Eye Pain with Fibro?

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Normal
Regular Member


Date Joined Mar 2008
Total Posts : 263
   Posted 10/21/2009 5:18 PM (GMT -7)   
I was diagnosed with fibro 5 weeks ago. Have had IBS-D for 28 years and alot of aches and pains I thought was the dehydration. After ali tha testing for the last couple od years I have been told I have Fibro, bursitus, DDD of the neck and a labreal tear in my shoulder.Holy Moly I really do hurt alot. Anyway last year my eyes started to ache and burn and get blurry. Dr. said to see eyeDr. but he said it was not eye strain. I have been on Savella for 3 weeks and it has helped my aches except the bursitus and tear in my shoulder(need surgery on that). But my eyes stiil arereally bothering me. Im going to ask the Dr. next week but do any of you have problems with your eyes. I really dont think I can take another diagnosis.  I also have had terrible headaches and neck pain. Not sure if it is the Savella or the DDD or the Fibro. Sometimes I think I should just try some stong pain pills and call it a day rolleyes I am still working full time but it is a struggle everyday just to leave the house. I cant work much longer with my eyes like this so any suggestions would be really appreciated.

Littleneck
Veteran Member


Date Joined Mar 2009
Total Posts : 599
   Posted 10/21/2009 8:57 PM (GMT -7)   
Hi Normal, since my bad flare started in January I have been having a lot worse migraines than normal. Different, too, from my 'normal' migraines which are all food- and scent-triggered. These migraines are sharp, constant pain in one eye or just above one eye. After a second occurrence I was checked out by my neurologist a few days ago and my rheumatologist came in to visit and chat, and I was told that since headaches are common fibro symptoms, some people experience intensifying, more frequent, and/or different types of headaches if they are in a fibro flare. I had a couple of really scary vertigo experiences too that we at first thought were medication-triggered (Tramadol), but now the neuro thinks they are ocular migraines (which also cause vertigo), a new type of migraine for me. I would see if you could get some headache meds like Maxalt (which works for me) if your doc thinks it might be a migraine. I had to go in when my eyes started hurting just looking at a computer screen.

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 10/21/2009 9:53 PM (GMT -7)   
Hi Normal...nice to meet you!

I too would worry about the eye problem and would keep banging on doors until I got a reasonable answer. I would want them to be way more thorough and get some answers as to what's going on.

One of the things on the long list of fibro symptoms is headaches. And with the pain in your neck and shoulders I could see why your head would hurt like crazy. I have arthritis in my neck and not only are my neck and shoulders extremely sore/sensitive, but I get headaches that stem from there. Not as often you yours but enough to annoy me. With the headaches it makes it harder to read but also nothing like what you are describing.

Your comment on the pain pills was meant in jest but I also some some bit of seriousness in there too. I'm assuming you are not taking anything for pain...right? And you may not wish to or need to. But if it's something you are considering you might ask your doc for something to help you try to lessen the pain. I would think driving to and from work would be hard with your eyes bothering you and the pain at a high level. I take oxycodone 24/7 for pain. Yes, I hate it but without it I would have absolutely no life at all. I would be immobile and sobbing or worse. It took me a while to adjust to what I take and over a long time but I did work and drive while on the medications. I still rive but I am very careful with my meds. I also take Provigil to combat the sleepiness that the med's cause.

You are right! You do NOT need another diagnosis! But I don't know anyone on here who ONLY has fibro. It's just how it is. I also am on insulin, have UC, colapsed disk, arthritis in my neck/hands/and other joints, rare form of dermatitis, PTSD, and a few other side dishes. Nope, no fun at all but would be much worse without knowing what I'm fighting and having a great doc who treats me like family.

Keep in touch and post anytime you need a shoulder to cry or lean on. That's why all of us are here...
Chutz
Children will not remember you for the material things you provided but for the feeling that you cherished them.
Richard L. Evans

(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums
(/|\)


ladybug44r
Veteran Member


Date Joined Jul 2006
Total Posts : 831
   Posted 10/23/2009 4:04 PM (GMT -7)   
Is it like a stabbing pain in the eyes. I get that sometimes especailly if I'm over tired.

Veronica
DX Fibro 12/31/07   Guess I can put the rest dx
PSTD  Bi Polar 2/04  Depression most of my life  IBS
RX Amitriptylin 25mg
 
God gives doesn't give us more than we can handle. So this too shall pass.


Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 952
   Posted 10/23/2009 4:24 PM (GMT -7)   
Hi Normal,
     I just had my first bad flare since starting my herbals 7 months ago. This is the time of year it
hits me hardest. For the first time my head felt like it was in a vise. The nerve endings from my
shoulders to the top of my head were on fire. This is also a first....it felt like someone was inside
my head trying to poke my eyes out. Never had that before. It hurt to try and focus on doing my
job reading tray slips and checking them. Very light sensitive, too. Even closing my eyes didn't
help much.
         Nana Monster

vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 10/23/2009 5:38 PM (GMT -7)   
For the past three weeks I have had horrific headaches that feel like severe eyestrain.  My eyes are  blurry and painful, even to the touch.  I blamed it on Lexapro withdrawal but now I wonder.  I find if my husband rubs the knots out of my shoulders and neck the pain lessens.   I know that eye pain can come from arthritis or stiffness from tension in the muscles of the back, neck and shoulders.
 
Donna
fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 952
   Posted 10/24/2009 5:01 AM (GMT -7)   
Hey Vesta,
   I wonder if it's something that's going around in our area. I've had a headache for about the same
length of time. I also blamed it on stress. Some of the others in the kitchen had it too.
          NM

vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 10/24/2009 5:38 AM (GMT -7)   

NM...lovely weather for headaches here, aye?  I don't know.  It even hurts to wear my glasses, especailly on that bone behind my ears.  But my eye pain in the worst!

 

d


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


mamanan
Veteran Member


Date Joined Jun 2008
Total Posts : 846
   Posted 10/24/2009 7:33 AM (GMT -7)   
I had a lot of eye trouble last year. It started with trouble focusing, and my eyes burning with the least little strain. Then I started seeing after images almost constantly, with just glancing at something with contrast. The halos that you usually see around lights tripled in size. I was very concerned and kept bugging my doctor at every visit about it. I went and got a thorough eye exam and every thing came back normal, so I tried to stop worrying about it and just live with it. I think this lasted about 9 mths, maybe more. Then one day I realized I didn't see the large halos anymore. My eyes still do tire easily, and at those times I have trouble focusing. If I have time, I lay down with a cool cloth over my eyes and avoid the computer or reading.

I hope you feel better soon. It's so hard when a symptom affects our work.
possible fibro and trigeminal neuralgia
50 mgs amitriptyline


jamies.mom
Regular Member


Date Joined Dec 2006
Total Posts : 53
   Posted 10/24/2009 10:17 AM (GMT -7)   
I too have terrible eye pain. Just diagnosed today with Fibro, but have had various symptoms for years.  The eye pain was worse a few years ago, and popped up whenever I had migraine type headaches. It was so bad at times I wanted to pry out my own eyeball to make it stop.  I was never able to find a cause, and now it has gotten much better. Only bugs me once in a long while, thank god, because that was the worst pain ever.

Normal
Regular Member


Date Joined Mar 2008
Total Posts : 263
   Posted 10/25/2009 3:37 PM (GMT -7)   
Thanks so much for replys. I have found that massage helps my head and neck pain too. Have a friend co-worker who massaged her moms with Fibro and she does wonders! She says she can feel knots in my shoulders. I know you have headaches with Fibro but mine have been SOOO bad since I started on the Saveela that I have to wonder if that is causing them. However it helps the rest of my body and the IBS so much I was hoping it would go away. But I have only started researching Fibro and had not heard about eye pain. My Internist moved away so all I have right noe is a new Rheumatolgist. I use the IBS forum too and I would go crazy without being able to ask things on the forums. Does anyone know if insurance pays for massage therapy? It is 40.00 to 60.00 an hour around here. Im going to ask my insurance but it is really bad. I am looking for a new company.Take care, Normal

Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 952
   Posted 10/25/2009 5:32 PM (GMT -7)   
Vesta,
   I just found out today one girl in my dept has had her headache for 4 weeks now. A CT scan of the
sinus showed nothing, now they're going to do a CT scan of her brain this week. This week's weather
isn't too bad other than the dang rain. I'm glad it's warmer....at least I don't have to shovel yet.
           NM

Spicey
Regular Member


Date Joined Mar 2009
Total Posts : 135
   Posted 10/26/2009 2:40 AM (GMT -7)   
Sometimes i get light sensitivity in the a.m. when i get up, I can barely open my eyes.
They're like slits,the light hurts so much. It comes and goes. A few years ago, I had to
go to the eye doctor because i believed i had some kind of eye allergy. Now,I'm not fond
of M.D. appnmts and i have to be desperate to go. Was a viral infection. Later that same
year, back to the eye doctor, this time dry eye syndrome...

I'm amazed at all the weird little conditions that just happen to come and go with F.M.
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