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nomadicmom
Regular Member


Date Joined Sep 2009
Total Posts : 41
   Posted 9/28/2009 10:23 AM (GMT -7)   
Hey everyone!! My name is Emily and I was diagnosed with FMS about a year ago. It has been a very looooong haul for me. It all started about 3.5 years ago. My youngest was about 6 mo old. My oldest just started preschool. She cam home sick several times. My immune system was not used to the onslaught of new strains of virus' and I was hit hard. I spent about 6 mo-1 yr constantly sick.  I got mono, flu, walking pneumonia and a slew of other colds and stomach bugs. In that time frame I also had a bad accident in a car and on a horse, both I feel played a part in this. I truly believe that this time frame of about 1 year was enough of a tramatic time on my body that it awakened the beast within. It was like my body just couldnt recover from each attack and finally something else took over. I developed a sever anxiety disorder. (which is now under control without meds, yay!)
 
Whatever this is I am dealing with, I believe i have always had. I dealt with alot of pains growing up. I have read articles that have suggested that some patients can remember having severe "growing" pains as children. I definatly did. In fact my mom to me to an orthopedic Dr when I was 13 because I was in so much pain. The Dr then couldnt find anything "valid" wrong. We went on our way...So I believe that this has indeed been ongoing since childhood, but was more dormant than active.
 
I started actively pursuing a diagnosis about 2.5 years ago. (before i'd just go in say I dont feel well and they say "you check out fine" and send me on my way). I knew something wasnt right. I felt terrible. I couldnt think straight. My body was weak and neurologically i was off. They ran a slew of tests, nothing out of the ordinary. ANA was fine. No Lyme. No deficiencies. D was perfect! B, the same. Did an excruciating 4 hour glucose test....perfection. MRI's clear. EKG, EEG, clear. NCV, fine. Ugh.  You get the picture... everything was peachy keen! Except the way I felt.
 
So they desided to start treating symptoms. I was on Topomax for headaches. It messed with me emotionally something fierce. No headaches, but we almost divorced. It was THAT bad. It made me MEAN. Then Lyrica. I couldnt see strait I was so tired. Stopped that (though may try again). CYmbalta, put me in a great mood. Did nothing for my pain and gave me HORRIBLE twitches, affected our sex life, constipation, ect ect. The side effects sadly, outweighed the one benefit. Thankfully, I came off it with no withdrawl symptoms.
 
I have seen 7 Drs. Everyone has a different opinion.  I see a Dr next MOnday who is supposedly very good at difficult cases like mine. He is in my mother home town, not mine. So he would not be a permanent Dr. I am hoping to at least get pushed in the right direction once we get settled in.
 
I honestly suspect it's not just one issue. I think FMS is definatly in there, but that something else is going on. I had a Dr suspect I was in the early stages of Lupus and just not to the point where it can be firmly diagnosed. I have started developing problems with my lungs, so we may be getting closer to that diagnosis. Who knows.
 
I work hard at this. I am constantly reading about ways to improve my health and deal with this. I do yoga, pilates, and looking at starting ballet. My biggest goal is to get some of this access weight off!!! I have imbalanced hormones, so it's been very difficult. I dont gain weight, I just dont lose any either!! HA! Once we get fully moved, it will be easier on me.  I will have access to a gym and be able to walk every day. Right now, I am not able to do those things. I am looking forward to using a treadmill or eliptical!!! YAY.
 
Other than this disease, which is just ONE part of me. I am also a mother to two wonderfully amazing kids!! This is our first year at homeschooling and despite my challenges, it has been wonderful! It has truly brought us all closer together!!! My husband got a great job in memphis, TN and we are in the process of moving. We'll be fully moved the first week on Nov and we are very excited!!! I am REALLY into animals! I have an afghan hound and 2 cats. My cats are  my flare up comforts. In fact, I know I am about to flare because they will suddenly be glued to my side. They stay glued to me until it's over. I always know it's over because all of a sudden, they stop following me everywhere, then usually that day, I feel tons better!! I have alot of hobbies! Reading, puzzles, riding horses (though my less since my accident, it was pretty bad), bird watching, hiking, ect. I try to keep as active as possible, because, well we ony live once!!!
 
My goal is to learn to cope and find a treatment program and medications that help me live a more normal life. I'm so ready to get back to living!!! I love life and love experiancing all it has to offer!! So I am ready to get out there and DO!

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40574
   Posted 9/28/2009 10:52 AM (GMT -7)   
Hi there,

It looks like you have come to the right place. This is a wonderful forum and everybody here is so kind and compassionate.

You might want to check out fibro101. It is the first thread. It has a lot of information and peoples different experiences with the disorder. I think that you will find that very interesting.

Some of us take malic acid/magnesium supplements and they really help with energy and pain. There is a post on that on the fibro101 thread. That works especially well if you don't want to take medications. Not for everybody, but it is something that is worth checking out. It is quite inexpensive and works wonderfully for many of us.

Keep posting, we are all here for you. I am sure that you will make many wonderful friends on this forum.

I hope that you are having a great day. It sounds like you have a very good attitude dealing with the fibromyalgia. That helps a lot.

Best wishes,

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


nomadicmom
Regular Member


Date Joined Sep 2009
Total Posts : 41
   Posted 9/28/2009 11:03 AM (GMT -7)   
Thank you Karen!! I have read over some of the Fibro 101 thread, but not all of it yet!!

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 9/28/2009 11:10 AM (GMT -7)   

Hi,and welcome!  Well, Karen took the words right out of my mouth!  Yes, you have come to a great place with wonderful members that love to help one another.  As a bonus, we really do care about each other. 

I see that the Fibro 101 thread was mentioned and the malic acid/magnesium supplements, too.  I take these and they really do help me.  I also take vitamin D3.  Many with fibro are defecient in D and that can cause pain and fatigue.  A simple blood test will let you know. 

You have the right attitude!  A positive attitude really helps control this illness.  I've had fibro for over two decades and have had an enjoyable life in spite of it.  You just neet to learn how to pace yourself and work around the illness. From what you wrote, I think you will do great once you find the right meds for you. 

I take ibuprofen with food and extra strength Tylenol, along with the malic acid/magnesium supplements and vitamin D3.  These are what I use for pain and fatigue and have managed on them.  I do exercise too because that really helps with the pain.

Read back posts and ask questions.  We are here to help you.  I'm so glad you found us and joined in.  I hope to hear more from you soon.

Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 9/28/2009 2:00 PM (GMT -7)   
Hi Emily, and welcome to the home of the friendly fibromites! I am glad you found us. This
truly is a wonderful caring forum.

I see you are an animal lover, there are lots of animal lovers here, myself included. I have two
cats. It is funny how animals can sense our well being. They do know when we are hurting.

You seem to be a very active mom and that's great. Excercise is so good for us. I try to stay
as active as possible. Pacing ourselves can be tricky, but I have found inactivity only causes
sore and stiff muscles.

I take Savella, 50mg, 2x daily and I use Flexeril when I am flaring. Dealing with my illnesses
is so much easier if I only take one day at a time, so that how I handle it.

Wishing you the best of luck

Robin
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 

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