I hope I didn't over-react

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CathyA
Veteran Member


Date Joined Mar 2005
Total Posts : 1431
   Posted 10/7/2009 11:32 AM (GMT -7)   
Hi all,

I guess what concerns me is that with my FMS, I seem to feel things acutely, and in the past I've run to the doc too quickly. I've learned that many times, my various aches and pains subside. So I've learned to just be patient and wait.

about 7 months ago, my bite seemed to change, but I got used to it.
A month ago, when I would wake up in the morning, my right TMJ would catch and lock, but it would resolve in a couple hours.
Then 2 weeks ago, it was locked all the time. I could still eat easily, but I just couldn't open my mouth very wide.
Then this week, it started hurting, even though I could open it more than before.

I got a referral to a wonder TMJD specialist and went for my initial evaluation today. I have arthritis in my left TMJ and because of that, my right TMJ has had to work so hard, that my disc there is getting displaced.......which is what causes the locking.

I am embarking on treatment that will cost $3,500! I have faith in this woman doc and she comes highly recommended. She's been doing this for about 23 years. Her testing is very thorough. tomorrow when I go in for my casting, I have to use a TENS unit for 45 minutes beforehand, to relax the muscles. Then the cast will be sent out and made into a "MORA"........which is a repositioning device that I will have to wear for at least 6 months, 24/7. It retrains my jaw muscles to be in a position that isn't as destructive.

Okay.....so now I'm getting nervous that maybe I just jumped the gun and should have waited. Yes, I could have gone to my regular dentist and had him make a less expensive bite plane, but I felt a TMJ specialist would be the best route to take.
From what she said, this will only get worse if I don't fix it now. Can anyone assure me that I'm doing the right thing?
This was my first problem with my jaw..........although they say that if you jaw catches, you're condition has already progressed. Maybe by doing this now, I will avoid alot of spasms and nerve pain in the future???
Gosh.........$3,500 is ALOT of money. Plus.........I can't chew gum anymore!! WWAAAAAAHHHHHH! haha
Anyhow........any insights or experience with this?
I guess I'm getting nervous and thinking that maybe I could just limp along for the rest of my life with a catching TMJ.......??
Thanks!

beanley
Regular Member


Date Joined Sep 2009
Total Posts : 124
   Posted 10/7/2009 12:07 PM (GMT -7)   
Awww, hon, if I could fix one of my aches or pains for only $3500, I would knock you over in my rush to get out the door! I think it's great that you're taking proper care of yourself and it's great that you found such a terrific doctor. Don't worry! You're worth it!
fibro, migraines, ibs


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 10/7/2009 12:31 PM (GMT -7)   
Did you research different options before you decided to do this??? That is a lot of money to dish out but if it is the best treatment it would be worth it.
 
I've not had any problems with this myself Cathy so maybe others who suffer from TMJ will be of more help.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


yo-yo
Regular Member


Date Joined Aug 2009
Total Posts : 159
   Posted 10/7/2009 12:52 PM (GMT -7)   

Well, I don't know about the $3500 bucks, seems like a huge amount to me.  Do you have dental insurance?  I have TMJ.  It started about 20 years ago with severe migraine headaches and with a lot of research, I came across info on TMJ.  I went to my regular dentist and he dx'ed TMJ and made a device for me to wear at night only.  Talk about a miracle!  Within a couple of nights my migraines were gone, never to return.  Well, not never, I have one maybe every couple of years but I don't think they have  anything to do with my TMJ.  I still, after 20 years, faithfully use my mouth device.  Not pretty but no more jaw and headache pain.  At the time I received my device I had dental insurance thru my DH work and only had to pay 20% of the cost and I don't remember it being alot---but hey, that was 20 years ago. 

Yo-yo


CathyA
Veteran Member


Date Joined Mar 2005
Total Posts : 1431
   Posted 10/7/2009 1:03 PM (GMT -7)   
Thanks everyone.

I think in my situation, the problem is that my right and left jaw are sort of different sizes. The one on the left has done so much heavy work, that the bone is starting to disintegrate. The right jaw muscles are working too hard because the left side can't help out much. So its more than just teeth grinding. I just hope the dentist/tmj specialist would have told me if I didn't need this.
But I guess, once your disc slips, it means things are going bad. I just wish it only cost $100. haha
I know this sounds ridiculous, but I guess I'm a nervous person. I chew gum and also my nails. Now I can't do either for a very long time. Maybe it will be good for me!

myjoy
Veteran Member


Date Joined Feb 2009
Total Posts : 686
   Posted 10/8/2009 10:40 AM (GMT -7)   
I think you are doing the right thing going to a specialist. Good for you. It sounds like your condition has progressed enough that you really needed to do something. I sure hope this works for you.
DX fibromyalgia 2007, osteoarthritis, obsessive-compulsive disorder OCD, depression, anxiety, sleep apnea, hysterectomy.

fluoxetine (prozac), abilify, trazodone, lorazepam, prilosec, nabumetone, hydrocodone, c-pap machine.


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40567
   Posted 10/8/2009 1:19 PM (GMT -7)   
Just popping in to say hello Cathy. And that I hope that you find some relief. 3500 that can help you for a life time. Plus knock out that bad habit of chewing your nails. Best wishes to you.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 10/8/2009 10:33 PM (GMT -7)   
Cathy,
My bite plane has helped me a lot but the fix isn't permanent and if I forget to wear it I have lockjaw for a few days... If you have the money then a specialist is the one to see. I don't have the funds so I have to make do. By the way, I'm gonna shout at you now....

IF YOU HAVE TMJ YOU AREN'T SUPPOSED TO CHEW GUM ANY MORE!!!

But then you knew that, didn't you?
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross

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