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Regular Member

Date Joined May 2009
Total Posts : 447
   Posted 10/7/2009 2:38 AM (GMT -6)   
Well I have learnt the hard way to be careful while in remission.
Yesterday we went to see your oldest son while out he lives an hours drive from our house. That was fine no extra pain, we stayed and had pizza for our meal last night again fine. I finally got my husband to leave it was getting late or it would be when we made it home and I did not feel real well by that time. I have not been sleeping at all at night. We left only to stop in and see my SIL  well I was not happy I olny wanted to go home after and hour we left. Talk about a horror trip home our hour turned into two as I was sick all the way home and the pain kicked in just for good measure. The pizza was nice to eat but not to bring up, after we got home the vertigo started I could not even stand up. It was well after 2am before I could even get to the bed. The few hours I few hours sleep I go have not helped at all. Today the pain is not too bad but my husband has told me not to get up, that is fair enough but he could of throught of that last night before everything went pear shaped. So now I just believe tomorrow will bring back the remisson, maybe it is still hanging on it is raining and I did not have the usual pain the 5 days before it started.
Kathy confused

Regular Member

Date Joined Aug 2009
Total Posts : 114
   Posted 10/7/2009 5:38 AM (GMT -6)   
Hi Kathy,
   I'm sorry your symptoms have returned. I had a similar situation over the week end. I felt great so I took my daughter to a friends birthday party. The party turned out to be the longest birthday party in history. By the time I got home I was not only exhausted, but extremley nauseated. I took a hot shower, and went to bed, but was unable to sleep. my pain has eased alot, but I still can't sleep at night. I feel like as soon as I start to think I'm normal the Fibro monster comes back to remind me I'm not. I guess this is just the nature of Fibro. We will have good days followed by bad days. I am trying to learn not to take my good days for granted, and not over do it. This is hard to learn, because When I feel good I want to do all the things I miss when I'm feeling bad. I know I will have many more good days ahead, but I will have many bad ones as well, so I'm going to try to strike a healthy balance with my activities. If I find  a way I will let you know. In the mean time we just have to hang in there. I will also be looking for a natural supplement to help me sleep. Good luck with your remission. I wish I could tell you why this condition is the way it is, but I can't. I just  know that if we all stick together we will find ways to cope.

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 10/7/2009 9:19 AM (GMT -6)   
It is so hard to pace ourselves during the good times. Most of us lived very active lives before fibro and when we get a taste of that again we are suppose to pace ourselves??? smhair It's like dangling chocolate in front of a chocoholic and expecting them not to reach for it. smilewinkgrin I think we are all guilty of doing this.
I hope you don't have a major setback from yesterday Kathy.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
Vit D/calcium

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 10/7/2009 9:38 AM (GMT -6)   
I am so sorry Kathy. Last week you were celebrating remission, now this. The crummy
weather might of triggered this flare. Hoping you feel better soon and will be able to
wear your high heeled shoes again! Please be careful to pace yourself.

Gentle Hugs

MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 

Forum Moderator

Date Joined Apr 2005
Total Posts : 17061
   Posted 10/7/2009 11:26 AM (GMT -6)   
Okay, this might sound totally off the wall to you, Kathy, but have you had your ears checked?  There is an illness called Meniere's disease that affects the inner ear and causes vertigo, dizziness...really bad.  Those with Meniere's need to stay away from sodium.  Pizza is made with really salty foods.  It's just a thought. 
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Regular Member

Date Joined May 2009
Total Posts : 447
   Posted 10/7/2009 11:41 AM (GMT -6)   
Thanks but my ears are fine it has to with my body trying to shut down when it gets over tired. the Drs think that is the answer. But as they say my body does strange things and they can not point anyone one thing as causing all the others.
Life goes on the pain has eased off tonight. The wet weather started a few days before the pain so that was not the cause. It was just lack of rest. On Tuesday I went shopping with my daughter and we walked for miles and I mean miles she was looking for a dress [formal] for a work thing she was going too. Then we looked at wedding planners for her wedding. So we had a very busy day, now it is just resting as tonight sleep is out of the question it is 3 am here and I am not in the least likly to get any sleep tonight.

Veteran Member

Date Joined Jul 2006
Total Posts : 831
   Posted 10/7/2009 12:07 PM (GMT -6)   

Kathy, hope you are feeling better.

Pacing ourselves is a good thing but not always allowed in this time and day.


DX Fibro 12/31/07   Guess I can put the rest dx
PSTD  Bi Polar 2/04  Depression most of my life  IBS
RX Amitriptylin 25mg
God gives doesn't give us more than we can handle. So this too shall pass.

Veteran Member

Date Joined Jun 2008
Total Posts : 846
   Posted 10/7/2009 1:46 PM (GMT -6)   
I hope you will soon go back to your energetic, pain free days! To have a taste of it and taking away so quickly is just not fair. Maybe this is just a reminder to take it a 'little' easier once your remission comes back.
possible fibro and trigeminal neuralgia
50 mgs amitriptyline

Regular Member

Date Joined Sep 2009
Total Posts : 124
   Posted 10/7/2009 1:52 PM (GMT -6)   

So sorry to hear about how awful you're feeling. Boy, when you go out of remission you do it in style, doncha?!

Before I even saw ladybug's signature, I was getting ready to say the following:

One of the hardest but most useful life lessons I've learned is that "This too shall pass" applies not only to the bad times, but to the good times as well.

It helps me keep my emotional balance better to expect to feel worse when I'm feeling better and expect to feel better when I'm feeling worse. One of those Zen paradoxes of life!

And not overdoing it is a lesson I have NOT learned yet lol!
fibro, migraines, ibs

Regular Member

Date Joined Feb 2007
Total Posts : 55
   Posted 10/7/2009 4:46 PM (GMT -6)   
Hope you're feeling better, it's so hard not to try to get back to our "normal" lives when we feel better. It took me three years to realize my life has changed and will never get back to where I felt good. (Come to think of it I've never really felt that good for long LOL) I think sometimes when we get so over tired it brings on the additional stomach ailments, I know that happens to me. I've started taking OTC Unisom, similar to Benadryl it has worked wonders for me, I was on amytriptoline but the docs thought it could be increasing my blood sugar to much, it it never really helped me and any prescription sleep med would make me feel to groggy the next day. Now I sleep most nights all night long. I hope you find something that helps. Loosing sleep is terrible, it causes so many other side effects! Good Luck and take it easy!
Gentle Blessings
fibro, diabetes, neropathy, depression, IBS, chronic anemia, hypothyroidism, chronic fatigue, sleep apnea

Regular Member

Date Joined Sep 2009
Total Posts : 124
   Posted 10/8/2009 11:25 AM (GMT -6)   
I use Benadryl as a sleep aid also. It definitely helps. My psychiatrist says she and her husband use it, too!

I buy the generic store brand.
fibro, migraines, ibs

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