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Date Joined Oct 2009
Total Posts : 1
Posted 10/23/2009 10:39 AM (GMT -7)
hi..I'm new to this...it's about
3 years I have all this strange symptoms and finally my family doctor told me can be fibro...my first symptoms was numbness all over the body...back pain, burning sensation,tension headaches...now after 3 years and after 3 mri of the brain...and million of all other test..I'm finally thinking that is fibro...in the past 3 weeks my muscle hurt so much..in the morning my body is so tense..like i'm paralized..and i don't sleep very well at all..i'm a cashier..and I find so hard to work in my feet..plus i have ibs too( i did a gastroscopy)...and I see a neurologist to make sure is not ms( i have 2 more mri to do...head and complete spine)..my gp give me lyrica..25 mg for a week then 50 mg for a month, once a day...it was ok..but i did a lot of resaerch and lyrica cause weight gain....so i'm trying first with natural medicin...a combination of magnesuim and malic acid, plus vitamin e, b, d...did anybody gain weight with 50 mg of lyrica per day?....did anybody tried to go with the natural remedies?
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Date Joined Apr 2005
Total Posts : 17159
Posted 10/23/2009 2:04 PM (GMT -7)
Hi, Susanna, and welcome! I'm so glad you found us and joined in! We have wonderful members that love to help one another and really care about
each other, too.
Be sure to check out the Fibro 101 thread...the first thread on the forum. There are links to good information about
fibro and you can learn a lot there.
I use ibuprofen with food, extra strength tylenol, malic acid/magnesium supplements, and vitamin D3 to help with pain and fatigue. There are links in the Fibro 101 thread about
malic acid/magnesium supplements and vitamin D3 and how they work in your body. I did have good results with these. I don't take the other meds, either. I can't afford to gain weight and I don't like some of the side affects of these things.
Exercise, though, is very important. If you sit or lay too long, you will be stiff as a board. There are some gentle exercises in Fibro 101 that really do help and you should find a gentle exercise that you can do. Walking is my form of exercise. I also swim and that is great if you have access to a pool. I find that when I keep moving my pain is less and it helps keep the muscles flexible. You should pace yourself, too. You can't do the same things in the same time frame as you did before fibro. But, it all will get done. I do that with cleaning the house. I don't clean the whole house in one day. But, my house is still clean...sort of!
Moist heat is great, too. Hot showers and baths feel heavenly. You can get a Bed Buddy at Walgreen's and other places or make your own by taking a tube sock, filling it 2/3's full of long grain rice and tying a knot at the end. Pop it in the microwave and it gives off moist heat and it feels great on those muscles.
Susanna, don't be scared. I have had fibro for 22 years and have had a full and enjoyable life so far. You will learn how to work around fibromyalgia to do the things you really want to do. We can help with ideas for you. Also, keep a positive outlook. It really, really does help a lot. A good sense of humor is great for the fibro fog, too!
So, we will help you.
Meanwhile, read back posts, too. There is a world of information in them. Also, don't hesitate to ask questions. We are here to help you. I hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7
Post Edited (Sherrine) : 10/23/2009 3:15:34 PM (GMT-6)
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Date Joined Jan 2005
Total Posts : 9090
Posted 10/23/2009 4:00 PM (GMT -7)
And welcome to the fibro family! Sherrine gives awesome advice and like she said, please don't be scared. As sick as this might sound, at least fibro is a lot better than many of the other disorders you have been tested for. It's not life threatening and with some work and a great doctor you can have a wonderful life. No, it won't be exactly the same as before, but you will learn to keep the pain to a minimum.
Joining with a group of people who have been living with this for a long time is probably the best you could have done. Most importantly, here you will have someone to listen and help you 24/7 and with a little time you will be the one helping others with your experience. Plus being around others who understand keeps you from that feeling of isolation and that will lead to fear faster than most anything. We are all in this together, my newest friend! So let's together work on a couple of things for today. Relaxing is probably the hardest thing for me. I'm always too busy, worrying about
everyone and everything and all that does is make my pain worse. So let's together work on relaxing our minds which in turn will relax the body and lessen the pain. OK? Tomorrow will take care of itself. ;-)
Children will not remember you for the material things you provided but for the feeling that you cherished them.
Richard L. Evans
(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums
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Date Joined Jun 2009
Total Posts : 439
Posted 10/23/2009 6:17 PM (GMT -7)
Is there a reason your work can't provide you a tall stool to sit on while you cashier?
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Date Joined Jun 2008
Total Posts : 846
Posted 10/24/2009 7:58 AM (GMT -7)
Hi Susanna and welcome!
I understand your feeling scared. Fibro is such a confusing disorder with so many variables. I had mild symptoms for a few years, then I felt better once I got pregnant again. Afterwards I had more strange symptoms and finally went to my doctor. After 1 1/2 years, I finally have a firm dx of fibro. I had accepted it for a long time that's what I had, but it still feels good to be validated and to know for sure.
I felt so much better earlier this spring when I finally accepted that's what I had. Once I accepted and stopped worrying about
new symptoms or denying there was anything wrong with me, I could move on with my life. I can enjoy my good periods now, and not feel so sorry for myself when I feel bad b/c I know it won't last forever.
I have never taken Lyrica, so I don't know about
the weight gain. I did try malic acid/ magnesium combo for a time, and it worked wonders for me. I almost felt normal. I had much more energy and my muscles felt stronger. I stopped that when I thought I was cured for a time earlier this spring; I haven't started them again b/c I have been managing fine for now without. I may go back to them if I don't improve once I get used to the cold.
Welcome again. you have found a wonderful place to get support. I learned so much from other's experiences here, and I'm sure you will too. I also really understand how sore you can get with the work you do. I can not stand for long periods, my legs and hips ache so bad. I waitress (after cashiering for a time) and enjoy the movement much more. Would it be possible to get a stool, like someone suggested earlier?
fibromyalgia and possible trigeminal neuralgia
50 mgs amitriptyline daily, T3s for facial pain (really not appropriate med)
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Date Joined Apr 2009
Total Posts : 6
Posted 10/25/2009 1:25 AM (GMT -7)
I have been taking Lyrica 150x2 a day for 5 months and Lyrica 200 x 2a day for the last 6 weeks, i personally didn't gain weight but i got other side effects.At the start Lyrica took awhile to get used to but it gave me great relief but unfortunately now i am going through a bad very bad phase and now my nurologist put me on cymbalta and after 1 tablet i get very sick..
I am now concidering trying the traditional methods.
All the best
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