards)
 
I had been taking Vicodin for my unexplained pain (mostly in my legs and lower back) for 15 years and had become addicted to it (beware) I've been off it for 90 days now with my doctors supervision, and have been taking only Gabapentin (Neurontin) 600 mg four times per day for the pain. As long as I stay on it and don't forget any doses, my pain is greatly improved. But if I forget a dose or two, my legs scream with sharp localized pain, mainly just above and just below the knee. My knees will feel swollen even though they arent, and they will ache, while my feet will throb and throb and will also feel as if they are swollen, when they arent. (sound familiar? is this common?)
 
The thing is, since I've been off the narcotics, which always gave me a TON of energy which contributed to my addiction, I notice that some days I feel really good and can clean and move boxes around in my shed and shop and I seem to have a ton of energy. Then there are days, they usually come 2-3 in a row, where all I want to do is sleep. There is no reason for this, usually I'm getting enough sleep, havent overdone it, etc. The days just hit out of the blue.
 
Since I've only been off the narcotics and don't have that false energy and pain relief, I'm having a hard time understanding this. Can the fatigue of FM come and go days at a time? Also, does Gabapentin treat the fatigue and general FM symptoms, or just the pain?
 
thanks!
 
Foley

SassyMyKitty
Veteran Member


Date Joined Apr 2009
Total Posts : 673
   Posted 9/23/2009 5:06 PM (GMT -7)   
Well, I know that my energy comes and goes, but I am on lortabs, so I don't know if I will be of any help. But, since I was diagnosed, I have done a lot of research of fibro. I believe that the symptoms can come and go. That's why we have flares. Sometimes our symptoms are better, and sometimes they are worse. I would talk more, but I am having a really hard time concentrating tonight.
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind. Dr. Seuss
 


foleyfan
New Member


Date Joined Sep 2009
Total Posts : 5
   Posted 9/23/2009 5:18 PM (GMT -7)   
Yeah Lortab is the same thing as Vicodin I think. The pain is pretty consistent (there when I miss my gaba, but under control if I remember it) but my energy comes and goes

Jhemi
Regular Member


Date Joined Jul 2009
Total Posts : 223
   Posted 9/23/2009 5:40 PM (GMT -7)   
It may be that those days you have energy are the days you are sleeping well and those days you want to sleep most of the day are the days you aren't getting restful sleep. I'm also on neurontin and I find the same thing happening to me.

foleyfan
New Member


Date Joined Sep 2009
Total Posts : 5
   Posted 9/23/2009 6:35 PM (GMT -7)   
Jhemi, do you find that if you miss a dose you wake up thru the night unable to go back to sleep?

beanley
Regular Member


Date Joined Sep 2009
Total Posts : 124
   Posted 9/23/2009 8:00 PM (GMT -7)   
my energy comes and goes. very hi energy one day, can barely move the next. i think that's normal for fibro. very unpredictable.
fibro, migraines, ibs


donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 9/23/2009 10:16 PM (GMT -7)   
Yes, Vicoden can give you energy. I used to take one when I exercised. Since my md will not give narcotics to any of his patients for pain relief anymore, I do not have the same amount of energy.

Donnaeil

Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 9/23/2009 11:37 PM (GMT -7)   
Yes, the pain and fatigue comes and goes - somedays it is really bad and other days not as bad. The pain moves around, too. It is unpredictable. I have taken to carrying my cane whenever I walk any distance because I can feel fine when I leave to go somewhere and have too much pain to get back to my car or wherever. The only predictable thing about fibro that I know of is that pacing yourself really helps. You have to stop before you hurt and rest a little. That makes things a lot easier.
Best,
Sue

Jhemi
Regular Member


Date Joined Jul 2009
Total Posts : 223
   Posted 9/24/2009 3:37 AM (GMT -7)   
Foleyfan..no..not with the neurontin. I did before I started taking it though.

TreeBo
Regular Member


Date Joined Aug 2009
Total Posts : 114
   Posted 9/24/2009 3:39 AM (GMT -7)   
I have good days and bad days. Some of my good days are really good. I almost forget I have fibro, but when the pain comes back I remember. When I have good days i do a little more than on bad days, but I don't over do it. When I over do it I always end up having a bunch of bad days following.  I wish I could have a couple if those good days right now. Been flaring for 3 days. shakehead Hope you get some pain relif soon.
Treebo.


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 9/24/2009 8:12 AM (GMT -7)   
Hi Foleyfan and welcome. The one thing we can predict about fibro is it's unpredictability. The pain, fatigue and all the other things that goes along with it can change in a matter of minutes sometimes. I've learned to go with the flow and do what I can when I can. I've never had the sleepiness that some have.
 
If you haven't read the fibro 101 thread at the top of the first page do so it contains lots of great info.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40590
   Posted 9/24/2009 8:14 AM (GMT -7)   
Yes fibromayalgia pain and fatigue comes and goes. You can have a bad day for no reason other than it is showing it's ungly head. It is so unpredictable. It is hard to stay on an even scale with this darn disorder. So be prepared for that. Just go with the bad days. they will go away and you will feel good again. Some people push through, but I do better just resting.

Best wishes to you.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies

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